Mission: At Children's Cancer Association (CCA), our mission is to deliver Joy-centric programs that create immediate and measurable improvement to the mental and emotional wellness of young patients.

We know it takes more than medicine to treat cancer and serious illness. When a child is facing life's most challenging moments, they also need emotional healing.


For 25 years, CCA has delivered programs to help young patients find their Joy. JoyRx Music, Mentorship, and Nature programs reduce the loneliness, stress, and perception of pain for young patients-transforming their pediatric healthcare experience-and are offered at no-cost to families and hospital partners.


Simply put: Joy makes sick kids feel better.

Children's Cancer Association is a 501(c)(3) organization, with an IRS ruling year of 1995, and donations are tax-deductible.

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Contact Information

  http://joyrx.org/

 1200 Northwest Naito Parkway
Suite 140
Portland OR 97209 

  503-244-3141


You are viewing this organization's new Charity Navigator profile page. To view the legacy version, click here.

Star Rating System by Charity Navigator


Charity Navigator evaluates a nonprofit organization’s financial health including measures of stability, efficiency and sustainability. We also track accountability and transparency policies to ensure the good governance and integrity of the organization.




Good

This charity's score is 82.20, earning it a 3-Star rating. Donors can "Give with Confidence" to this charity. 

This score is calculated from two sub-scores:

This score represents Form 990 data from 2019. More recent filing data is available, but it has not been factored into this score, due to COVID-19's effect on this organization.

View this organization’s historical ratings.

Rating update postponed due to COVID-19's impact on this organization. View Children's Cancer Association's response.


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Star Rated Report

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Program Expense

Program Expense Ratio

67.8%


The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s).


This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver. Dividing a charity's average program expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.


Source: IRS Form 990

Administrative Expenses

11.0%


As reported by charities on their IRS Form 990, this measure reflects what percent of its total budget a charity spends on overhead, administrative staff and associated costs, and organizational meetings. Dividing a charity's average administrative expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.


Source: IRS Form 990

Fundraising Expenses

21.1%


This measure reflects what a charity spends to raise money. Fundraising expenses can include campaign printing, publicity, mailing, and staffing and costs incurred in soliciting donations, memberships, and grants. Dividing a charity's average fundraising expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.


Source: IRS Form 990

Liabilities to Assets Ratio

12.4%


The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990).


Part of our goal in rating the financial performance of charities is to help donors assess the financial capacity and sustainability of a charity. As do organizations in other sectors, charities must be mindful of their management of total liabilites in relation to their total assets. This ratio is an indicator of an organization’s solvency and or long term sustainability. Dividing a charity's total liabilities by its total assets yields this percentage.


Source: IRS Form 990

Fundraising Efficiency

$0.21


The amount spent to raise $1 in charitable contributions. To calculate a charity's fundraising efficiency, we divide its average fundraising expenses by the average total contributions it receives. We calculate the charity's average expenses and average contributions over its three most recent fiscal years.


Source: IRS Form 990

Working Capital Ratio

0.74 years


Determines how long a charity could sustain its level of spending using its net available assets, or working capital, as reported on its most recently filed Form 990. We include in a charity's working capital unrestricted and temporarily restricted net assets, and exclude permanently restricted net assets. Dividing these net available assets in the most recent year by a charity's average total expenses, yields the working capital ratio. We calculate the charity's average total expenses over its three most recent fiscal years.


Source: IRS Form 990

Program Expense Growth

7.25%


We compute the average annual growth of program expenses using the following formula: [(Yn/Y0)(1/n)]-1, where Y0 is a charity's program expenses in the first year of the interval analyzed, Yn is the charity's program expenses in the most recent year, and n is the interval of years passed between Y0 and Yn.


Source: IRS Form 990

Governance


Charity Navigator looks to confirm on the Form 990 that the organization has these governance practices in place.


Sources Include: IRS Form 990

Governance:
Independent Voting Board Members  ... (More)
No Material Diversion of Assets ... (More)

A diversion of assets – any unauthorized conversion or use of the organization's assets other than for the organization's authorized purposes, including but not limited to embezzlement or theft – can seriously call into question a charity's financial integrity. We check the charity's last two Forms 990 to see if the charity has reported any diversion of assets. If the charity does report a diversion, then we check to see if it complied with the Form 990 instructions by describing what happened and its corrective action. This metric will be assigned to one of the following categories:

  • Full Credit: There has been no diversion of assets within the last two years.

  • Partial Credit: There has been a diversion of assets within the last two years and the charity has used Schedule O on the Form 990 to explain: the nature of the diversion, the amount of money or property involved and the corrective action taken to address the matter. In this situation, we deduct 7 points from the charity's Accountability and Transparency score.
  • No Credit: There has been a diversion of assets within the last two years and the charity's explanation on Schedule O is either non-existent or not sufficient. In this case, we deduct 15 points from the charity's Accountability and Transparency score.
(Less)
Audited Financials Prepared by Independent Accountant ... (More)

Audited financial statements provide important information about financial accountability and accuracy. They should be prepared by an independent accountant with oversight from an audit committee. (It is not necessary that the audit committee be a separate committee. Often at smaller charities, it falls within the responsibilities of the finance committee or the executive committee.) The committee provides an important oversight layer between the management of the organization, which is responsible for the financial information reported, and the independent accountant, who reviews the financials and issues an opinion based on its findings. We check the charity's Form 990 reporting to see if it meets this criteria.

  • Full Credit: The charity's audited financials were prepared by an independent accountant with an audit oversight committee.

  • Partial Credit: The charity's audited financials were prepared by an independent accountant, but it did not have an audit oversight committee. In this case, we deduct 7 points from the charity's Accountability and Transparency score.
  • No Credit: The charity did not have its audited financials prepared by an independent accountant. In this case, we deduct 15 points from the charity's Accountability and Transparency score.
(Less)
Does Not Provide Loan(s) to or Receive Loan(s) From Related Parties ... (More)
Documents Board Meeting Minutes ... (More)
Distributes 990 to Board Before Filing ... (More)
Compensates Board ... (More)

Policies


Charity Navigator looks to confirm on the Form 990, or for some metrics on the charity's website, that the organization has these policies in place.


Sources Include: IRS Form 990 and organization's website

Policies:
Conflict of Interest  ... (More)
Whistleblower ... (More)
Records Retention and Destruction ... (More)
CEO Compensation Process ... (More)
Donor Privacy ... (More)

Donors have expressed extreme concern about the use of their personal information by charities and the desire to have this information kept confidential. The exchanging and sale of lists for telemarketing and the mass distribution of "junk mail," among other things, can be minimized if the charity assures the privacy of its donors. Privacy policies are assigned to one of the following categories:

  • Yes: This charity has a written donor privacy policy published on its website, which states unambiguously that (1) it will not share or sell a donor's personal information with anyone else, nor send donor mailings on behalf of other organizations or (2) it will only share or sell personal information once the donor has given the charity specific permission to do so.

  • Opt-out: The charity has a written privacy policy published on its website which enables donors to tell the charity to remove their names and contact information from lists the charity shares or sells. How a donor can have themselves removed from a list differs from one charity to the next, but any and all opt-out policies require donors to take specific action to protect their privacy.
  • No: This charity either does not have a written donor privacy policy in place to protect their contributors' personal information, or the existing policy does not meet our criteria.

The privacy policy must be specific to donor information. A general website policy which references "visitor" or "user" personal information will not suffice. A policy that refers to donor information collected on the website is also not sufficient as the policy must be comprehensive and applicable to both online and offline donors. The existence of a privacy policy of any type does not prohibit the charity itself from contacting the donor for informational, educational, or solicitation purposes.

(Less)

Transparency


Charity Navigator looks to confirm on the Form 990, or for some metrics on the charity's website, that the organization makes this information easily accessible.


Sources Include: IRS Form 990 and organization's website

Transparency:
CEO Salary Listed on 990 ... (More)
Board of Directors Listed on Website ... (More)
Key Staff Listed on Website ... (More)
Audited Financial Statements on Website ... (More)
Form 990 Available on Website ... (More)

Additional Information

Unscored

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Total Revenue and Expenses

Total Revenue and Expenses

This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.

Salary of Key Persons

Presented here are up to five of this organization's highest compensated employees. This compensation data includes salary, cash bonuses, and expense accounts and is displayed exactly how it is reported to the IRS. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. In some cases, these amounts may include compensation from related organizations. Read the IRS policies for compensation reporting



REGINA ELLIS, CHIEF JOY OFFICER/FOUNDER

$250,461


DANIELLE YORK, PRESIDENT AND GM

$219,861


JENNIFER O'BRYAN, VP OF DEVELOPMENT

$150,354


JACK PIPKIN, VP OF NEW BUSINESS DEVELOPMENT

$123,836


SUZANN BARICEVIC MURPHY, BOARD OF DIRECTOR

$0


Source: IRS Form 990 (page 7), filing year 2020

Business Master File Data

Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website


Activities:

Described in section 170(b)1)(a)(vi) of the Code (BMF activity code: 994)

Other instruction and training (BMF activity code: 149)


Foundation Status:

Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi) (BMF foundation code: 15)


Affiliation:

Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)

Data Sources: IRS Forms 990

The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to view this organization's Forms 990 on the IRS website (if any are available).

Pandemic Response

This organization was impacted by COVID-19 in a way that effected their financial health in 2020. This normally would have reduced their star rating. Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them, and doing this pauses our revision of their rating. Charities may submit their own pandemic responses through their nonprofit portal.


Children's Cancer Association reported being impacted by COVID-19 in the following ways:
  • Program Delivery

  • Fundraising Capacity

  • Revenue

  • Staffing

  • Administrative Capacity

  • Grants Received

  • Grants Sent

  • Balance Sheet


How COVID-19 impacted the organization's operations financially:

The COVID-19 pandemic presented tremendous challenges to fundraising over the past year. Because special events, foundation grants, corporate giving and individual giving were all severely disrupted, CCA leadership and its Board of Directors adjusted organizational budgets and fundraising targets. We applied for and received a federal Paycheck Protection Plan loan. By the end of our fiscal year (4.30.21), the team met its adjusted raised revenue goal.


How COVID-19 impacted the organization's delivery of programs:

COVID-19 impacted our ability to deliver our programs through traditional means. Service delivery adaptations varied by program: JoyRx Music: We developed Digital-Live programming, which offers children live and interactive music interventions, modelled on our 26-year history of in-person program delivery, and enhanced content within our On-Demand programming, available 24/7 on www.JoyRxMusic.org JoyRx Mentorship: CCA staff arranged over 60 hours of virtual social activities to bring our Mentorship families together safely and monitored 99 matches providing children in treatment with emotional support through video chats, pen pal letters, online gaming, and more. JoyRx Nature: following a brief state-mandate closure due to the pandemic, 37 families visited the Caring Cabin for a free-of-charge retreat. Increased cleaning procedures have been implemented to ensure visitor safety.


How this organization adapted to changing conditions caused by COVID-19:

Early on, we found that hospitals were struggling to find engaging and meaningful activities for their pediatric patients, due to staffing and programming cuts necessitated by COVID. Organization-wide, the pandemic and its rapidly changing conditions refocused our attention on innovation, testing, and learning. Programmatically, this led to the development of an entirely new, digital program delivery which allowed CCA to meet critical partner hospital needs, and demand increased significantly. By the end of our fiscal year, our number of pediatric hospital partners doubled, from ten to twenty. Concurrently, CCA’s fundraising team pivoted to develop new campaigns and digital events to both sustain the organization and lay the foundation for such rapid growth.


Innovations the organization intends to continue permanently after the pandemic:

In light of the tremendous need for programs that entertain, soothe and actively engage seriously ill youth, CCA will focus on growing its Digital-Live delivery of JoyRx Music programs for pediatric patients. This new mode of service delivery has enabled us to serve more kids and reach more hospitals with no-cost services that measurably and positively impact patient emotional wellbeing.


Historical Ratings

Date PublishedForm 990 FYEOverall ScoreOverall Rating
Rating Version: 2.1
3/1/20202019 82.20
4/1/20192018 82.81
8/1/20182017 86.85
5/1/20172016 88.21
6/1/20162015 89.22
Rating Version: 2.0
3/1/20162015 90.68
11/1/20152014 91.47
10/1/20152014 91.02

This organization received multiple star ratings within this fiscal year, due to an update to it's Accountability and Transparency data and/or the receipt of an amended Form 990.

8/1/20142013 91.48
5/1/20132012 91.42
7/1/20122011 93.51
11/1/20112010 90.22
9/20/20112010 88.33
Rating Version: 1.0
6/1/20112010 93.13
7/1/20102009 89.14
5/1/20092008 81.89
10/1/20082007 79.49
7/1/20072006 79.27
7/1/20062005 79.30
9/1/20052004 75.97

...   Impact & Results


This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.


Impact & Results Score

Not Currently Scored

Children's Cancer Association cannot currently be evaluated by our Encompass Rating Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.

Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.

Learn more about Impact & Results.

Do you work at Children's Cancer Association? Join the waitlist for an updated Impact & Results score.


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Additional Information

Unscored

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Largest Programs

Largest Programs



Children's Cancer Association reported its three largest programs on its FY 2020 Form 990 as:


$1,210,743

Spent in most recent FY

34%

Percent of program expenses


MyMusicRx - The flagship program of Children's Cancer Association (CCA), delivers the healing power of music to kids and teens facing cancer and other serious illnesses. CCA's MyMusicRx program engage ... (More)


$1,026,853

Spent in most recent FY

29%

Percent of program expenses


Community Outreach and Education - In addition to our core program offerings, CCA is proud to provide comprehensive resources and information to families facing the profound trauma of a pediatric canc ... (More)


$491,433

Spent in most recent FY

13%

Percent of program expenses


Chemo Pal Mentor Program - In 1999, Children's Cancer Association (CCA) introduced the Chemo Pal Mentor Program, the only program of its kind in the nation, which pairs seriously ill kids and teens in ... (More)


...   Leadership & Adaptability


This score provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.


Leadership & Adaptability Score

100

out of 100

The score earned by Children's Cancer Association is a passing score.

Encompass Rating V4 provides an evaluation of the organization's Leadership & Adaptability through the nonprofit organization submitting a survey response directly to Charity Navigator.


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Leadership & Adaptability Report

100

of 100 points

Mission

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s mission


Children’s Cancer Association (CCA) delivers Joy-centric programs that create immediate and measurable improvement to the mental and emotional wellness of young patients.


Source: Nonprofit submitted responses

Vision

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.


At Children’s Cancer Association (CCA), we know it takes more than medicine to treat cancer and serious illness. When a child is facing life’s most challenging moments, they also need emotional healing. For 25 years, we’ve been doing just that—delivering programs to help young patients find their Joy—one song, one friendship, one breath of ocean air at a time. Because when a child experiences Joy, their emotional well-being is positively impacted. Simply put: Joy makes sick kids feel better. CCA’s JoyRx Music, Mentorship, and Nature programs create feel-good moments for young patients and help them positively shift their mood to relieve the sadness, anxiety, and isolation experienced during lengthy treatments and hospitalizations—transforming their pediatric healthcare experience. We envision JoyRx at pediatric health care settings across the United States, embedding Joy alongside medical care for all seriously ill children and teens.


Source: Nonprofit submitted responses

Strategic Goals

The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.


Goal One: Partner with pediatric hospitals nationwide to make highly personalized JoyRx Music medicine experiences available in person, streaming "live", and on demand for seriously ill kids.

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Goal Two: Amplify the impact of JoyRx program services and delivery for diverse cohorts of kids and teens through an assessment of their needs, and testing program adaptations to optimize patient outcomes.

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Goal Three: Develop new partnership and opportunities to ignite national and regional growth, launching CCA to the next level of of expansion.

Goal Type: Invest in the capacity of our organization (financial, management, technical, etc.).


Source: Nonprofit submitted responses

Leadership Development

The nonprofit provides evidence of investment in leadership development


Describe an investment in leadership

CCA is committed to ongoing learning and development of all staff. Each of our executive team members has a designated board mentor with expertise in leadership. The executives and their mentors meet monthly with specific development goals tied to their annual reviews and Hogan assessments. CCA leaders (directors and executive team) participate in the Intercultural Development Inventory assessment and roadmap process in partnership with Carissa Rudolf, certified IDI trainer at Nike. All staff, including leaders, will participate in Diversity, Equity & Inclusion Training through Paradigm.

Source: Nonprofit submitted responses

Mobilizing for Mission

The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.


This organization mobilizes for mission in the following ways:
  • Strategic Partnerships

  • Networks of Collective Impact Efforts

  • Thought Leadership

  • Raising Awareness

What are this organization’s external mobilizaton efforts?

CCA has relied on community mobilization for 26 years to drive its mission delivery. We work hand-in-hand with 20 pediatric hospital partners and alongside community organizations to collectively create a network of support for seriously ill children and their families. We are informed by specialist networks ranging from mentoring to music therapists and share our voice with national coalitions like the National Organization for the Arts in Health. We train over 3,000 volunteers per year. And finally, our staff relay the impact of JoyRx by listening to and capturing family and hospital stories, which are shared via our social media channels and in or various publications.

Source: Nonprofit submitted responses

Story of Adaptability

The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.


CCA adapted to external changes in the past year thanks to a strong history of dedicated leadership and fiscal excellence, and a team committed to delivering its mission safely and consistently throughout a time of increased social isolation, fear, and anxiety for the families we serve.

Source: Nonprofit submitted responses

...   Culture & Community


This score provides an assessment of the organization's engagement with the constituents it serves, a practice we term Constituent Feedback. When organizations listen to constituents, they are able to better deliver on programs and meet the needs of stakeholders. A future version of this Beacon will also assess an organization's people operations and its Diversity, Equity and Inclusion (DEI) metrics.


Culture & Community Score

100

out of 100

The score earned by Children's Cancer Association is a passing score.

Encompass Rating V4 provides an evaluation of an organization's Culture and Community by measuring its Constituent Feedback practices (see report below). Constituent Feedback data provides 100% of the basis for the initial evaluation of the Culture & Community Beacon.


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Culture & Community Report

100

of 100 points

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Constituent Feedback

Constituent Feedback

Full Credit


This organization reported that it is collecting feedback.


Here's how this organization is listening and learning from the people they serve:


How is your organization collecting feedback from the people you serve?

Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Paper surveys, Community meetings or town halls, Constituent (client or resident, etc.) advisory committees


How is your organization using feedback from the people you serve?

To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve


With whom does your organization share the feedback you got from the people you serve?

The people we serve, Our staff, Our board, Our funders, Our community partners


What challenges does your organization face in collecting feedback from the people you serve?

It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time, It is difficult to identify actionable feedback


Briefly describe a recent change that your organization made in response to feedback from the people you serve.

In 2017, CCA recruited and formed a Young Adult Alliance (YAA) comprised of 10 teens, ages of 13 and 21. Members of the alliance share a passion and interest for improving the quality and quantity of programs accessible to the teen/young adult patient population because they themselves are receiving, or have received, care for a serious illness which resulted in treatment or hospitalization within the last four years. CCA’s YYA bring ideas and insights that we would otherwise miss. Early questions we asked included: Do you want activities while in hospital, or post-treatment? Would you want to bring along a friend or sibling? And so on. As our ‘alumnae’, members teach us about their perspective, challenges, and needs as they navigate their journey.



Methodology


Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective. We've partnered with GuideStar by Candid to survey organizations about their feedback practices. Nonprofit organizations can fill out the How We Listen section of their Candid profile to receive a rating.


Charity Navigator awards full credit for this Beacon to every nonprofit that is eligible for an Encompass Rating that completes the survey, in recognition of their willingness to publicly share this information with the nonprofit and philanthropic communities. This data is not evaluated for quality at this time. Validation will be added in future iterations of this Beacon.

Analysis and Research


Like the overall Encompass Rating System, the Culture & Community Beacon is designed to evolve as metrics are developed and ready for integration. Our partnership with Feedback Labs and Guidestar by Candid, and other partners including Fund for Shared Insight, GlobalGiving, and Keystone Accountability, enables us to launch the first version of this beacon with Constituent Feedback information collected on Candid's site.


Feedback practices have been shown to support better Diversity, Equity, and Inclusion outcomes, an essential area of assessment that we intend to further expand and develop in the future. Feedback Labs has documented several studies which indicate that beyond achieving organizational goals, nonprofits that are attentive and responsive to concerns and ideas raised by beneficiaries establish stronger relationships with the people they serve, promote greater equity, and empower constituents in ways that can help to ensure better long-term outcomes. You can find resources to help nonprofits improve their feedback practices here.

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