TSC Alliance

Mission

The TSC Alliance improves quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support. The TSC community is our strongest ally. With the power of individuals, families, organizations and more, we can create a future where everyone with TSC can realize their full potential-no matter how complex their journeys are to get there. TSC causes tumors to grow in different organs and can impair their function, primarily the brain, heart, kidneys, skin, eyes and lungs. Changes in the brain caused by TSC have the biggest impact on quality of life, from seizures and developmental delays to intellectual disabilities, behavioral challenges and autism. TSC is a complicated disease. Some people live with few symptoms while others need continual support. Most people with TSC live normal lifespans.

Vision

To create a future where everyone affected by tuberous sclerosis complex can live their fullest lives.

Goals

1.Accelerate Research. We ensure TSC researchers have the data and funds they need to discover breakthroughs.
2.Improve Access and Quality of Care. We improve access to high-quality care for people with TSC.
3.Support and Empower Constituents. The TSC Alliance advocates with and on behalf of our community to ensure everyone living with TSC has what they need to live their fullest lives.

Silver Spring MD | EIN: 95-3018799

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

8737 Colesville Road, Suite 400,
Silver Spring MD 20910

Mail donations to: 8737 Colesville Road, Suite 400,
Silver Spring MD 20910

https://www.tscalliance.org

301-562-9890

TSC Alliance

Mission

Vision

To create a future where everyone affected by tuberous sclerosis complex can live their fullest lives.

Goals

1.Accelerate Research. We ensure TSC researchers have the data and funds they need to discover breakthroughs.
2.Improve Access and Quality of Care. We improve access to high-quality care for people with TSC.
3.Support and Empower Constituents. The TSC Alliance advocates with and on behalf of our community to ensure everyone living with TSC has what they need to live their fullest lives.

Silver Spring MD | EIN: 95-3018799

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

8737 Colesville Road, Suite 400,
Silver Spring MD 20910

Mail donations to: 8737 Colesville Road, Suite 400,
Silver Spring MD 20910

https://www.tscalliance.org

301-562-9890

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

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Mission

Mission

Beacon Report