Mission

The TSC Alliance improves quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support. The TSC community is our strongest ally. With the power of individuals, families, organizations and more, we can create a future where everyone with TSC can realize their full potential-no matter how complex their journeys are to get there. TSC causes tumors to grow in different organs and can impair their function, primarily the brain, heart, kidneys, skin, eyes and lungs. Changes in the brain caused by TSC have the biggest impact on quality of life, from seizures and developmental delays to intellectual disabilities, behavioral challenges and autism. TSC is a complicated disease. Some people live with few symptoms while others need continual support. Most people with TSC live normal lifespans.