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Charity Name Cerebral Palsy Prader-Willi Syndrome Association (USA) Fanconi Anemia Research Fund The Progeria Research Foundation Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)
Location Green Bay, WI Sarasota, FL Eugene, OR Peabody, MA New York, NY
   
Overall Rating
 
three stars
(88.50)
three stars
(88.23)
three stars
(86.44)
four stars
(97.94)
four stars
(95.31)
   
Financial Rating four stars
(93.72)
four stars
(92.80)
four stars
(97.50)
four stars
(97.10)
four stars
(94.71)
   
A&T Rating three stars
(85.00)
three stars
(85.00)
three stars
(81.00)
four stars
(100.00)
four stars
(96.00)
   
Financial Metrics
Program Expenses 90.9% 77.3% 86.0% 83.6% 84.0%
Admin Expenses 3.1% 13.7% 7.5% 12.1% 4.6%
Fund Expenses 5.9% 8.8% 6.3% 4.1% 11.2%
Fund Efficiency $0.10 $0.17 $0.06 $0.05 $0.19
Program Growth 5.2% 11.7% 12.3% 20.3% 18.1%
Working Capital 2.31 1.17 2.31 1.49 2.00
Liabilitites to Assets 4.5% 12.1% 15.9% 10.0% 2.0%
Total Revenue $8,816,149 $1,844,062 $3,408,713 $2,015,719 $1,607,929
Total Expenses $6,011,307 $1,454,509 $2,349,715 $2,823,533 $1,616,327
Excess/Deficit $2,804,842 $389,553 $1,058,998 $-807,814 $-8,398
Net Assets $13,227,068 $1,739,576 $5,138,645 $3,874,212 $2,775,860
CEO Compensation
% of Expenses
$113,665
1.89%
N/A
N/A
$28,269
1.20%
$102,364
3.62%
$153,012
9.46%
   
Accountability & Transparency Metrics
Information Provided on the Form 990      
Independent Voting Board Members
No Material diversion of assets
Audited financials prepared by independent accountant
Does Not Provide Loan(s) to or Receive Loan(s) From related parties
Documents Board Meeting Minutes
Provided copy of Form 990 to organization's governing body in advance of filing
Conflict of Interest Policy
Whistleblower Policy
Records Retention Policy
CEO listed with salary
Process for determining CEO compensation
Does Not Compensate Any Board Members
Does the charity's website include readily accessible information about the following:
Donor Privacy Policy
Board Members Listed
Audited Financials
Form 990
Key staff listed
       

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