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Health : Diseases, Disorders, and Disciplines

National Fragile X Foundation


four stars


2100 M Street, NW Suite 170, Box 302
Washington, DC 20037
tel: (800) 688-8765   Web Site
EIN: 84-0960471

Board Leadership
Jay Souder

Linda Sorensen
Executive Director

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 10/01/2019 94.84 four stars
2017-12 07/01/2019 89.57 three stars
2017-12 12/21/2018 89.19 three stars
2016-12 03/01/2018 93.33 four stars
2015-12 03/01/2017 84.27 three stars
2014-12 06/01/2016 89.02 three stars
CN 2.0
2014-12 12/01/2015 91.51 four stars
2013-12 04/01/2015 82.92 three stars
2012-12 10/01/2013 92.76 four stars
2011-12 09/01/2012 81.23 three stars
2010-12 11/01/2011 87.73 three stars
2009-12 09/20/2011 --Donor Advisory

Prior to 9/1/2016, Charity Navigator issued Advisories under the name CN Watchlist and Donor Advisory. For more information on the CN Advisory system click here. This charity was issued a DA.

This donor advisory was published on Tuesday, September 20, 2011

In accordance with our policy for removing Donor Advisories, Charity Navigator  removed the Donor Advisory for the National Fragile X Foundation in November 2011 because  the organization filed an amended FYE 2010 Form 990 with the IRS which reports fundraising expenses.

Charity Navigator had published a Donor Advisory for this charity because we became aware of the following information in connection with this charity:

  • National Fragile X Foundation historically reported fundraising expenses on their Forms 990.  But its FYE 2010 Form 990 listed no fundraising expenses. Based on our experience, charities only rarely are able to raise substantial sums of money without incurring any associated fundraising costs. We reached out to National Fragile X Foundation for clarification, but did not received an adequate explanation. We were therefore unable to evaluate National Fragile X Foundation and thus issued a Donor Advisory. 
CN 1.0
2009-12 10/01/2010 83.57 three stars

Charity Contact Info

National Fragile X Foundation
2100 M Street, NW
Suite 170, Box 302
Washington, DC 20037
tel: (800) 688-8765
fax: (925) 938-9315
EIN: 84-0960471

Visit Web Site

Board Leadership

Jay Souder


Linda Sorensen
Executive Director

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