Impact & Measurement
Accountability & Finance
Culture & Community
Leadership & Adaptability
Diann Shaddox Foundation
Aiken SC | IRS ruling year: 2014 | EIN: 47-1008505 
An EIN is a unique nine-digit number that identifies a business for tax purposes.
An EIN is a unique nine-digit number that identifies a business for tax purposes.Organization Mission
Diann Shaddox Foundation for Essential Tremor mission is to advance knowledge and recognition of Essential Tremor to the world and find new treatments and a cure fo ... (More)
Rating Information
Not currently rated
Ratings are calculated from one or more beacon scores. Currently, we require either an Accountability & Finance beacon or an Impact & Measurement beacon to be eligible for a Charity Navigator rating. Note: The absence of a rating does not indicate a positive or negative assessment; it only indicates that we have not yet evaluated this organization.
See rating report below to learn why this organization is not currently eligible.
Historical Ratings 
Historical Ratings 
Charity Navigator's ratings previously did not consider Leadership & Adaptability, Culture & Community, or Impact & Measurement. The historic rating mainly reflects a version of today’s Accountability and Finance score. More information on our previous rating methodologies can be found on our rating methodology page.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
Rating Report
Accountability & Finance
Not Currently Scored
Unknown Reason
Charity Navigator is unable to evaluate this nonprofit at this time. Please see our Encompass Rating methodology for more information.
Additional Information
Total Revenue and Expenses - No Data Available
Total Revenue and Expenses - No Data Available
No Data Available
Revenue and expense data is not available for this organization. This data is only available if this organization has at least one year of electronically-filed Form 990 data filed within the last $six years.
Salary of Key Persons - No Data Available
Salary of Key Persons - No Data Available
No Data Available
Salary of Key Persons data is currently unavailable for this organization. This data is only available if this charity has at least one year of electronically-filed Form 990 data filed within the last 3 years. In some cases, there may be an electronically-filed 990 on file but the nonprofit may have not included the information and therefore we cannot post it.
IRS Published Data (Business Master File) - Data Available
IRS Published Data (Business Master File) - Data Available
Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website
Foundation Status:
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
Data Sources (IRS Forms 990) - Data Available
Data Sources (IRS Forms 990) - Data Available
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage accountability and finance data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (Diann Shaddox Foundation) or EIN (471008505) in the 'Search Term' field.
Impact & Measurement
Not Currently Scored
Diann Shaddox Foundation cannot currently be evaluated by our Impact & Measurement methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
Culture & Community
Score
100
This beacon provides an assessment of the organization's culture and connectedness to the community it serves.
Metrics
Full Credit
Partial Credit
No CreditConstituent Feedback - Data Available100/100 points
Constituent Feedback - Data Available100/100 points
33.33% of beacon score
This organization reported that it is collecting feedback from the constituents and/or communities it serves. The methodology leveraged for Constituent Feedback is based on The Core Principles of Constituent Feedback, which describes listening and responding well to feedback. Charity Navigator participates in a consortium with other feedback experts and leading nonprofit infrastructure platforms to drive Constituent Feedback's advancement, promotion, and data collection.
How is your organization using feedback from the people you serve?
To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve
What challenges does your organization face in collecting feedback from the people you serve?
It is difficult to find the ongoing funding to support feedback collection
Equity Practices - Data Available100/100 points
Equity Practices - Data Available100/100 points
66.67% of beacon score
This organization's score of 100 is a passing score. The organization reported that it is implementing 14 Equity Practices.
The Equity Strategies Checklist, developed by Equity in the Center, consists of practices and policies that promote racial equity in operations and programs. This data is collected in partnership with Candid.
| Equity Practices (7/7) | |
We review compensation data across the organization (and by staff levels) to identify disparities by race. | |
We ask team members to identify racial disparities in their programs and/or portfolios. | |
We analyze disaggregated data and root causes of race disparities that impact the organization/'s programs, portfolios, and the populations served. | |
We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support. | |
We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders. | |
We disaggregate data by demographics, including race, in every policy and program measured | |
We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization. | |
| Equity Policies and Procedures (7/7) | |
We use a vetting process to identify vendors and partners that share our commitment to race equity. | |
We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions. | |
We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization. | |
We have community representation at the board level, either on the board itself or through a community advisory board. | |
We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability. | |
We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team. | |
We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization. | |
Leadership & Adaptability
Score
100
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
- Strategic Partnerships
- Networks of Collective Impact Efforts
- Thought Leadership
- Raising Awareness
- Community Building
- Policy Advocacy
Metrics
Full CreditPartial CreditNo CreditMission 10/10 points
Mission 10/10 points
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission
Note: The organization did not respond to this question.
Vision 10/10 points
Vision 10/10 points
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
Note: The organization did not respond to this question.
Source: Nonprofit submitted responses
Goals 20/20 points
Goals 20/20 points
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: Network of Industry leader. Our goal is becoming a reality to build a highly connected diverse network of industry leaders who believe in our vision to unite and strengthen the ET community.
Goal Type: This goal reflects our commitment to further our advocacy work for our organization and or cause area.
Goal Two: Family Assistance Program. We are committed to assist families and everyone with ET through hardship to help them live productive healthy lives
Goal Type: New program(s) based on observed changes in needs among our constituencies/communities served.
Goal Three: Improve knowledge of ET throughout the world and the medical community. Inspire young health professionals to specialize in the care of ET. Develop a better data system for sharing ET information.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Leadership Development 15/15 points
Leadership Development 15/15 points
The nonprofit provides evidence of investment in leadership development
Describe an investment in leadership
With collaboration, teamwork, and focus we are transforming the way the world views ET. Together with critical thinking, innovative and groundbreaking ideas, we are driving results by informing the world about ET and inspiring others take positive action and join us on our mission with our social media, media outlets, and ET Talks.
Mobilizing for Mission 15/15 points
Mobilizing for Mission 15/15 points
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
This organization mobilizes for mission in the following ways:
What are this organization’s external mobilizaton efforts?
DSF is bringing the term Essential Tremor along with education, awareness, and research to the world. Our staff and supporters are dynamic and diverse. Our skills are different, our professions are varied, but our mission is the same; bring awareness, find new treatments, and support to everyone living with ET. We have strategic partnerships join us and share information through DSF Newsletter, Up to date what’s happening with ET on our website, ET clinical trials information, all social media platforms, and through our ET talks streaming Zoom meeting.
Adaptability Story 30/30 points
Adaptability Story 30/30 points
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
DSF mission to bring awareness, find new treatments, and support to everyone living with ET. We are in the process of collecting more data for ET to bring ET to the forefront. Our objective is to make Essential Tremor a household We are on the cutting edge and with correct resources our vision will be accomplished. Although the disorder is most common in older adults, it can affect individuals of any age including middle-aged or young adults and children. It has been reported during infancy. Our purpose is to help children learn to discuss and be open about their tremors and understand they aren’t alone. DSF funds go to broaden our reach across the United States and the world by expanding our presence through social media, marketing, and advertising. We understand that our strategic plan achievement will bring one voice for ET to resonate and be heard worldwide
• Improving knowledge of Essential Tremor throughout the medical community.
• Inspiring young health professionals to specialize in the care of Essential Tremor.
• Developing a better data system for sharing Essential Tremor information around the world.
• Increasing earlier treatment access for patients to find specialized care from movement disorder doctors.
• Promote DSF Website
• ET Talks Events to discuss living with ET, Zoom, Facebook Live
• Fundraising online & In person events
• Recruit Volunteers & Team Members
• DSF Newsletter/Emails
• Create Videos, Articles
• Millions of Faces of ET events from around the world
• ET online Support Groups
• Newspapers, magazines, TV, radio, merchandise sales
• Distribute Information cards, Brochures, ET Medical Alert Cards & envelopes
• Spread Social Media Platforms, ET Campaigns
• March ET Month, March 16 ET Day of Awareness & Giving
With critical thinking and innovation, we are driving results by informing the world about ET with our social media, ET Talks, and inspiring others to join us on our mission.