Health : Diseases, Disorders, and Disciplines

GBS|CIDP Foundation International

Improving the quality of life for individuals and families affected by GBS, CIDP, MMN, Miller Fisher and their variants.

100.00

375 East Elm Street Suite 101
Conshohocken, PA 19428
tel: (610) 667-0131   Web Site
EIN: 22-2474769

Board Leadership
James Crone
President

CEO
Elizabeth Butler
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 100.00
  Financial 100.00
  Accountability & Transparency 100.00
This rating was published 12/23/2020 and includes data from FY2019, the most recent 990 received at that time.

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Financial

100.00

Accountability & Transparency

100.00

This rating was published 12/23/2020 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
87.6%
  Administrative Expenses 8.6%
  Fundraising Expenses 3.7%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 3.73
  Program Expenses Growth 9.6%
  Liabilities to Assets 9.8%
All data for Financial Performance Metrics calculations was provided by GBS|CIDP Foundation International on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by GBS|CIDP Foundation International on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,697,369
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $439,034
   Related Organizations $0
   Government Grants $0
Total Contributions $2,136,403
   Program Service Revenue $0
Total Primary Revenue $2,136,403
   Other Revenue $236,772
TOTAL REVENUE $2,373,175
   
EXPENSES  
   Program Expenses $2,186,666
   Administrative Expenses $204,360
   Fundraising Expenses $104,713
TOTAL FUNCTIONAL EXPENSES $2,495,739
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-122,564
   
Net Assets $8,363,841

Charts

Compensation % of Expenses Paid to Title
$157,456 6.30% Elizabeth Butler Executive Director

Mission

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

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GBS|CIDP Foundation International (PA) 100.00
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Charity Contact Info

GBS|CIDP Foundation International
375 East Elm Street
Suite 101
Conshohocken, PA 19428
tel: (610) 667-0131
fax: (610) 667-7036
EIN: 22-2474769

Visit Web Site

Board Leadership

James Crone
President

CEO

Elizabeth Butler
Executive Director