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Health : Diseases, Disorders, and Disciplines

Charcot-Marie-Tooth Association

Improving the quality of life for those affected by Charcot-Marie-Tooth

87.18

P.O. Box 105 Glenolden, PA 19036
tel: (800) 606-2682   Web Site
EIN: 22-2480896

Board Leadership
Gilles Bouchard
President

CEO
Gilles Bouchard
Interim CEO

  Score
(out of 100)
Rating
Overall Score & Rating 87.18
  Financial 81.87
  Accountability & Transparency 100.00
This rating was published 02/01/2017 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

81.87

Accountability & Transparency

100.00

This rating was published 02/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
82.8%
  Administrative Expenses 3.2%
  Fundraising Expenses 13.8%
  Fundraising Efficiency $0.21
  Working Capital Ratio (years) 0.35
  Program Expenses Growth 47.4%
  Liabilities to Assets 33.3%
All data for Financial Performance Metrics calculations was provided by Charcot-Marie-Tooth Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Charcot-Marie-Tooth Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Charcot-Marie-Tooth Association (PA) 87.18
Cystic Fibrosis Foundation (MD) 94.63
Restless Legs Syndrome Foundation (TX) 89.27
Hunter's Hope Foundation (NY) 93.80
FSH Society (MA) 98.23

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Founded in 1983, the Charcot-Marie-Tooth Association's (CMTA) goals are patient support, public education, promotion of research and ultimately the treatment and cure of Charcot-Marie-Tooth (CMT). CMT is the most commonly inherited neurological disorder and is found world-wide in all races and ethnic groups. CMT patients slowly lose normal use of their feet/legs and hands/arms as nerves to the extremities degenerate and the muscles in the extremities become weakened because of the loss of stimulation by the affected nerves. Our mission is to generate the resources to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie-Tooth.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,210,555
   Federated Campaigns $0
   Membership Dues $87,150
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,297,705
   Program Service Revenue $618,370
Total Primary Revenue $2,916,075
   Other Revenue $736,019
TOTAL REVENUE $3,652,094
   
EXPENSES  
   Program Expenses $3,299,104
   Administrative Expenses $107,300
   Fundraising Expenses $633,234
TOTAL FUNCTIONAL EXPENSES $4,039,638
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-387,544
   
Net Assets $1,030,170

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Fellowships & Grants $2,001,109 60.7%
Education and Patient Support $178,340 5.4%
Bi-Monthly Newsletter $156,391 4.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 02/01/2017 87.18
2014-12 06/01/2016 90.67
 
CN 2.0
2014-12 11/01/2015 91.94
2013-12 08/01/2014 91.65
2012-12 10/01/2013 87.02
2011-12 09/01/2012 79.81
2011-12 08/01/2012 79.61
2010-12 12/23/2011 63.98
2009-12 09/20/2011 69.94
 
CN 1.0
2009-12 03/01/2011 68.93
2008-12 12/01/2009 92.65
2007-06 05/01/2008 80.35
2006-06 05/01/2007 83.92
2005-06 02/01/2007 79.13

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-2480896
Name in IRS Master File CHARCOT-MARIE-TOOTH ASSOCIATION
NTEE Code G8X
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(125) Giving information or opinion (see also Advocacy)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date June, 1986
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$325,875 8.06% Patrick Livney CEO

Founded in 1983, the Charcot-Marie-Tooth Association's (CMTA) goals are patient support, public education, promotion of research and ultimately the treatment and cure of Charcot-Marie-Tooth (CMT). CMT is the most commonly inherited neurological disorder and is found world-wide in all races and ethnic groups. CMT patients slowly lose normal use of their feet/legs and hands/arms as nerves to the extremities degenerate and the muscles in the extremities become weakened because of the loss of stimulation by the affected nerves. Our mission is to generate the resources to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie-Tooth.

Highly Rated

Charity Name & State Overall Score Overall Rating
Charcot-Marie-Tooth Association (PA) 87.18
Parent Project Muscular Dystrophy (NJ) 91.66
Cystic Fibrosis Foundation (MD) 94.63
SPD Foundation (CO) 86.84
Aplastic Anemia & MDS International Foundation (MD) 96.66

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Charcot-Marie-Tooth Association
P.O. Box 105
Glenolden, PA 19036
tel: (800) 606-2682
fax: (610) 499-9267
EIN: 22-2480896

Visit Web Site

Board Leadership

Gilles Bouchard
President

CEO

Gilles Bouchard
Interim CEO

[ X ]

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