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Health : Diseases, Disorders, and Disciplines
Board Leadership
Gilles Bouchard
President
CEO
Amy Gray
CEO
|
The Charcot-Marie-Tooth Association (CMTA) was founded in 1983 to generate the resources to find a cure for CMT, a genetic neurological disorder that affects some 2.8 million people of all races and ethnic groups worldwide. The disease kills the long nerves to the feet and hands. As the nerves to the extremities weaken and die, the muscles around them atrophy and patients lose normal use of their feet, legs, hands and arms. In fulfillment of its mission, the CMTA funds a multifaceted research program called the Strategy to Accelerate Research, which brings together the world's leading CMT researchers to collaborate with the National Institutes of Health, universities, and pharmaceutical, biotechnology, and research service companies in partnerships that are driving progress toward treatments and cures for CMT. While the CMTA searches for a cure, it also creates awareness about this orphan disease and works to improve the quality of life of all those affected by it.
The Charcot-Marie-Tooth Association (CMTA) was founded in 1983 to generate the resources to find a cure for CMT, a genetic neurological disorder that affects some 2.8 million people of all races and ethnic groups worldwide. The disease kills the long nerves to the feet and hands. As the nerves to the extremities weaken and die, the muscles around them atrophy and patients lose normal use of their feet, legs, hands and arms. In fulfillment of its mission, the CMTA funds a multifaceted research program called the Strategy to Accelerate Research, which brings together the world's leading CMT researchers to collaborate with the National Institutes of Health, universities, and pharmaceutical, biotechnology, and research service companies in partnerships that are driving progress toward treatments and cures for CMT. While the CMTA searches for a cure, it also creates awareness about this orphan disease and works to improve the quality of life of all those affected by it.
99.31
100.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
87.7% | |
Administrative Expenses | 5.4% | |
Fundraising Expenses | 6.7% | |
Fundraising Efficiency | $0.05 | |
Working Capital Ratio (years) | 1.33 | |
Program Expenses Growth | 8.3% | |
Liabilities to Assets | < 0.1% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Charcot-Marie-Tooth Association (PA) | 99.51 | |
FSHD Society (MA) | 91.14 | |
Cure SMA (IL) | 87.11 | |
Osteogenesis Imperfecta Foundation (MD) | 88.11 | |
Cystic Fibrosis Foundation (MD) | 98.21 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $4,044,724 |
Federated Campaigns | $0 |
Membership Dues | $0 |
Fundraising Events | $550,802 |
Related Organizations | $0 |
Government Grants | $100,000 |
Total Contributions | $4,695,526 |
Program Service Revenue | $0 |
Total Primary Revenue | $4,695,526 |
Other Revenue | $58,691 |
TOTAL REVENUE | $4,754,217 |
EXPENSES | |
Program Expenses | $3,619,020 |
Administrative Expenses | $219,460 |
Fundraising Expenses | $228,269 |
TOTAL FUNCTIONAL EXPENSES | $4,066,749 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $687,468 |
Net Assets | $4,348,541 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Research Fellowships & Grants | $2,741,010 | 75.7% |
Education and Patient Support | $878,010 | 24.3% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2019-12 | 01/08/2021 | 99.51 | |||||||
2018-12 | 12/01/2019 | 95.88 | |||||||
2017-12 | 12/21/2018 | 87.39 | |||||||
2016-12 | 03/01/2018 | 85.49 | |||||||
2015-12 | 02/01/2017 | 87.18 | |||||||
2014-12 | 06/01/2016 | 90.67 | |||||||
CN 2.0 | |||||||||
2014-12 | 11/01/2015 | 91.94 | |||||||
2013-12 | 08/01/2014 | 91.65 | |||||||
2012-12 | 10/01/2013 | 87.02 | |||||||
2011-12 | 09/01/2012 | 79.81 | |||||||
2011-12 | 08/01/2012 | 79.61 | |||||||
2010-12 | 12/23/2011 | 63.98 | |||||||
2009-12 | 09/20/2011 | 69.94 | |||||||
CN 1.0 | |||||||||
2009-12 | 03/01/2011 | 68.93 | |||||||
2008-12 | 12/01/2009 | 92.65 | |||||||
2007-06 | 05/01/2008 | 80.35 | |||||||
2006-06 | 05/01/2007 | 83.92 | |||||||
2005-06 | 02/01/2007 | 79.13 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 22-2480896 |
Name in IRS Master File | CHARCOT-MARIE-TOOTH ASSOCIATION |
NTEE Code | G8X |
NTEE Classification | [Not Provided by IRS] |
NTEE Type | [Not Provided by IRS] |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (161) Scientific research (diseases) (125) Giving information or opinion (see also Advocacy) |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). |
Group Name | [Not Applicable] |
Ruling Date | June, 1986 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | December |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$258,000 | 6.34% | Amy Gray | Chief Executive Officer |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Charcot-Marie-Tooth Association (PA) | 99.51 | |
Osteogenesis Imperfecta Foundation (MD) | 88.11 | |
Cystic Fibrosis Foundation (MD) | 98.21 | |
FSHD Society (MA) | 91.14 | |
American Brain Foundation (MN) | 89.65 |
This charity has an official representative registered with Charity Navigator.
Charcot-Marie-Tooth Association
P.O. Box 105
Glenolden,
PA 19036
tel: (800) 606-2682
fax: (610) 499-9267
EIN: 22-2480896
Gilles Bouchard
President
Amy Gray
CEO
Charity Navigator
299 Market Street Suite 250
Saddle Brook, NJ 07663
EIN: 13-4148824
BRIDGE ID: 3108588923