Health : Diseases, Disorders, and Disciplines

National Fragile X Foundation

Forward

four stars

94.84

2100 M Street, NW Suite 170, Box 302
Washington, DC 20037
tel: (800) 688-8765   Web Site
EIN: 84-0960471

Board Leadership
Jay Souder
President

CEO
Linda Sorensen
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 94.84 four stars
  Financial 92.71 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 10/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.

Impact Information

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This impact information is current as of January 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

92.71

Accountability & Transparency

four stars

100.00

This rating was published 10/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.0%
  Administrative Expenses 16.2%
  Fundraising Expenses 6.6%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 0.68
  Program Expenses Growth 12.0%
  Liabilities to Assets 9.0%
All data for Financial Performance Metrics calculations was provided by National Fragile X Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National Fragile X Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,236,042
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $25,325
   Related Organizations $0
   Government Grants $0
Total Contributions $1,261,367
   Program Service Revenue $513,659
Total Primary Revenue $1,775,026
   Other Revenue $5,454
TOTAL REVENUE $1,780,480
   
EXPENSES  
   Program Expenses $1,393,236
   Administrative Expenses $197,327
   Fundraising Expenses $150,823
TOTAL FUNCTIONAL EXPENSES $1,741,386
   
Payments to Affiliates $0
Excess (or Deficit) for the year $39,094
   
Net Assets $1,131,403

Charts

Compensation % of Expenses Paid to Title
$165,480 9.50% Linda Sorensen Executive Director

Mission

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Fragile X Foundation (DC) 94.84 four stars
Cerebral Palsy (WI) 85.83 three stars
Alpha-1 Foundation (FL) 93.26 four stars
Angelman Syndrome Foundation (IL) 90.55 four stars
Fanconi Anemia Research Fund (OR) 93.21 four stars

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Charity Contact Info

National Fragile X Foundation
2100 M Street, NW
Suite 170, Box 302
Washington, DC 20037
tel: (800) 688-8765
fax: (925) 938-9315
EIN: 84-0960471

Visit Web Site

Board Leadership

Jay Souder
President

CEO

Linda Sorensen
Executive Director