The Pulmonary Fibrosis Foundation is focused on our mission to act as the trusted resource for all who are affected by this disease. We aim to take an active role in bringing people, programs, and resources together to spread awareness and ultimately find a cure.

Our expert Medical Advisory Board and the biennial PFF Summit allow us to maintain an ongoing dialogue with physicians, researchers, industry representatives, and the patient community. This creates a collaborative environment that will help us achieve many of our goals. Our peer-reviewed research program supports projects that improve the understanding of pulmonary fibrosis and will lead to successful therapies. We have developed significant relationships with industry partners and upheld our position as the honest broker to inform those affected by pulmonary fibrosis of important scientific breakthroughs.

The Pulmonary Fibrosis Foundation is focused on our mission to act as the trusted resource for all who are affected by this disease. Our community programs include: PFF Care Center Network PFF Patient Registry PFF Patient Communication Center PFF Ambassador Program An international network of support groups The PFF Summit Comprehensive disease education materials

The Pulmonary Fibrosis Foundation (PFF) is leading the charge to find a cure for pulmonary fibrosis, and the first step is to increase our knowledge of PF, a family of diseases that impacts the lives of so many. To achieve this, the Foundation sought input on unmet needs from PF clinicians, scientific leaders, and the patient community. It became clear that the absence of a large nationwide patient registry and biorepository was keeping researchers from taking critical steps toward a cure. Research is the pathway to a cure for PF. The Registry’s combination of data from over 2,000 patients, including those with less-studied forms of PF, will generate an unparalleled resource for future research into treatments and provide data for improving and reassessing evidence-based care guidelines. All data included in the PFF Patient Registry is currently being used to foster research to better understand PF, drive toward a cure, and improve the lives of those living with PF. There are currently 12 published abstracts/manuscripts that used PFF Registry data, and 16 more are underway.

We hosted our 5th PFF Summit in 2019. Nearly 1,000 patients, caretakers, physicians, researchers, and industry partners gathered in San Antonio for our largest Summit to date. Our Care Center Network has grown to 68 sites nationwide, and we will continue to expand. Our Support Group Network now numbers over 150 across the globe and continues to grow. The PFF Patient Registry was fully enrolled on-time and on-budget, and we plan to introduce the next phase of the Registry in 2020, the PFF Registry 2. 0. Registry 2. 0 will greatly increase the number of subjects in the study, will be more efficient in data collection, and will increase utilization from researchers. Registry 2. 0 will be an unmatched resource for future research that will lead us down a path for a cure.