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Health : Diseases, Disorders, and Disciplines

Pulmonary Fibrosis Foundation

We imagine a world without Pulmonary Fibrosis

four stars

92.65

230 East Ohio Street Suite 304
Chicago, IL 60607
tel: (888) 733-6741   Web Site
EIN: 84-1558631

Board Leadership
Michael C. Henderson
Chair

CEO
Daniel M. Rose
Chief Executive Officer

 
 
  Score
(out of 100)		 Rating
Overall Score & Rating 92.65 four stars
  Financial 89.61 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 02/01/2017 and includes data from FY2014, the most recent 990 received at that time.
Why isn't this based on more recent data?

Learn more about how we calculate the overall score and rating.

Financial

three stars

89.61

Accountability & Transparency

four stars

100.00

This rating was published 02/01/2017 and includes data from FY2014, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 74.9%
  Administrative Expenses 11.8%
  Fundraising Expenses 13.1%
  Fundraising Efficiency $0.11
  Working Capital Ratio (years) 1.38
  Program Expenses Growth 24.9%
  Liabilities to Assets 11.5%
All data for Financial Performance Metrics calculations was provided by Pulmonary Fibrosis Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Pulmonary Fibrosis Foundation on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Pulmonary Fibrosis Foundation (IL) 92.65 four stars
Lung Cancer Alliance (DC) 90.91 four stars
The LAM Foundation (OH) 95.02 four stars
American Lung Association of the Upper Midwest (WI) 94.28 four stars
American Lung Association of the Southwest (AZ) 90.66 four stars

Compare These Charities (Highly Rated)

Founded in 2000 by brothers Albert Rose and Michael Rosenzweig, PhD, the Pulmonary Fibrosis Foundation is dedicated to identifying effective PF treatments and assisting those living with the disease. The mission of the Pulmonary Fibrosis Foundation is to serve as the trusted resource for the pulmonary fibrosis community by raising awareness and providing disease education. By actively engaging the PF community, the Pulmonary Fibrosis Foundation has developed essential programs available to those living and working with pulmonary fibrosis. We are proud to serve as the leading patient advocacy organization of pulmonary fibrosis and are committed to funding research to find effective therapies and, hopefully one day, a cure.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $5,256,311
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $86,988
   Related Organizations $0
   Government Grants $0
Total Contributions $5,343,299
   Program Service Revenue $0
Total Primary Revenue $5,343,299
   Other Revenue $30,138
TOTAL REVENUE $5,373,437
   
EXPENSES  
   Program Expenses $3,197,086
   Administrative Expenses $472,627
   Fundraising Expenses $600,564
TOTAL FUNCTIONAL EXPENSES $4,270,277
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,103,160
   
Net Assets $4,598,560

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient Registry $698,051 21.8%
Care Center Network $570,962 17.8%
Research $434,186 13.6%

Ratings History
Pulmonary Fibrosis Foundation has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2014-12 02/01/2017 92.65 four stars
2014-12 06/01/2016 92.12 four stars
 
CN 2.0
2014-12 02/01/2016 93.97 four stars
2013-12 08/01/2015 94.07 four stars
2012-12 07/01/2014 92.63 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 84-1558631
Name in IRS Master File PULMONARY FIBROSIS FOUNDATION
NTEE Code G45
NTEE Classification Lung Disease
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date November, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • June, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
Not compensated -- Daniel Rose Chief Executive Officer
Other Salaries of Note
$195,091 4.56% Patti Tuomey Tuomey Chief Operating Officer
$145,492 3.40% Scott Staszak Chief Financial Officer
$134,795 3.15% Gail Fairhall Senior Vice President
$101,519 2.37% Alma Kervitsky Vice President of Patient Relations

Founded in 2000 by brothers Albert Rose and Michael Rosenzweig, PhD, the Pulmonary Fibrosis Foundation is dedicated to identifying effective PF treatments and assisting those living with the disease. The mission of the Pulmonary Fibrosis Foundation is to serve as the trusted resource for the pulmonary fibrosis community by raising awareness and providing disease education. By actively engaging the PF community, the Pulmonary Fibrosis Foundation has developed essential programs available to those living and working with pulmonary fibrosis. We are proud to serve as the leading patient advocacy organization of pulmonary fibrosis and are committed to funding research to find effective therapies and, hopefully one day, a cure.

Highly Rated

Charity Name & State Overall Score Overall Rating
Pulmonary Fibrosis Foundation (IL) 92.65 four stars
Lung Cancer Alliance (DC) 90.91 four stars
American Lung Association in California (CA) 90.55 four stars
American Lung Association of the Northeast (CT) 92.61 four stars
American Lung Association of the Upper Midwest (WI) 94.28 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Pulmonary Fibrosis Foundation
230 East Ohio Street
Suite 304
Chicago, IL 60607
tel: (888) 733-6741
fax: (866) 587-9158
EIN: 84-1558631

Visit Web Site

Board Leadership

Michael C. Henderson
Chair

CEO

Daniel M. Rose
Chief Executive Officer

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