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Health : Medical Research (Grantmaking)

International Waldenstrom's Macroglobulinemia Foundation

Supporting research leading to better treatments and a cure

four stars

95.47

6144 Clark Center Avenue Sarasota, FL 34238
tel: (941) 927-4963   Web Site
EIN: 54-1784426

Board Leadership
Peter DeNardis
Chair of the Board

CEO
Newton Guerin
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 95.47 four stars
  Financial 93.60 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 07/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The International Waldenstrom's Macroglobulinemia Foundation's mission is to support and educate everyone affected by Waldenstrom's Macroglobulinemia while advancing the search for a cure.

IWMF's vision is a world without WM (Waldenstrom's Macroglobulinemia)..

The International Waldenstrom's Macroglobulinemia Foundation's mission is to support and educate everyone affected by Waldenstrom's Macroglobulinemia while advancing the search for a cure.

IWMF's vision is a world without WM (Waldenstrom's Macroglobulinemia)..

Financial

four stars

93.60

Accountability & Transparency

four stars

100.00

This rating was published 07/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
80.1%
  Administrative Expenses 6.7%
  Fundraising Expenses 13.0%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 1.38
  Program Expenses Growth 12.4%
  Liabilities to Assets 1.9%
All data for Financial Performance Metrics calculations was provided by International Waldenstrom's Macroglobulinemia Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by International Waldenstrom's Macroglobulinemia Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Waldenstrom's Macroglobulinemia Foundation (FL) 95.47 four stars
Mesothelioma Applied Research Foundation (DC) 88.48 three stars
Samuel Waxman Cancer Research Foundation (NY) 89.66 three stars
The Lustgarten Foundation for Pancreatic Cancer Research (NY) 100.00 four stars
Israel Cancer Association USA (FL) 92.24 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,754,524
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,754,524
   Program Service Revenue $201,598
Total Primary Revenue $2,956,122
   Other Revenue $4,559
TOTAL REVENUE $2,960,681
   
EXPENSES  
   Program Expenses $1,978,189
   Administrative Expenses $235,286
   Fundraising Expenses $321,188
TOTAL FUNCTIONAL EXPENSES $2,534,663
   
Payments to Affiliates $0
Excess (or Deficit) for the year $426,018
   
Net Assets $3,756,706

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Providing Research Grants $1,465,234 74.1%
Educational Forums $203,055 10.3%
Publications for Patients $51,814 2.6%

Ratings History
International Waldenstrom's Macroglobulinemia Foundation has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 07/01/2021 95.47 four stars
2018-12 05/01/2020 95.59 four stars
2017-12 05/01/2019 95.29 four stars
2016-12 09/01/2018 94.58 four stars
2016-12 08/01/2018 89.93 three stars
2015-12 12/01/2017 82.21 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 54-1784426
Name in IRS Master File THE INTERNATIONAL WALDENSTROMS MACROGLOBULINEMIA FOUNDATION INC
NTEE Code G80
NTEE Classification Specifically Named Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date April, 2002
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$43,215 1.70% Rex Smith CEO
Other Salaries of Note
$102,551 4.04% Jason Watkins Individual Giving Director

Highly Rated

Charity Name & State Overall Score Overall Rating
International Waldenstrom's Macroglobulinemia Foundation (FL) 95.47 four stars
Samuel Waxman Cancer Research Foundation (NY) 89.66 three stars
Dana-Farber Cancer Institute (MA) 93.91 four stars
The Multiple Myeloma Research Foundation (CT) 94.97 four stars
Swim Across America (NC) 95.47 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

International Waldenstrom's Macroglobulinemia Foundation
6144 Clark Center Avenue
Sarasota, FL 34238
tel: (941) 927-4963
fax: (941) 927-4467
EIN: 54-1784426

Visit Web Site

Board Leadership

Peter DeNardis
Chair of the Board

CEO

Newton Guerin
President & CEO

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