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Health : Medical Research

International Waldenstrom's Macroglobulinemia Foundation

Supporting research leading to better treatments and a cure

four stars

94.58

6144 Clark Center Avenue Sarasota, FL 34238
tel: (941) 927-4963   Web Site
EIN: 54-1784426

Board Leadership
Carl Harrington
President

CEO
Jennifer Silva
Operations Manager

 
 
  Score
(out of 100)
Rating
Overall Score & Rating 94.58 four stars
  Financial 92.34 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 09/01/2018 and includes data from FY2016, the most recent 990 received at that time.

The International Waldenstrom's Macroglobulinemia Foundation's mission is to offer mutual support and encouragement to the Waldenstrom's macroglobulinemia community and others with an interest in the disease, provide information and educational programs that address patients' concerns, and promote and support research leading to better treatments and ultimately, a cure. IWMF's vision is to support everyone affected by Waldenstrom's macroglobulinemia while advancing the search for a cure.

The International Waldenstrom's Macroglobulinemia Foundation's mission is to offer mutual support and encouragement to the Waldenstrom's macroglobulinemia community and others with an interest in the disease, provide information and educational programs that address patients' concerns, and promote and support research leading to better treatments and ultimately, a cure. IWMF's vision is to support everyone affected by Waldenstrom's macroglobulinemia while advancing the search for a cure.

Financial

four stars

92.34

Accountability & Transparency

four stars

100.00

This rating was published 09/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
75.7%
  Administrative Expenses 10.7%
  Fundraising Expenses 13.4%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 2.32
  Program Expenses Growth 19.4%
  Liabilities to Assets 2.9%
All data for Financial Performance Metrics calculations was provided by International Waldenstrom's Macroglobulinemia Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by International Waldenstrom's Macroglobulinemia Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Waldenstrom's Macroglobulinemia Foundation (FL) 94.58 four stars
Cancer Wellness Center (IL) 98.70 four stars
Ovarian Cancer National Alliance (DC) 90.06 four stars
Horizons Community Solutions (GA) 91.45 four stars
Leukemia Research Foundation (IL) 86.54 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,484,470
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,484,470
   Program Service Revenue $158,054
Total Primary Revenue $2,642,524
   Other Revenue $8,546
TOTAL REVENUE $2,651,070
   
EXPENSES  
   Program Expenses $1,393,352
   Administrative Expenses $121,174
   Fundraising Expenses $240,400
TOTAL FUNCTIONAL EXPENSES $1,754,926
   
Payments to Affiliates $0
Excess (or Deficit) for the year $896,144
   
Net Assets $3,658,260

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Providing Research Grants $1,036,568 74.4%
Educational Forums $223,336 16.0%
Conferences $31,901 2.3%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 09/01/2018 94.58 four stars
2016-12 08/01/2018 89.93 three stars
2015-12 12/01/2017 82.21 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 54-1784426
Name in IRS Master File THE INTERNATIONAL WALDENSTROMS MACROGLOBULINEMIA FOUNDATION INC
NTEE Code G80
NTEE Classification Specifically Named Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date April, 2002
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
Not compensated -- Carl Harrington CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
International Waldenstrom's Macroglobulinemia Foundation (FL) 94.58 four stars
Pancreatic Cancer Action Network (CA) 93.02 four stars
National Comprehensive Cancer Network (PA) 87.52 three stars
Cancer Wellness Center (IL) 98.70 four stars
Skin Cancer Foundation (NY) 89.48 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

International Waldenstrom's Macroglobulinemia Foundation
6144 Clark Center Avenue
Sarasota, FL 34238
tel: (941) 927-4963
fax: (941) 927-4467
EIN: 54-1784426

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Board Leadership

Carl Harrington
President

CEO

Jennifer Silva
Operations Manager

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