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Health : Diseases, Disorders, and Disciplines

Sjögren's Syndrome Foundation

Your credible Sjögren's syndrome resource

three stars

89.24

6707 Democracy Boulevard Suite 325
Bethesda, MD 20817
tel: (800) 475-6473   Web Site
EIN: 11-2779073

Board Leadership
Janet E. Church
Chair

CEO
Steven Taylor
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 89.24 three stars
  Financial 85.32 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 06/01/2020 and includes data from FY2019, the most recent 990 received at that time.

Founded in 1983, the Sjögren's Syndrome Foundation (SSF) provides patients with practical information and coping strategies that minimize the effects of Sjögren's syndrome. In addition, the Foundation is the clearinghouse for medical information and is the recognized national advocate for Sjögren's syndrome. The Foundation's mission is to: educate patients and their families about Sjögren's syndrome; increase public and professional awareness of Sjögren's syndrome; and to encourage research into new treatments and a cure. Sjögren's syndrome is a chronic autoimmune disease in which people's white blood cells attack their moisture-producing glands. Today, as many as four million Americans are living with this disease.

Founded in 1983, the Sjögren's Syndrome Foundation (SSF) provides patients with practical information and coping strategies that minimize the effects of Sjögren's syndrome. In addition, the Foundation is the clearinghouse for medical information and is the recognized national advocate for Sjögren's syndrome. The Foundation's mission is to: educate patients and their families about Sjögren's syndrome; increase public and professional awareness of Sjögren's syndrome; and to encourage research into new treatments and a cure. Sjögren's syndrome is a chronic autoimmune disease in which people's white blood cells attack their moisture-producing glands. Today, as many as four million Americans are living with this disease.

Impact Information

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This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

85.32

Accountability & Transparency

four stars

96.00

This rating was published 06/01/2020 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
84.9%
  Administrative Expenses 4.6%
  Fundraising Expenses 10.4%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 0.63
  Program Expenses Growth 4.4%
  Liabilities to Assets 28.3%
All data for Financial Performance Metrics calculations was provided by Sjögren's Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Sjögren's Syndrome Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Sjögren's Syndrome Foundation (MD) 89.24 three stars
Dan Marino Foundation (FL) 93.39 four stars
California Dental Association Foundation (CA) 87.21 three stars
Organization for Autism Research (VA) 94.75 four stars
Children and Adults with Attention-Deficit/Hyperactivity Disorder (MD) 88.78 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,751,778
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $284,042
   Related Organizations $0
   Government Grants $0
Total Contributions $3,035,820
   Program Service Revenue $385,495
Total Primary Revenue $3,421,315
   Other Revenue $-4,926
TOTAL REVENUE $3,416,389
   
EXPENSES  
   Program Expenses $2,024,561
   Administrative Expenses $107,548
   Fundraising Expenses $210,174
TOTAL FUNCTIONAL EXPENSES $2,342,283
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,074,106
   
Net Assets $1,440,855

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Awareness Activities $554,328 27.4%
Research Grants $458,723 22.7%
Newsletter $192,503 9.5%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-06 06/01/2020 89.24 three stars
2018-06 07/01/2019 84.49 three stars
2017-06 07/01/2018 84.78 three stars
2016-06 02/01/2018 83.38 three stars
2016-06 07/01/2017 82.67 three stars
2015-06 06/01/2016 79.94 two stars
 
CN 2.0
2014-06 10/01/2015 76.82 two stars
2013-06 08/01/2014 74.84 two stars
2012-06 07/01/2013 77.26 two stars
2011-06 05/01/2012 86.19 three stars
2010-06 09/20/2011 85.83 three stars
 
CN 1.0
2010-06 07/01/2011 76.02 two stars
2009-06 11/24/2010 88.66 three stars
2008-06 05/01/2009 88.75 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 11-2779073
Name in IRS Master File SJOGRENS SYNDROME FOUNDATION INC
NTEE Code G40
NTEE Classification Diseases of Specific Organs
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (179) Other health services
(994) Described in section 170(b)1)(a)(vi) of the Code
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1986
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$329,038 14.04% Steven Taylor Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Sjögren's Syndrome Foundation (MD) 89.24 three stars
National Alopecia Areata Foundation (CA) 91.48 four stars
American Liver Foundation (NY) 86.86 three stars
National Foundation for Infectious Diseases (MD) 92.60 four stars
Cystic Fibrosis Research, Inc. (CA) 96.58 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Sjögren's Syndrome Foundation
6707 Democracy Boulevard
Suite 325
Bethesda, MD 20817
tel: (800) 475-6473
fax: (301) 530-4415
EIN: 11-2779073

Visit Web Site

Board Leadership

Janet E. Church
Chair

CEO

Steven Taylor
Chief Executive Officer

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