Health : Medical Research (Grantmaking/Grants Payable)

Cystinosis Research Foundation

CRF is the largest provider of grants for cystinosis research in the world, funding over 190 studies in 12 countries.

four stars

91.69

19200 Von Karman Avenue Suite 920
Irvine, CA 92612
tel: (949) 223-7610   Web Site
EIN: 32-0067668

Board Leadership
Nancy J. Stack
Chair

CEO
Nancy J. Stack
President

  Score
(out of 100)
Rating
Overall Score & Rating 91.69 four stars
  Financial 88.25 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 12/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The mission of the Cystinosis Research Foundation is to support bench, clinical and translational research for better treatments and a cure for cystinosis. Through our aggressively funded research agenda, the Cystinosis Research Foundation issues grants for bench and clinical research studies bi-annually in order to accelerate research progress and ensure that cystinosis research is on-going and focused on novel treatments and a cure. The Cystinosis Research Foundation is dedicated to educating the public and the medical community about cystinosis to ensure early diagnosis and proper treatment. CRF is the largest private fund provider of cystinosis research grants in the world. CRF has raised over $54.0 million for cystinosis research. It has awarded 190 multi-year grants and is funding researchers in 12 countries.

The mission of the Cystinosis Research Foundation is to support bench, clinical and translational research for better treatments and a cure for cystinosis. Through our aggressively funded research agenda, the Cystinosis Research Foundation issues grants for bench and clinical research studies bi-annually in order to accelerate research progress and ensure that cystinosis research is on-going and focused on novel treatments and a cure. The Cystinosis Research Foundation is dedicated to educating the public and the medical community about cystinosis to ensure early diagnosis and proper treatment. CRF is the largest private fund provider of cystinosis research grants in the world. CRF has raised over $54.0 million for cystinosis research. It has awarded 190 multi-year grants and is funding researchers in 12 countries.

Impact Information

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Reported Results
Total in 2019
Number of research studies funded
10
This impact information is current as of August 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

88.25

Accountability & Transparency

four stars

100.00

This rating was published 12/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
78.9%
  Administrative Expenses 4.3%
  Fundraising Expenses 16.6%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 2.02
  Program Expenses Growth 10.3%
  Liabilities to Assets 25.0%
All data for Financial Performance Metrics calculations was provided by Cystinosis Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Cystinosis Research Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,459,860
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $3,109,295
   Related Organizations $0
   Government Grants $0
Total Contributions $4,569,155
   Program Service Revenue $0
Total Primary Revenue $4,569,155
   Other Revenue $86,549
TOTAL REVENUE $4,655,704
   
EXPENSES  
   Program Expenses $3,472,647
   Administrative Expenses $180,751
   Fundraising Expenses $616,935
TOTAL FUNCTIONAL EXPENSES $4,270,333
   
Payments to Affiliates $0
Excess (or Deficit) for the year $385,371
   
Net Assets $6,832,501

Charts

Compensation % of Expenses Paid to Title
Not compensated -- Nancy Stack Chair

Mission

The mission of the Cystinosis Research Foundation is to support bench, clinical and translational research for better treatments and a cure for cystinosis. Through our aggressively funded research agenda, the Cystinosis Research Foundation issues grants for bench and clinical research studies bi-annually in order to accelerate research progress and ensure that cystinosis research is on-going and focused on novel treatments and a cure. The Cystinosis Research Foundation is dedicated to educating the public and the medical community about cystinosis to ensure early diagnosis and proper treatment. CRF is the largest private fund provider of cystinosis research grants in the world. CRF has raised over $54.0 million for cystinosis research. It has awarded 190 multi-year grants and is funding researchers in 12 countries.

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Charity Contact Info

Cystinosis Research Foundation
19200 Von Karman Avenue
Suite 920
Irvine, CA 92612
tel: (949) 223-7610
EIN: 32-0067668

Visit Web Site

Board Leadership

Nancy J. Stack
Chair

CEO

Nancy J. Stack
President