Health : Diseases, Disorders, and Disciplines

Cure SMA

Make today a breakthrough

three stars

87.11

925 Busse Road Elk Grove Village, IL 60007
tel: (800) 886-1762   Web Site
EIN: 36-3320440

Board Leadership
Richard Rubenstein
Chair

CEO
Kenneth Hobby
President

  Score
(out of 100)
Rating
Overall Score & Rating 87.11 three stars
  Financial 81.78 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 07/01/2020 and includes data from FY2019, the most recent 990 received at that time.

Founded in 1984, Cure SMA leads the way to a world without spinal muscular atrophy, the number one genetic cause of death for infants. We fund and direct comprehensive research that drives breakthroughs in treatment and care, and we provide families the support they need for today. Our commitment to a treatment and cure is not just about seeking solutions—it's also about creating them. We're working with some of today's sharpest minds to advance a diversity of approaches and champion the most promising discoveries and methods.

Founded in 1984, Cure SMA leads the way to a world without spinal muscular atrophy, the number one genetic cause of death for infants. We fund and direct comprehensive research that drives breakthroughs in treatment and care, and we provide families the support they need for today. Our commitment to a treatment and cure is not just about seeking solutions—it's also about creating them. We're working with some of today's sharpest minds to advance a diversity of approaches and champion the most promising discoveries and methods.

Impact Information

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This impact information is current as of August 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

81.78

Accountability & Transparency

four stars

100.00

This rating was published 07/01/2020 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
82.5%
  Administrative Expenses 6.4%
  Fundraising Expenses 10.9%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.37
  Program Expenses Growth 36.0%
  Liabilities to Assets 50.8%
All data for Financial Performance Metrics calculations was provided by Cure SMA on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Cure SMA on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $8,454,775
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $852,437
   Related Organizations $0
   Government Grants $0
Total Contributions $9,307,212
   Program Service Revenue $2,007,413
Total Primary Revenue $11,314,625
   Other Revenue $3,004,362
TOTAL REVENUE $14,318,987
   
EXPENSES  
   Program Expenses $11,696,028
   Administrative Expenses $1,003,494
   Fundraising Expenses $1,422,300
TOTAL FUNCTIONAL EXPENSES $14,121,822
   
Payments to Affiliates $0
Excess (or Deficit) for the year $197,165
   
Net Assets $5,104,806

Charts

Compensation % of Expenses Paid to Title
$231,320 1.63% Kenneth Hobby President

Mission

Founded in 1984, Cure SMA leads the way to a world without spinal muscular atrophy, the number one genetic cause of death for infants. We fund and direct comprehensive research that drives breakthroughs in treatment and care, and we provide families the support they need for today. Our commitment to a treatment and cure is not just about seeking solutions—it's also about creating them. We're working with some of today's sharpest minds to advance a diversity of approaches and champion the most promising discoveries and methods.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cure SMA (IL) 87.11 three stars
Epilepsy Foundation of Minnesota (MN) 89.56 three stars
Parent Project Muscular Dystrophy (NJ) 90.04 four stars
Cystic Fibrosis Foundation (MD) 98.21 four stars
Osteogenesis Imperfecta Foundation (MD) 88.11 three stars

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Charity Contact Info

Cure SMA
925 Busse Road
Elk Grove Village, IL 60007
tel: (800) 886-1762
fax: (847) 367-7623
EIN: 36-3320440

Visit Web Site

Board Leadership

Richard Rubenstein
Chair

CEO

Kenneth Hobby
President