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Health : Diseases, Disorders, and Disciplines

The ALS Association - DC/MD/VA Chapter

Create a world without ALS

two stars

79.61

30 West Gude Drive Suite 150
Rockville, MD 20850
tel: (301) 978-9855   Web Site
EIN: 52-1749047

Board Leadership
Robert D. Roseman
President

CEO
Lynn Aaronson
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 79.61 two stars
  Financial 75.38 two stars
  Accountability & Transparency 85.00 three stars
This rating was published 03/01/2021 and includes data from FY2020, the most recent 990 received at that time.

Since 1985, through our Translational Research Advancing Therapies for ALS (TREAT ALS™) program, The ALS Association has funded more than $99 million in research and clinical management projects. This unrelenting focus has resulted in some of the greatest ALS research discoveries to date. The ALS Association is leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

Since 1985, through our Translational Research Advancing Therapies for ALS (TREAT ALS™) program, The ALS Association has funded more than $99 million in research and clinical management projects. This unrelenting focus has resulted in some of the greatest ALS research discoveries to date. The ALS Association is leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

Financial

two stars

75.38

Accountability & Transparency

three stars

85.00

This rating was published 03/01/2021 and includes data from FY2020, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.6%
  Administrative Expenses 7.1%
  Fundraising Expenses 15.2%
  Fundraising Efficiency $0.15
  Working Capital Ratio (years) 0.50
  Program Expenses Growth -2.5%
  Liabilities to Assets 18.9%
All data for Financial Performance Metrics calculations was provided by The ALS Association - DC/MD/VA Chapter on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The ALS Association - DC/MD/VA Chapter on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association - DC/MD/VA Chapter (MD) 79.61 two stars
The ALS Association, National Office (VA) 92.23 four stars
The ALS Association Georgia Chapter (GA) 93.13 four stars
Les Turner ALS Foundation (IL) 96.46 four stars
The ALS Association, Greater Philadelphia Chapter (PA) 88.53 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,036,961
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,430,086
   Related Organizations $0
   Government Grants $0
Total Contributions $2,467,047
   Program Service Revenue $0
Total Primary Revenue $2,467,047
   Other Revenue $11,807
TOTAL REVENUE $2,478,854
   
EXPENSES  
   Program Expenses $2,071,530
   Administrative Expenses $271,143
   Fundraising Expenses $402,772
TOTAL FUNCTIONAL EXPENSES $2,745,445
   
Payments to Affiliates $299,269
Excess (or Deficit) for the year $-266,591
   
Net Assets $1,383,326

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient Services $1,698,655 82.0%
Supporting Worldwide Research $188,509 9.1%
Public Education and Awareness $184,366 8.9%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2020-01 03/01/2021 79.61 two stars
2019-01 03/01/2020 82.11 three stars
2018-01 06/01/2019 84.24 three stars
2017-01 05/01/2018 85.47 three stars
2016-01 05/01/2017 84.46 three stars
2015-01 06/01/2016 81.78 three stars
 
CN 2.0
2015-01 04/01/2016 80.24 three stars
2014-01 04/01/2015 87.79 three stars
2014-01 03/01/2015 84.85 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1749047
Name in IRS Master File AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Subordinate - the organization is a subordinate in a group ruling.
Group Name AMYOTROPHIC LATERAL SCLEROSIS ASSN
Ruling Date July, 1990
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End January
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • January, 2019
  • January, 2018
  • January, 2017
  • January, 2016
  • January, 2015
Compensation % of Expenses Paid to Title
$127,281 4.63% Lynn Aaronson Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association - DC/MD/VA Chapter (MD) 79.61 two stars
The ALS Association Georgia Chapter (GA) 93.13 four stars
The ALS Association Greater New York Chapter (NY) 96.66 four stars
ALS Association Minnesota/North Dakota/South Dakota Chapter (MN) 86.55 three stars
ALS Therapy Development Institute (MA) 92.10 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The ALS Association - DC/MD/VA Chapter
30 West Gude Drive
Suite 150
Rockville, MD 20850
tel: (301) 978-9855
EIN: 52-1749047

Visit Web Site

Board Leadership

Robert D. Roseman
President

CEO

Lynn Aaronson
Executive Director

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