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Health : Diseases, Disorders, and Disciplines

The ALS Association - DC/MD/VA Chapter

Create a world without ALS

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Impact Information is available from our partner, GuideStar

three stars

84.24

30 W. Gude Drive Suite 150
Rockville, MD 20850
tel: (301) 978-9855   Web Site
EIN: 52-1749047

Board Leadership
Paul Ingholt
President

CEO
Lynn Aaronson
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 84.24 three stars
  Financial 88.37 three stars
  Accountability & Transparency 81.00 three stars
This rating was published 06/01/2019 and includes data from FY2018, the most recent 990 received at that time.

Since 1985, through our Translational Research Advancing Therapies for ALS (TREAT ALS™) program, The ALS Association has funded more than $99 million in research and clinical management projects. This unrelenting focus has resulted in some of the greatest ALS research discoveries to date. The ALS Association is leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

Since 1985, through our Translational Research Advancing Therapies for ALS (TREAT ALS™) program, The ALS Association has funded more than $99 million in research and clinical management projects. This unrelenting focus has resulted in some of the greatest ALS research discoveries to date. The ALS Association is leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

Impact Information

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Reported Results
Total in 2017
Number of clients served
758
Number of phone calls/inquiries
9,277
Number of attendees present at rallies/events
5,305
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This impact information is current as of March 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

88.37

Accountability & Transparency

three stars

81.00

This rating was published 06/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
79.3%
  Administrative Expenses 7.4%
  Fundraising Expenses 13.1%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.55
  Program Expenses Growth 12.8%
  Liabilities to Assets 15.8%
All data for Financial Performance Metrics calculations was provided by The ALS Association - DC/MD/VA Chapter on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The ALS Association - DC/MD/VA Chapter on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association - DC/MD/VA Chapter (MD) 84.24 three stars
The ALS Association, National Office (DC) 95.21 four stars
ALS Therapy Development Institute (MA) 91.93 four stars
The ALS Association Florida Chapter (FL) 88.22 three stars
The ALS Association, St. Louis Chapter (MO) 95.43 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,434,548
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,538,820
   Related Organizations $0
   Government Grants $0
Total Contributions $2,973,368
   Program Service Revenue $0
Total Primary Revenue $2,973,368
   Other Revenue $-3,659
TOTAL REVENUE $2,969,709
   
EXPENSES  
   Program Expenses $2,234,883
   Administrative Expenses $182,334
   Fundraising Expenses $417,929
TOTAL FUNCTIONAL EXPENSES $2,835,146
   
Payments to Affiliates $388,576
Excess (or Deficit) for the year $134,563
   
Net Assets $1,538,078

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient Services $1,846,307 82.6%
Supporting Worldwide Research $388,576 17.4%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-01 06/01/2019 84.24 three stars
2017-01 05/01/2018 85.47 three stars
2016-01 05/01/2017 84.46 three stars
2015-01 06/01/2016 81.78 three stars
 
CN 2.0
2015-01 04/01/2016 80.24 three stars
2014-01 04/01/2015 87.79 three stars
2014-01 03/01/2015 84.85 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1749047
Name in IRS Master File AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Subordinate - the organization is a subordinate in a group ruling.
Group Name AMYOTROPHIC LATERAL SCLEROSIS ASSN
Ruling Date July, 1990
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End January
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • January, 2017
  • January, 2016
  • January, 2015
  • January, 2014
  • January, 2013
Compensation % of Expenses Paid to Title
$144,568 5.09% Judy Taylor Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association - DC/MD/VA Chapter (MD) 84.24 three stars
ALS Association Minnesota/North Dakota/South Dakota Chapter (MN) 88.65 three stars
The ALS Association, Greater Philadelphia Chapter (PA) 86.15 three stars
The ALS Association Florida Chapter (FL) 88.22 three stars
Les Turner ALS Foundation (IL) 85.71 three stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The ALS Association - DC/MD/VA Chapter
30 W. Gude Drive
Suite 150
Rockville, MD 20850
tel: (301) 978-9855
EIN: 52-1749047

Visit Web Site

Board Leadership

Paul Ingholt
President

CEO

Lynn Aaronson
Executive Director

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