Health : Diseases, Disorders, and Disciplines

Huntington's Disease Society of America

Help for today. Hope for tomorrow.

four stars

91.04

505 Eighth Avenue Suite 902
New York, NY 10018
tel: (212) 242-1968   Web Site
EIN: 13-3349872

Board Leadership
Arik Johnson, Psy.D
Chairman

CEO
Louise Vetter
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 91.04 four stars
  Financial 87.34 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2018 and includes data from FY2016, the most recent 990 received at that time.

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

Financial

three stars

87.34

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.6%
  Administrative Expenses 11.2%
  Fundraising Expenses 11.0%
  Fundraising Efficiency $0.09
  Working Capital Ratio (years) 0.59
  Program Expenses Growth 6.0%
  Liabilities to Assets 25.0%
All data for Financial Performance Metrics calculations was provided by Huntington's Disease Society of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Huntington's Disease Society of America on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,749,615
   Federated Campaigns $228,658
   Membership Dues $0
   Fundraising Events $2,660,302
   Related Organizations $1,923,456
   Government Grants $0
Total Contributions $8,562,031
   Program Service Revenue $0
Total Primary Revenue $8,562,031
   Other Revenue $16,889
TOTAL REVENUE $8,578,920
   
EXPENSES  
   Program Expenses $6,247,620
   Administrative Expenses $940,855
   Fundraising Expenses $853,135
TOTAL FUNCTIONAL EXPENSES $8,041,610
   
Payments to Affiliates $0
Excess (or Deficit) for the year $537,310
   
Net Assets $4,553,274

Charts

Compensation % of Expenses Paid to Title
$264,026 3.28% Louise Vetter Chief Executive Officer

Mission

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

Highly Rated

Charity Name & State Overall Score Overall Rating
Huntington's Disease Society of America (NY) 91.04 four stars
Massachusetts Down Syndrome Congress (MA) 89.75 three stars
American Thyroid Association (VA) 97.17 four stars
Organization for Autism Research (VA) 95.05 four stars
Histiocytosis Association (NJ) 89.69 three stars

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Charity Contact Info

Huntington's Disease Society of America
505 Eighth Avenue
Suite 902
New York, NY 10018
tel: (212) 242-1968
fax: (212) 239-3430
EIN: 13-3349872

Visit Web Site

Board Leadership

Arik Johnson, Psy.D
Chairman

CEO

Louise Vetter
Chief Executive Officer