Health : Diseases, Disorders, and Disciplines

Huntington's Disease Society of America

Help for today. Hope for tomorrow.

three stars

89.93

505 Eighth Avenue Suite 902
New York, NY 10018
tel: (212) 242-1968   Web Site
EIN: 13-3349872

Board Leadership
EJ Garner
Chair

CEO
Louise Vetter
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 89.93 three stars
  Financial 85.77 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 12/23/2020 and includes data from FY2019, the most recent 990 received at that time.

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

Financial

three stars

85.77

Accountability & Transparency

four stars

100.00

This rating was published 12/23/2020 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.0%
  Administrative Expenses 9.5%
  Fundraising Expenses 13.4%
  Fundraising Efficiency $0.11
  Working Capital Ratio (years) 1.02
  Program Expenses Growth 4.6%
  Liabilities to Assets 14.7%
All data for Financial Performance Metrics calculations was provided by Huntington's Disease Society of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Huntington's Disease Society of America on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $6,329,931
   Federated Campaigns $202,842
   Membership Dues $0
   Fundraising Events $1,736,820
   Related Organizations $2,619,075
   Government Grants $0
Total Contributions $10,888,668
   Program Service Revenue $0
Total Primary Revenue $10,888,668
   Other Revenue $128,715
TOTAL REVENUE $11,017,383
   
EXPENSES  
   Program Expenses $7,142,452
   Administrative Expenses $560,427
   Fundraising Expenses $1,490,291
TOTAL FUNCTIONAL EXPENSES $9,193,170
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,824,213
   
Net Assets $9,352,219

Charts

Compensation % of Expenses Paid to Title
$326,226 3.54% Louise Vetter Chief Executive Officer

Mission

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

Highly Rated

Charity Name & State Overall Score Overall Rating
Huntington's Disease Society of America (NY) 89.93 three stars
Donate Life America (VA) 92.23 four stars
American Thyroid Association (VA) 93.10 four stars
Cystic Fibrosis Research, Inc. (CA) 96.58 four stars
Organization for Autism Research (VA) 95.71 four stars

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Charity Contact Info

Huntington's Disease Society of America
505 Eighth Avenue
Suite 902
New York, NY 10018
tel: (212) 242-1968
fax: (212) 239-3430
EIN: 13-3349872

Visit Web Site

Board Leadership

EJ Garner
Chair

CEO

Louise Vetter
Chief Executive Officer