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Health : Medical Research (Grantmaking)

Foundation for Angelman Syndrome Therapeutics

Cure Angelman Now.

four stars

92.22

P.O. Box 608 Downers Grove, IL 60515
tel: (630) 852-3278   Web Site
EIN: 26-3160079

Board Leadership
Paula M. Evans
Chairperson

CEO
Paula M. Evans
Chairperson

  Score
(out of 100) 		Rating
Overall Score & Rating 92.22 four stars
  Financial 100.00 four stars
  Accountability & Transparency 89.00 three stars
This rating was published 05/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Why isn't this based on more recent data?

The Foundation for Angelman Syndrome Therapeutics (FAST) is committed to accelerating treatments and a cure for Angelman syndrome (AS). The symptoms of AS have been under-addressed in the research community for far too long. Research aimed at identifying treatments for the motor dysfunction, seizures and behavioral characteristics of Angelman syndrome is one of FAST's top priorities. Our goal is to bring practical treatment into current medical practice as quickly as possible. It is our hope that grants we fund will lead to additional research support from government agencies, other funding sources and organizations around the globe.

The Foundation for Angelman Syndrome Therapeutics (FAST) is committed to accelerating treatments and a cure for Angelman syndrome (AS). The symptoms of AS have been under-addressed in the research community for far too long. Research aimed at identifying treatments for the motor dysfunction, seizures and behavioral characteristics of Angelman syndrome is one of FAST's top priorities. Our goal is to bring practical treatment into current medical practice as quickly as possible. It is our hope that grants we fund will lead to additional research support from government agencies, other funding sources and organizations around the globe.

Impact Information

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GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Showing 3 of 4
Total in 2019
Total dollar amount of grants awarded
4,861,140
Number of conference attendees
1,200
Total revenue earned to support advocacy efforts
4,336,870
Number of Facebook followers
19,000
This organization has earned a GuideStar's Platinum Seal of Transparency by voluntarily sharing the measures of progress and results they use to pursue their mission. Organizations earn Platinum Seals by selecting from a catalog of over 900 expert recognized metrics or by creating a new metric that best fits their work. This information is reported by the organization and displayed publicly on their GuideStar Nonprofit Profile. With over 1.6 million Nonprofit Profiles, 9 million annual visitors and over 200 data partners, GuideStar is the world's leading source of information about nonprofit organizations. A nonprofit itself, GuideStar is dedicated to providing better data for better decisions for a better world.
This impact information is current as of August 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Learn more about how we calculate the overall score and rating.

Financial

four stars

100.00

Accountability & Transparency

three stars

89.00

This rating was published 05/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 93.1%
  Administrative Expenses 3.3%
  Fundraising Expenses 3.4%
  Fundraising Efficiency $0.02
  Working Capital Ratio (years) 1.88
  Program Expenses Growth 29.0%
  Liabilities to Assets 14.9%
All data for Financial Performance Metrics calculations was provided by Foundation for Angelman Syndrome Therapeutics on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Foundation for Angelman Syndrome Therapeutics on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed
REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,271,112
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $2,972,352
   Related Organizations $0
   Government Grants $0
Total Contributions $5,243,464
   Program Service Revenue $0
Total Primary Revenue $5,243,464
   Other Revenue $30,929
TOTAL REVENUE $5,274,393
   
EXPENSES  
   Program Expenses $2,668,012
   Administrative Expenses $194,505
   Fundraising Expenses $85,551
TOTAL FUNCTIONAL EXPENSES $2,948,068
   
Payments to Affiliates $0
Excess (or Deficit) for the year $2,326,325
   
Net Assets $7,573,733

Charts

Compensation % of Expenses Paid to Title Compensation from Affiliates
Not compensated -- Paula Evans Chairperson $145,833

Mission

The Foundation for Angelman Syndrome Therapeutics (FAST) is committed to accelerating treatments and a cure for Angelman syndrome (AS). The symptoms of AS have been under-addressed in the research community for far too long. Research aimed at identifying treatments for the motor dysfunction, seizures and behavioral characteristics of Angelman syndrome is one of FAST's top priorities. Our goal is to bring practical treatment into current medical practice as quickly as possible. It is our hope that grants we fund will lead to additional research support from government agencies, other funding sources and organizations around the globe.

Highly Rated

Charity Name & State Overall Score Overall Rating
Foundation for Angelman Syndrome Therapeutics (IL) 92.22 four stars
EB Research Partnership (NY) 96.49 four stars
MPN Research Foundation (IL) 89.44 three stars
Lupus Research Alliance (NY) 91.39 four stars
Rheumatology Research Foundation (GA) 91.68 four stars

Compare These Charities (Highly Rated)

Charity Contact Info

Foundation for Angelman Syndrome Therapeutics
P.O. Box 608
Downers Grove, IL 60515
tel: (630) 852-3278
fax: (630) 852-3270
EIN: 26-3160079

Visit Web Site

Board Leadership

Paula M. Evans
Chairperson

CEO

Paula M. Evans
Chairperson

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