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Health : Medical Research (Grantmaking)

EB Research Partnership

EB Research Partnership is dedicated to finding a cure, and finding it quickly.

four stars

96.49

132 East 43rd Street Suite 432
New York, NY 10017
tel: (646) 844-0902   Web Site
EIN: 27-2417202

Board Leadership
Alexander Silver
Chairman

CEO
Michael Hund
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 96.49 four stars
  Financial 97.07 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.

EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Impact Information

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Reported Results
Showing 3 of 5
Total in 2018
Number of organizations applying for grants
25
Median grant amount
58,402
Average grant amount
148,186
Total dollar amount of grants awarded
4,593,750
Total number of grants awarded
31
This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

97.07

Accountability & Transparency

four stars

96.00

This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
83.5%
  Administrative Expenses 5.5%
  Fundraising Expenses 10.8%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 3.61
  Program Expenses Growth 11.5%
  Liabilities to Assets 7.4%
All data for Financial Performance Metrics calculations was provided by EB Research Partnership on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by EB Research Partnership on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
EB Research Partnership (NY) 96.49 four stars
International Rett Syndrome Foundation (OH) 85.85 three stars
Scleroderma Research Foundation (CA) 96.80 four stars
Cure Alzheimer's Fund (MA) 96.46 four stars
Children's Cancer & Blood Foundation (NY) 85.42 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,196,763
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $2,101,435
   Related Organizations $0
   Government Grants $0
Total Contributions $5,298,198
   Program Service Revenue $0
Total Primary Revenue $5,298,198
   Other Revenue $65,096
TOTAL REVENUE $5,363,294
   
EXPENSES  
   Program Expenses $2,824,073
   Administrative Expenses $170,074
   Fundraising Expenses $394,439
TOTAL FUNCTIONAL EXPENSES $3,388,586
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,974,708
   
Net Assets $10,354,835

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Grants $2,824,073 100.0%

Ratings History
EB Research Partnership has received 2 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 06/01/2020 96.49 four stars
2017-12 02/01/2020 96.55 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 27-2417202
Name in IRS Master File EB RESEARCH PARTNERSHIP INC
NTEE Code G80
NTEE Classification Specifically Named Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 2011
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$225,000 6.63% Michael Hund Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
EB Research Partnership (NY) 96.49 four stars
Population Council (NY) 90.03 four stars
Cystinosis Research Foundation (CA) 91.69 four stars
Monell Chemical Senses Center (PA) 86.22 three stars
Familial Dysautonomia Foundation (NY) 93.11 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

EB Research Partnership
132 East 43rd Street
Suite 432
New York, NY 10017
tel: (646) 844-0902
EIN: 27-2417202

Visit Web Site

Board Leadership

Alexander Silver
Chairman

CEO

Michael Hund
Chief Executive Officer

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