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Health : Diseases, Disorders, and Disciplines
Board Leadership
Sue Gorman
Chairman
CEO
Calaneet Balas
President, CEO
|
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.
84.52
97.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
81.4% | |
Administrative Expenses | 6.0% | |
Fundraising Expenses | 12.5% | |
Fundraising Efficiency | $0.16 | |
Working Capital Ratio (years) | 2.51 | |
Program Expenses Growth | -0.4% | |
Liabilities to Assets | 6.1% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
The ALS Association, National Office (DC) | 88.85 | |
The ALS Association Connecticut Chapter (CT) | 88.45 | |
ALS Therapy Development Institute (MA) | 92.80 | |
The ALS Association Western Pennsylvania Chapter (PA) | 90.46 | |
The ALS Association Greater New York Chapter (NY) | 97.52 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $27,267,200 |
Federated Campaigns | $153,834 |
Membership Dues | $0 |
Fundraising Events | $1,628,674 |
Related Organizations | $0 |
Government Grants | $379,992 |
Total Contributions | $29,429,700 |
Program Service Revenue | $146,365 |
Total Primary Revenue | $29,576,065 |
Other Revenue | $-2,510,363 |
TOTAL REVENUE | $27,065,702 |
EXPENSES | |
Program Expenses | $27,872,039 |
Administrative Expenses | $2,664,289 |
Fundraising Expenses | $4,353,885 |
TOTAL FUNCTIONAL EXPENSES | $34,890,213 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $-7,824,511 |
Net Assets | $90,438,715 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Research Programs | $15,436,780 | 55.4% |
Public and Professional Education | $3,290,965 | 11.8% |
Patient & Community Services | $9,144,294 | 32.8% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2019-01 | 11/01/2019 | 88.85 | |||||||
2018-01 | 02/01/2019 | 95.21 | |||||||
2017-01 | 02/01/2018 | 96.48 | |||||||
2016-01 | 02/01/2017 | 94.62 | |||||||
2015-01 | 06/01/2016 | 94.23 | |||||||
CN 2.0 | |||||||||
2015-01 | 08/01/2015 | 94.57 | |||||||
2014-01 | 09/01/2014 | 90.77 | |||||||
2013-01 | 06/01/2014 | 90.73 | |||||||
2013-01 | 05/01/2014 | 89.70 | |||||||
2012-01 | 03/01/2013 | 83.30 | |||||||
2011-01 | 09/01/2012 | 77.53 | |||||||
2011-01 | 02/01/2012 | 81.24 | |||||||
2010-01 | 09/20/2011 | 86.57 | |||||||
CN 1.0 | |||||||||
2010-01 | 02/01/2011 | 74.64 | |||||||
2009-01 | 07/01/2010 | 83.43 | |||||||
2008-01 | 02/01/2009 | 90.20 | |||||||
2007-01 | 12/01/2007 | 90.49 | |||||||
2006-01 | 12/01/2006 | 83.70 | |||||||
2005-01 | 12/01/2005 | 88.48 | |||||||
2004-01 | 12/01/2004 | 88.93 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 13-3271855 |
Name in IRS Master File | AMYOTROPHIC LATERAL SCLEROSIS ASSN |
NTEE Code | G50 |
NTEE Classification | Nerve, Muscle and Bone Diseases |
NTEE Type | Diseases, Disorders, Medical Disciplines |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (123) Discussion groups, forums, panels lectures, etc. |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization. |
Group Name | AMYOTROPHIC LATERAL SCLEROSIS ASSN |
Ruling Date | July, 1990 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | January |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$300,317 | 0.86% | Calaneet Balas | President & CEO |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
The ALS Association, National Office (DC) | 88.85 | |
The ALS Association Georgia Chapter (GA) | 96.04 | |
ALS Therapy Development Institute (MA) | 92.80 | |
The ALS Association, Greater Philadelphia Chapter (PA) | 86.15 | |
The ALS Association Connecticut Chapter (CT) | 88.45 |
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The ALS Association, National Office
1275 K Street, NW.
Suite 250
Washington,
DC 20005
tel: (888) 949-2577
fax: (202) 289-6801
EIN: 13-3271855
Sue Gorman
Chairman
Calaneet Balas
President, CEO
Charity Navigator
139 Harristown Rd Suite 101
Glen Rock, NJ 07452
EIN: 13-4148824
BRIDGE ID: 3108588923
Charity Navigator
139 Harristown Rd Suite 101
Glen Rock, NJ 07452
EIN: 13-4148824
BRIDGE ID: 3108588923