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Health : Diseases, Disorders, and Disciplines

The ALS Association, National Office

Create a world without ALS

four stars

92.23

1300 Wilson Boulevard Suite 600
Arlington, VA 22209
tel: (888) 949-2577   Web Site
EIN: 13-3271855

Board Leadership
Sue Gorman
Chairman

CEO
Calaneet Balas
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 92.23 four stars
  Financial 89.44 three stars
  Accountability & Transparency 97.00 four stars
This rating was published 03/01/2021 and includes data from FY2020, the most recent 990 received at that time.

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Financial

three stars

89.44

Accountability & Transparency

four stars

97.00

This rating was published 03/01/2021 and includes data from FY2020, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
80.3%
  Administrative Expenses 6.6%
  Fundraising Expenses 12.9%
  Fundraising Efficiency $0.17
  Working Capital Ratio (years) 2.35
  Program Expenses Growth 4.8%
  Liabilities to Assets 7.9%
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (VA) 92.23 four stars
The ALS Association Connecticut Chapter (CT) 90.79 four stars
The ALS Association Florida Chapter (FL) 87.47 three stars
The ALS Association Greater New York Chapter (NY) 94.90 four stars
The ALS Association Western Pennsylvania Chapter (PA) 97.17 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $31,959,286
   Federated Campaigns $107,805
   Membership Dues $0
   Fundraising Events $1,745,425
   Related Organizations $0
   Government Grants $389,492
Total Contributions $34,202,008
   Program Service Revenue $112,947
Total Primary Revenue $34,314,955
   Other Revenue $2,716,849
TOTAL REVENUE $37,031,804
   
EXPENSES (Adjusted)  
   Program Expenses $32,593,271
   Administrative Expenses $2,985,286
   Fundraising Expenses $6,229,946
TOTAL FUNCTIONAL EXPENSES $41,808,503
   
Payments to Affiliates $674,048
Excess (or Deficit) for the year $-4,776,699
   
Net Assets $90,196,292

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Programs $18,352,163 55.8%
Patient & Community Services $10,463,835 31.8%
Public and Professional Education $4,052,273 12.3%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2020-01 03/01/2021 92.23 four stars
2019-01 11/01/2019 88.85 three stars
2018-01 02/01/2019 95.21 four stars
2017-01 02/01/2018 96.48 four stars
2016-01 02/01/2017 94.62 four stars
2015-01 06/01/2016 94.23 four stars
 
CN 2.0
2015-01 08/01/2015 94.57 four stars
2014-01 09/01/2014 90.77 four stars
2013-01 06/01/2014 90.73 four stars
2013-01 05/01/2014 89.70 three stars
2012-01 03/01/2013 83.30 three stars
2011-01 09/01/2012 77.53 two stars
2011-01 02/01/2012 81.24 three stars
2010-01 09/20/2011 86.57 three stars
 
CN 1.0
2010-01 02/01/2011 74.64 two stars
2009-01 07/01/2010 83.43 three stars
2008-01 02/01/2009 90.20 four stars
2007-01 12/01/2007 90.49 four stars
2006-01 12/01/2006 83.70 three stars
2005-01 12/01/2005 88.48 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-3271855
Name in IRS Master File AMYOTROPHIC LATERAL SCLEROSIS ASSN
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name AMYOTROPHIC LATERAL SCLEROSIS ASSN
Ruling Date July, 1990
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End January
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • January, 2018
  • January, 2017
  • January, 2016
  • January, 2015
  • January, 2014
Compensation % of Expenses Paid to Title
$358,632 0.85% Calaneet Balas President & CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (VA) 92.23 four stars
The ALS Association Florida Chapter (FL) 87.47 three stars
Les Turner ALS Foundation (IL) 96.46 four stars
The ALS Association Greater New York Chapter (NY) 94.90 four stars
The ALS Association Georgia Chapter (GA) 93.13 four stars

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Charity Contact Info

The ALS Association, National Office
1300 Wilson Boulevard
Suite 600
Arlington, VA 22209
tel: (888) 949-2577
fax: (202) 289-6801
EIN: 13-3271855

Visit Web Site

Board Leadership

Sue Gorman
Chairman

CEO

Calaneet Balas
President, CEO

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