Health : Diseases, Disorders, and Disciplines

The ALS Association, National Office

Create a world without ALS

four stars

92.23

1300 Wilson Boulevard Suite 600
Arlington, VA 22209
tel: (888) 949-2577   Web Site
EIN: 13-3271855

Board Leadership
Sue Gorman
Chairman

CEO
Calaneet Balas
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 92.23 four stars
  Financial 89.44 three stars
  Accountability & Transparency 97.00 four stars
This rating was published 03/01/2021 and includes data from FY2020, the most recent 990 received at that time.

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Financial

three stars

89.44

Accountability & Transparency

four stars

97.00

This rating was published 03/01/2021 and includes data from FY2020, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
80.3%
  Administrative Expenses 6.6%
  Fundraising Expenses 12.9%
  Fundraising Efficiency $0.17
  Working Capital Ratio (years) 2.35
  Program Expenses Growth 4.8%
  Liabilities to Assets 7.9%
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $31,959,286
   Federated Campaigns $107,805
   Membership Dues $0
   Fundraising Events $1,745,425
   Related Organizations $0
   Government Grants $389,492
Total Contributions $34,202,008
   Program Service Revenue $112,947
Total Primary Revenue $34,314,955
   Other Revenue $2,716,849
TOTAL REVENUE $37,031,804
   
EXPENSES (Adjusted)  
   Program Expenses $32,593,271
   Administrative Expenses $2,985,286
   Fundraising Expenses $6,229,946
TOTAL FUNCTIONAL EXPENSES $41,808,503
   
Payments to Affiliates $674,048
Excess (or Deficit) for the year $-4,776,699
   
Net Assets $90,196,292

Charts

Compensation % of Expenses Paid to Title
$358,632 0.85% Calaneet Balas President & CEO

Mission

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (VA) 92.23 four stars
The ALS Association Greater New York Chapter (NY) 96.66 four stars
The ALS Association Connecticut Chapter (CT) 90.79 four stars
The ALS Association, Greater Philadelphia Chapter (PA) 88.53 three stars
The ALS Association Golden West Chapter (CA) 93.56 four stars

Compare These Charities (Highly Rated)

Charity Contact Info

The ALS Association, National Office
1300 Wilson Boulevard
Suite 600
Arlington, VA 22209
tel: (888) 949-2577
fax: (202) 289-6801
EIN: 13-3271855

Visit Web Site

Board Leadership

Sue Gorman
Chairman

CEO

Calaneet Balas
President, CEO