Health : Diseases, Disorders, and Disciplines

The ALS Association, National Office

Create a world without ALS

impact data icon

Impact Information is available from our partner, GuideStar

four stars

95.21

1275 K Street, NW. Suite 250
Washington, DC 20005
tel: (888) 949-2577   Web Site
EIN: 13-3271855

Board Leadership
Stephen Winthrop
Chairman

CEO
Calaneet Balas
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 95.21 four stars
  Financial 93.94 four stars
  Accountability & Transparency 97.00 four stars
This rating was published 02/01/2019 and includes data from FY2018, the most recent 990 received at that time.

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Impact Information

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This impact information is current as of March 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

93.94

Accountability & Transparency

four stars

97.00

This rating was published 02/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
81.3%
  Administrative Expenses 5.6%
  Fundraising Expenses 12.9%
  Fundraising Efficiency $0.18
  Working Capital Ratio (years) 2.64
  Program Expenses Growth 19.5%
  Liabilities to Assets 3.1%
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $21,472,081
   Federated Campaigns $196,078
   Membership Dues $0
   Fundraising Events $1,177,565
   Related Organizations $0
   Government Grants $370,724
Total Contributions $23,216,448
   Program Service Revenue $72,600
Total Primary Revenue $23,289,048
   Other Revenue $1,380,687
TOTAL REVENUE $24,669,735
   
EXPENSES  
   Program Expenses $31,541,337
   Administrative Expenses $2,019,759
   Fundraising Expenses $4,257,115
TOTAL FUNCTIONAL EXPENSES $37,818,211
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-13,148,476
   
Net Assets $96,447,890

Charts

Compensation % of Expenses Paid to Title
$208,761 0.55% Calaneet Balas CEO (12/4/17)
Other Salaries of Note
$303,316 0.80% Barbara Newhouse President/CEO (until 12/4/17)

Mission

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (DC) 95.21 four stars
The ALS Association, St. Louis Chapter (MO) 95.43 four stars
The ALS Association Florida Chapter (FL) 88.22 three stars
Les Turner ALS Foundation (IL) 85.71 three stars
ALS Association Minnesota/North Dakota/South Dakota Chapter (MN) 88.65 three stars

Compare These Charities (Highly Rated)

Charity Contact Info

The ALS Association, National Office
1275 K Street, NW.
Suite 250
Washington, DC 20005
tel: (888) 949-2577
fax: (202) 289-6801
EIN: 13-3271855

Visit Web Site

Board Leadership

Stephen Winthrop
Chairman

CEO

Calaneet Balas
President, CEO