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Health : Diseases, Disorders, and Disciplines

Muscular Dystrophy Association

For Strength, Independence & Life

two stars

73.90

161 N. Clark Street STE 3550
Chicago, IL 60601
tel: (800) 572-1717   Web Site
EIN: 13-1665552

Board Leadership
R. Rodney Howell, M.D.
Chairman

CEO
Lynn O'Connor Vos
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 73.90 two stars
  Financial 63.98 one star
  Accountability & Transparency 92.00 four stars
This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.

Created in 1950, the Muscular Dystrophy Association (MDA) is the world's leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. We do so by funding worldwide research; by providing comprehensive health care services and support to MDA families nationwide; and by rallying communities to fight back through advocacy, fundraising and local engagement.

Created in 1950, the Muscular Dystrophy Association (MDA) is the world's leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. We do so by funding worldwide research; by providing comprehensive health care services and support to MDA families nationwide; and by rallying communities to fight back through advocacy, fundraising and local engagement.

Impact Information

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Financial

one star

63.98

Accountability & Transparency

four stars

92.00

This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
72.7%
  Administrative Expenses 10.4%
  Fundraising Expenses 16.8%
  Fundraising Efficiency $0.16
  Working Capital Ratio (years) 0.05
  Program Expenses Growth -8.2%
  Liabilities to Assets 91.3%
All data for Financial Performance Metrics calculations was provided by Muscular Dystrophy Association on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by Muscular Dystrophy Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Muscular Dystrophy Association (IL) 73.90 two stars
Can Do Multiple Sclerosis (CO) 97.29 four stars
The Boomer Esiason Foundation (NY) 95.63 four stars
Epilepsy Foundation of Minnesota (MN) 90.38 four stars
Restless Legs Syndrome Foundation (TX) 91.16 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $20,385,584
   Federated Campaigns $412,763
   Membership Dues $0
   Fundraising Events $95,818,189
   Related Organizations $0
   Government Grants $455,382
Total Contributions $117,071,918
   Program Service Revenue $0
Total Primary Revenue $117,071,918
   Other Revenue $3,588,484
TOTAL REVENUE $120,660,402
   
EXPENSES (Adjusted)  
   Program Expenses $85,703,843
   Administrative Expenses $13,243,769
   Fundraising Expenses $19,133,693
TOTAL FUNCTIONAL EXPENSES $118,081,305
   
Payments to Affiliates $0
Excess (or Deficit) for the year $2,579,097
   
Net Assets $7,929,591

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Health Care and Community Services $54,809,533 63.7%
Research $15,992,994 18.6%
Professional and Public Health Education $15,274,561 17.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 05/01/2018 73.90 two stars
2015-12 03/01/2017 74.06 two stars
2014-12 06/01/2016 74.28 two stars
 
CN 2.0
2014-12 12/22/2015 72.74 two stars
2013-12 05/01/2015 72.45 two stars
2012-12 03/01/2014 74.07 two stars
2011-12 03/01/2013 71.78 two stars
2010-12 09/01/2012 79.28 two stars
2010-12 02/01/2012 81.19 three stars
2009-12 09/20/2011 83.36 three stars
 
CN 1.0
2009-12 03/01/2011 72.60 two stars
2008-12 03/01/2010 77.65 two stars
2007-03 03/01/2008 76.00 two stars
2005-03 03/01/2006 79.98 two stars
2004-03 02/01/2005 85.59 three stars
2003-03 02/01/2004 87.09 three stars
2002-03 04/15/2003 85.76 three stars
2001-03 10/15/2002 84.20 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-1665552
Name in IRS Master File MUSCULAR DYSTROPHY ASSOCIATION
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date July, 1952
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$475,679 0.40% Steven M. Derks President & CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Muscular Dystrophy Association (IL) 73.90 two stars
The Boomer Esiason Foundation (NY) 95.63 four stars
National Osteoporosis Foundation (VA) 86.58 three stars
Restless Legs Syndrome Foundation (TX) 91.16 four stars
Hunter's Hope Foundation (NY) 87.89 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Muscular Dystrophy Association
161 N. Clark Street
STE 3550
Chicago, IL 60601
tel: (800) 572-1717
EIN: 13-1665552

Visit Web Site

Board Leadership

R. Rodney Howell, M.D.
Chairman

CEO

Lynn O'Connor Vos
President, CEO

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