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Health : Diseases, Disorders, and Disciplines

Muscular Dystrophy Association

Transforming lives through innovations in science and care

one star

65.73

161 N. Clark Street STE 3550
Chicago, IL 60601
tel: (800) 572-1717   Web Site
EIN: 13-1665552

Board Leadership
Steve Farella
Chairman

CEO
Donald S Wood PhD
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 65.73 one star
  Financial 51.64 zero star
  Accountability & Transparency 97.00 four stars
This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.

MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since our inception to accelerate the discovery of therapies and cures. MDA's MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation's top medical institutions. .Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families. For more information visit mda.org.

MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since our inception to accelerate the discovery of therapies and cures. MDA's MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation's top medical institutions. .Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families. For more information visit mda.org.

Financial

zero star

51.64

Accountability & Transparency

four stars

97.00

This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
64.5%
  Administrative Expenses 10.6%
  Fundraising Expenses 24.7%
  Fundraising Efficiency $0.25
  Working Capital Ratio (years) < 0.01
  Program Expenses Growth -12.8%
  Liabilities to Assets 100.8%
All data for Financial Performance Metrics calculations was provided by Muscular Dystrophy Association on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by Muscular Dystrophy Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Muscular Dystrophy Association (IL) 65.73 one star
Can Do Multiple Sclerosis (CO) 96.46 four stars
The Boomer Esiason Foundation (NY) 90.36 four stars
Epilepsy Foundation of Minnesota (MN) 92.20 four stars
American Brain Foundation (MN) 94.80 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $45,643,718
   Federated Campaigns $1,112,148
   Membership Dues $0
   Fundraising Events $52,812,454
   Related Organizations $0
   Government Grants $335,898
Total Contributions $99,904,218
   Program Service Revenue $0
Total Primary Revenue $99,904,218
   Other Revenue $1,068,557
TOTAL REVENUE $100,972,775
   
EXPENSES (Adjusted)  
   Program Expenses $56,929,026
   Administrative Expenses $7,290,569
   Fundraising Expenses $48,530,204
TOTAL FUNCTIONAL EXPENSES $112,749,799
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-11,777,024
   
Net Assets $-713,651

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Health Care and Community Services $28,614,874 49.7%
Research $19,855,585 34.5%
Professional and Public Health Education $9,124,865 15.8%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 06/01/2021 65.73 one star
2018-12 12/01/2020 74.30 two stars
2018-12 03/01/2020 73.91 two stars
2017-12 06/01/2019 74.38 two stars
2017-12 04/01/2019 73.31 two stars
2016-12 05/01/2018 73.90 two stars
2015-12 03/01/2017 74.06 two stars
2014-12 06/01/2016 74.28 two stars
 
CN 2.0
2014-12 12/22/2015 72.74 two stars
2013-12 05/01/2015 72.45 two stars
2012-12 03/01/2014 74.07 two stars
2011-12 03/01/2013 71.78 two stars
2010-12 09/01/2012 79.28 two stars
2010-12 02/01/2012 81.19 three stars
2009-12 09/20/2011 83.36 three stars
 
CN 1.0
2009-12 03/01/2011 72.60 two stars
2008-12 03/01/2010 77.65 two stars
2007-03 03/01/2008 76.00 two stars
2005-03 03/01/2006 79.98 two stars
2004-03 02/01/2005 85.59 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-1665552
Name in IRS Master File MUSCULAR DYSTROPHY ASSOCIATION
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date July, 1952
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$508,029 0.45% Ellen Vos President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Muscular Dystrophy Association (IL) 65.73 one star
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
FSHD Society (MA) 91.14 four stars
Can Do Multiple Sclerosis (CO) 96.46 four stars
Parent Project Muscular Dystrophy (NJ) 96.46 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Muscular Dystrophy Association
161 N. Clark Street
STE 3550
Chicago, IL 60601
tel: (800) 572-1717
EIN: 13-1665552

Visit Web Site

Board Leadership

Steve Farella
Chairman

CEO

Donald S Wood PhD
President, CEO

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