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Health : Diseases, Disorders, and Disciplines

PKD Foundation

Our Vision: No one suffers the full effects of Polycystic Kidney Disease.

90.39

1001 East 101st Terrace Suite 220
Kansas City, MO 64131
tel: (816) 931-2600   Web Site
EIN: 43-1266906

Board Leadership
Robert Roth
Chair

CEO
Andy Betts
President and CEO

Charity Navigator

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  Score
(out of 100)
Rating
Overall Score & Rating 90.39
  Financial 87.02
  Accountability & Transparency 96.00
This rating was published 12/23/2021 and includes data from FY2019, the most recent 990 received at that time.

The PKD Foundation is a non-for-profit organization dedicated to fighting polycystic kidney disease (PKD). The mission of the Foundation is to promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for polycystic kidney disease and improve the lives of all it affects. To fulfill our mission and discover treatments for PKD, the PKD Foundation has launched an integrated research initiative focused on "Accelerating Treatments to Patients," which is designed to speed up the development of treatments for PKD. Key components of this initiative include drug repurposing, targeted research grants, tissue donation, clinical trials and much more. In addition to funding research and educational programs, the PKD Foundation provides a forum for patients, family and friends through more than 60 volunteer-led Chapters across the country.

The PKD Foundation is a non-for-profit organization dedicated to fighting polycystic kidney disease (PKD). The mission of the Foundation is to promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for polycystic kidney disease and improve the lives of all it affects. To fulfill our mission and discover treatments for PKD, the PKD Foundation has launched an integrated research initiative focused on "Accelerating Treatments to Patients," which is designed to speed up the development of treatments for PKD. Key components of this initiative include drug repurposing, targeted research grants, tissue donation, clinical trials and much more. In addition to funding research and educational programs, the PKD Foundation provides a forum for patients, family and friends through more than 60 volunteer-led Chapters across the country.

Financial

87.02

Accountability & Transparency

96.00

This rating was published 12/23/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
72.3%
  Administrative Expenses 13.5%
  Fundraising Expenses 14.0%
  Fundraising Efficiency $0.12
  Working Capital Ratio (years) 1.05
  Program Expenses Growth 7.1%
  Liabilities to Assets 17.4%
All data for Financial Performance Metrics calculations was provided by PKD Foundation on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by PKD Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
PKD Foundation (MO) 90.39
National Kidney Foundation of Illinois (IL) 95.19
American Kidney Fund (MD) 91.82
National Kidney Foundation of Florida (FL) 93.95
National Kidney Foundation of Michigan (MI) 91.16

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $6,507,595
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $6,507,595
   Program Service Revenue $0
Total Primary Revenue $6,507,595
   Other Revenue $252,008
TOTAL REVENUE $6,759,603
   
EXPENSES (Adjusted)  
   Program Expenses $6,121,600
   Administrative Expenses $1,034,355
   Fundraising Expenses $1,014,002
TOTAL FUNCTIONAL EXPENSES $8,169,957
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-1,410,354
   
Net Assets $8,754,056

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $3,757,904 60.6%
Awareness & Advocacy $1,504,821 24.3%
Education and Support $939,973 15.2%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-06 12/23/2021 90.39
2019-06 02/01/2021 90.78
2018-06 07/01/2019 88.36
2017-06 07/01/2018 85.37
2016-06 07/01/2017 87.13
2015-06 06/01/2016 83.99
 
CN 2.0
2015-06 03/01/2016 84.13
2014-06 10/01/2015 78.52
2013-06 08/01/2014 81.28
2013-06 07/01/2014 81.17
2012-06 04/01/2013 80.99
2011-06 12/20/2012 72.26
2011-06 09/01/2012 72.18
2011-06 03/01/2012 80.07
2010-06 09/20/2011 82.06
 
CN 1.0
2010-06 05/01/2011 70.35
2009-06 07/01/2010 86.70
2008-06 10/01/2009 90.80
2007-06 03/01/2008 95.94
2005-12 12/01/2006 93.00

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 43-1266906
Name in IRS Master File PKD FOUNDATION
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date November, 1982
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$235,343 2.88% Andy Betts President & CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
PKD Foundation (MO) 90.39
National Kidney Foundation of Illinois (IL) 95.19
American Kidney Fund (MD) 91.82
American Association of Kidney Patients (FL) 89.78
National Kidney Foundation of Florida (FL) 93.95

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Charity Contact Info

PKD Foundation
1001 East 101st Terrace
Suite 220
Kansas City, MO 64131
tel: (816) 931-2600
fax: (816) 268-8496
EIN: 43-1266906

Visit Web Site

Board Leadership

Robert Roth
Chair

CEO

Andy Betts
President and CEO

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