Disable all preview features
Sign in or Register  |     0 Donation(s), $0 total

Charity Contact Info

Tuberous Sclerosis Alliance
801 Roeder Road
Suite 750
Silver Spring, MD 20910
tel: (800) 225-6872
fax: (301) 562-9870
EIN: 95-3018799

Mail donations to:
P.O. Box 10426
Uniondale, NY 11555

Visit Web Site

Board Leadership

Laura Lubbers


Kari Luther Rosbeck
President & CEO

Give From Your Donor Advised Fund

Health : Diseases, Disorders, and Disciplines

Tuberous Sclerosis Alliance

Finding a cure for tuberous sclerosis while improving lives of those affected

(out of 100)
Overall Score & Rating 90.86 4 stars
  Financial 87.08 3 stars
  Accountability & Transparency 100.00 4 stars
This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.

Overall Rating Chart

Learn more about how we calculate the overall score and rating.

Financial Performance Metrics
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
  Administrative Expenses 8.4%
  Fundraising Expenses 16.7%
  Fundraising Efficiency $0.20
  Working Capital Ratio (years) 1.96
  Program Expenses Growth 9.8%
  Liabilities to Assets 3.5%
All data for Financial Performance Metrics calculations was provided by Tuberous Sclerosis Alliance on recent 990s filed with the IRS.

Income Statement     (FYE 12/2014)

   Contributions, Gifts & Grants $1,508,480
   Federated Campaigns $76,776
   Membership Dues $0
   Fundraising Events $1,441,630
   Related Organizations $97,500
   Government Grants $0
Total Contributions $3,124,386
   Program Service Revenue $1,237,559
Total Primary Revenue $4,361,945
   Other Revenue $17,002
TOTAL REVENUE $4,378,947
EXPENSES (Adjusted)  
   Program Expenses $3,237,361
   Administrative Expenses $311,619
   Fundraising Expenses $722,781
Payments to Affiliates $0
Excess (or Deficit) for the year $107,186
Net Assets $8,620,546

Financial Charts

Compensation of Leaders     (FYE 12/2014)

Compensation % of Expenses Paid to Title Compensation from Affiliates
$149,894 3.50% Kari Luther Rosbeck President, CEO $14,989
Other Salaries of Note
$177,610 4.15% Steven L. Roberds Chief Scientific Officer --


The Tuberous Sclerosis Alliance (TS Alliance) was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those who share the common bond of facing the daily challenges of tuberous sclerosis complex (TSC). During its more than 40 years of existence and growth, the TS Alliance has expanded its mission to improve the quality of life for individuals and families affected by TSC through the stimulation and sponsorship of research, the development of programs, support services and resource information, and the development and implementation of public and professional education programs designed to heighten awareness of TSC. TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs.

Charities Performing Similar Types of Work

Highly Rated

Charity Name & State Overall Score Overall Rating
Tuberous Sclerosis Alliance (MD) 90.86 4 stars
National Psoriasis Foundation (OR) 90.23 4 stars
Angiogenesis Foundation (MA) 88.22 3 stars
MDS Foundation (NJ) 85.28 3 stars
Endometriosis Association (WI) 85.17 3 stars

Compare These Charities (Highly Rated)

Most Viewed

Charity Name & State Overall Score Overall Rating
Tuberous Sclerosis Alliance (MD) 90.86 4 stars
Autism Speaks (NY) 73.36 2 stars
Crohn's & Colitis Foundation of America (NY) 87.25 3 stars
Lupus Foundation of America (DC) 80.56 3 stars
United Spinal Association (NY) 69.76 1 stars

Compare These Charities (Most Viewed)

Charity Representative Login

This charity has an official representative registered with Charity Navigator.


Join Our Mailing List

Join over 230,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.


Help & Support