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Charity Contact Info

Tuberous Sclerosis Alliance
801 Roeder Road
Suite 750
Silver Spring, MD 20910
tel: (800) 225-6872
fax: (301) 562-9870
EIN: 95-3018799

Mail donations to:
P.O. Box 10426
Uniondale, NY 11555

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Board Leadership

Laura Lubbers
Chair

CEO

Kari Luther Rosbeck
President & CEO


Give From Your Donor Advised Fund

Health : Diseases, Disorders, and Disciplines

Tuberous Sclerosis Alliance

Finding a cure for tuberous sclerosis while improving lives of those affected

 
  Score
(out of 100)
Rating
Overall Score & Rating 90.86 4 stars
  Financial 87.08 3 stars
  Accountability & Transparency 100.00 4 stars
This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.

Overall Rating Chart

Learn more about how we calculate the overall score and rating.

Financial Performance Metrics
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
74.8%
  Administrative Expenses 8.4%
  Fundraising Expenses 16.7%
  Fundraising Efficiency $0.20
  Working Capital Ratio (years) 1.96
  Program Expenses Growth 9.8%
  Liabilities to Assets 3.5%
All data for Financial Performance Metrics calculations was provided by Tuberous Sclerosis Alliance on recent 990s filed with the IRS.

Income Statement     (FYE 12/2014)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,508,480
   Federated Campaigns $76,776
   Membership Dues $0
   Fundraising Events $1,441,630
   Related Organizations $97,500
   Government Grants $0
Total Contributions $3,124,386
   Program Service Revenue $1,237,559
Total Primary Revenue $4,361,945
   Other Revenue $17,002
TOTAL REVENUE $4,378,947
   
EXPENSES (Adjusted)  
   Program Expenses $3,237,361
   Administrative Expenses $311,619
   Fundraising Expenses $722,781
TOTAL FUNCTIONAL EXPENSES $4,271,761
   
Payments to Affiliates $0
Excess (or Deficit) for the year $107,186
   
Net Assets $8,620,546

Financial Charts

Compensation of Leaders     (FYE 12/2014)

Compensation % of Expenses Paid to Title Compensation from Affiliates
$149,894 3.50% Kari Luther Rosbeck President, CEO $14,989
Other Salaries of Note
$177,610 4.15% Steven L. Roberds Chief Scientific Officer --

Mission

The Tuberous Sclerosis Alliance (TS Alliance) was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those who share the common bond of facing the daily challenges of tuberous sclerosis complex (TSC). During its more than 40 years of existence and growth, the TS Alliance has expanded its mission to improve the quality of life for individuals and families affected by TSC through the stimulation and sponsorship of research, the development of programs, support services and resource information, and the development and implementation of public and professional education programs designed to heighten awareness of TSC. TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs.

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