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Health : Diseases, Disorders, and Disciplines

Solve ME/CFS Initiative

Working to make ME/CFS understood, diagnosable, and treatable

three stars

89.01

5455 Willshire Boulevard Suite 1903
Los Angeles, CA 90036
tel: (704) 364-0016   Web Site
EIN: 56-1683450

Board Leadership
John Nicols
Chair

CEO
Maryellen Gleason
Interim President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 89.01 three stars
  Financial 84.47 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 07/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The Solve ME/CFS Initiative (formerly known as the CFIDS Association of America) was founded in 1987 and has established itself as the leading charitable organization dedicated to chronic fatigue syndrome (CFS) - also known as myalgic encephalomyelitis (ME) and chronic fatigue and immune dysfunction syndrome (CFIDS). Our mission is to make ME/CFS understood, diagnosable, and treatable by stimulating participatory, patient centered research aimed at the early detection, objective diagnosis and effective treatment of ME/CFS through expanded public, private and commercial investment.

The Solve ME/CFS Initiative (formerly known as the CFIDS Association of America) was founded in 1987 and has established itself as the leading charitable organization dedicated to chronic fatigue syndrome (CFS) - also known as myalgic encephalomyelitis (ME) and chronic fatigue and immune dysfunction syndrome (CFIDS). Our mission is to make ME/CFS understood, diagnosable, and treatable by stimulating participatory, patient centered research aimed at the early detection, objective diagnosis and effective treatment of ME/CFS through expanded public, private and commercial investment.

Impact Information

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Reported Results
Total in 2018
RESEARCH: Number of research studies funded
14
This impact information is current as of January 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

84.47

Accountability & Transparency

four stars

100.00

This rating was published 07/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
74.4%
  Administrative Expenses 13.5%
  Fundraising Expenses 12.0%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.37
  Program Expenses Growth 9.8%
  Liabilities to Assets 19.5%
All data for Financial Performance Metrics calculations was provided by Solve ME/CFS Initiative on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Solve ME/CFS Initiative on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Solve ME/CFS Initiative (CA) 89.01 three stars
The Marfan Foundation (NY) 93.72 four stars
Childhood Apraxia of Speech Association of North America (Apraxia Kids) (PA) 90.75 four stars
Huntington's Disease Society of America (NY) 90.00 four stars
American Liver Foundation (NY) 86.86 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,707,471
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $1,707,471
   Program Service Revenue $0
Total Primary Revenue $1,707,471
   Other Revenue $5,825
TOTAL REVENUE $1,713,296
   
EXPENSES  
   Program Expenses $1,357,320
   Administrative Expenses $169,719
   Fundraising Expenses $269,235
TOTAL FUNCTIONAL EXPENSES $1,796,274
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-82,978
   
Net Assets $674,270

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $439,484 32.4%
Engagement $320,090 23.6%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-06 07/01/2019 89.01 three stars
2017-06 07/01/2018 88.69 three stars
2017-06 04/01/2018 88.34 three stars
2015-12 07/01/2017 85.42 three stars
2014-12 06/01/2016 90.23 four stars
 
CN 2.0
2014-12 12/22/2015 86.50 three stars
2014-12 12/01/2015 86.21 three stars
2013-12 07/01/2015 85.86 three stars
2012-12 10/01/2014 80.93 three stars
2012-12 11/01/2013 80.72 three stars
2011-12 09/01/2012 78.38 two stars
2010-12 12/01/2011 81.11 three stars
2009-12 09/20/2011 81.00 three stars
 
CN 1.0
2009-12 12/22/2010 73.43 two stars
2008-12 02/01/2010 70.58 two stars
2007-12 11/01/2008 93.90 four stars
2006-12 09/01/2007 94.17 four stars
2005-12 11/01/2006 86.36 three stars
2004-12 11/01/2005 72.35 two stars
2003-12 10/01/2004 78.96 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 56-1683450
Name in IRS Master File SOLVE ME CFS INITIATIVE INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (125) Giving information or opinion (see also Advocacy)
(120) Publishing activities
(161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date July, 1991
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$162,447 9.04% Carol Head President

Highly Rated

Charity Name & State Overall Score Overall Rating
Solve ME/CFS Initiative (CA) 89.01 three stars
Doug Flutie Jr. Foundation For Autism (MA) 86.95 three stars
MDS Foundation (NJ) 87.94 three stars
American Liver Foundation (NY) 86.86 three stars
Tuberous Sclerosis Alliance (MD) 92.95 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Solve ME/CFS Initiative
5455 Willshire Boulevard
Suite 1903
Los Angeles, CA 90036
tel: (704) 364-0016
EIN: 56-1683450

Visit Web Site

Board Leadership

John Nicols
Chair

CEO

Maryellen Gleason
Interim President & CEO

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