Disable all preview features

Health : Diseases, Disorders, and Disciplines

Solve ME/CFS Initiative

Working to make ME/CFS widely understood, diagnosable, and treatable

three stars

85.42

5670 Wilshire Blvd. Suite 1800, Room 1815
Los Angeles, CA 90036
tel: (704) 364-0016   Web Site
EIN: 56-1683450

Board Leadership
Victoria Boies
Chair

CEO
Carol Head
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 85.42 three stars
  Financial 80.61 three stars
  Accountability & Transparency 93.00 four stars
This rating was published 07/01/2017 and includes data from FY2015, the most recent 990 received at that time.

The Solve ME/CFS Initiative (formerly known as the CFIDS Association of America) was founded in 1987 and has established itself as the leading charitable organization dedicated to chronic fatigue syndrome (CFS) - also known as myalgic encephalomyelitis (ME) and chronic fatigue and immune dysfunction syndrome (CFIDS). Our mission is to make ME/CFS widely understood, diagnosable, and treatable by stimulating participatory, patient centered research aimed at the early detection, objective diagnosis and effective treatment of ME/CFS through expanded public, private and commercial investment.

The Solve ME/CFS Initiative (formerly known as the CFIDS Association of America) was founded in 1987 and has established itself as the leading charitable organization dedicated to chronic fatigue syndrome (CFS) - also known as myalgic encephalomyelitis (ME) and chronic fatigue and immune dysfunction syndrome (CFIDS). Our mission is to make ME/CFS widely understood, diagnosable, and treatable by stimulating participatory, patient centered research aimed at the early detection, objective diagnosis and effective treatment of ME/CFS through expanded public, private and commercial investment.

Financial

three stars

80.61

Accountability & Transparency

four stars

93.00

This rating was published 07/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
73.1%
  Administrative Expenses 10.6%
  Fundraising Expenses 16.1%
  Fundraising Efficiency $0.14
  Working Capital Ratio (years) 0.71
  Program Expenses Growth 3.0%
  Liabilities to Assets 7.2%
All data for Financial Performance Metrics calculations was provided by Solve ME/CFS Initiative on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Solve ME/CFS Initiative on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Solve ME/CFS Initiative (CA) 85.42 three stars
International OCD Foundation (MA) 85.40 three stars
Childhood Apraxia of Speech Association of North America (PA) 92.22 four stars
Tuberous Sclerosis Alliance (MD) 90.71 four stars
Organization for Autism Research (VA) 95.46 four stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,376,982
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $1,376,982
   Program Service Revenue $0
Total Primary Revenue $1,376,982
   Other Revenue $5,002
TOTAL REVENUE $1,381,984
   
EXPENSES  
   Program Expenses $1,156,995
   Administrative Expenses $243,353
   Fundraising Expenses $243,494
TOTAL FUNCTIONAL EXPENSES $1,643,842
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-261,858
   
Net Assets $1,087,707

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $787,474 68.1%
Engagement $369,521 31.9%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 07/01/2017 85.42 three stars
2014-12 06/01/2016 90.23 four stars
 
CN 2.0
2014-12 12/22/2015 86.50 three stars
2014-12 12/01/2015 86.21 three stars
2013-12 07/01/2015 85.86 three stars
2012-12 10/01/2014 80.93 three stars
2012-12 11/01/2013 80.72 three stars
2011-12 09/01/2012 78.38 two stars
2010-12 12/01/2011 81.11 three stars
2009-12 09/20/2011 81.00 three stars
 
CN 1.0
2009-12 12/22/2010 73.43 two stars
2008-12 02/01/2010 70.58 two stars
2007-12 11/01/2008 93.90 four stars
2006-12 09/01/2007 94.17 four stars
2005-12 11/01/2006 86.36 three stars
2004-12 11/01/2005 72.35 two stars
2003-12 10/01/2004 78.96 two stars
2002-12 11/01/2003 81.02 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 56-1683450
Name in IRS Master File SOLVE ME CFS INITIATIVE INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (125) Giving information or opinion (see also Advocacy)
(120) Publishing activities
(161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date July, 1991
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

We invite you to share your opinions, thoughts, experiences, and stories about this charity here to help inform the decisions of other donors.  
Need more help getting started? Check out our FAQs.
 
This tool is not for questions about Charity Navigator, such as how we derived this charity’s rating. We will happily answer those questions if you contact us directly. Likewise, if you have questions for this charity, then we encourage you to contact the charity directly (we include the charity’s contact information in the upper left-hand corner of this page) since few charities regularly monitor this commenting tool.

Compensation % of Expenses Paid to Title
$171,443 10.42% Carol Head President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Solve ME/CFS Initiative (CA) 85.42 three stars
Interstitial Cystitis Association (VA) 95.34 four stars
National Foundation for Infectious Diseases (MD) 90.58 four stars
Autism Society of America (MD) 88.33 three stars
The Marfan Foundation (NY) 92.72 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Solve ME/CFS Initiative
5670 Wilshire Blvd.
Suite 1800, Room 1815
Los Angeles, CA 90036
tel: (704) 364-0016
EIN: 56-1683450

Visit Web Site

Board Leadership

Victoria Boies
Chair

CEO

Carol Head
President & CEO

[ X ]

Did You Know We Are a Charity, Too?

If even a third of the 7 million people who visited our site last year had donated a dollar to Charity Navigator, we would comfortably meet our annual budget and be able to do what so many of you ask us to do every day--rate more charities!

With the support of users like you, we are currently investing in staff and technology. This will allow us to improve the search and organizational features of our site, making it easier to find the information that matters most to you. We will also continue to enhance our evaluation system and metrics.

So, whether you're a first time visitor or a long time user, we ask for your help in achieving our goal. Your gift of any size is most deeply appreciated! Thank You!

With the support of users like you, we are making it easier to find the info that matters most. Thank you!

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.

Help Center