Health : Patient and Family Support

National Organization for Rare Disorders

Alone we are rare. Together we are strong.®

four stars

100.00

55 Kenosia Avenue Danbury, CT 06813
tel: (203) 744-0100   Web Site
EIN: 13-3223946

Board Leadership
Marshall Summar
Chairman

CEO
Peter Saltonstall
President/CEO

  Score
(out of 100)
Rating
Overall Score & Rating 100.00 four stars
  Financial 100.00 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Impact Information

GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Showing 3 of 4
Total in 2018
Number of policies formally established
12
Average number of dollars given by new donors
24,822
Number of coalition meetings held and attendance
2,000
Number of coalition members
5,000
This impact information is current as of August 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

100.00

Accountability & Transparency

four stars

100.00

This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
86.3%
  Administrative Expenses 9.8%
  Fundraising Expenses 3.8%
  Fundraising Efficiency $0.03
  Working Capital Ratio (years) 1.52
  Program Expenses Growth 22.1%
  Liabilities to Assets 4.1%
All data for Financial Performance Metrics calculations was provided by National Organization for Rare Disorders on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National Organization for Rare Disorders on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $39,395,124
   Federated Campaigns $0
   Membership Dues $1,329,569
   Fundraising Events $1,346,250
   Related Organizations $0
   Government Grants $0
Total Contributions $42,070,943
   Program Service Revenue $5,024,265
Total Primary Revenue $47,095,208
   Other Revenue $27,891
TOTAL REVENUE $47,123,099
   
EXPENSES  
   Program Expenses $30,295,433
   Administrative Expenses $2,363,178
   Fundraising Expenses $1,416,207
TOTAL FUNCTIONAL EXPENSES $34,074,818
   
Payments to Affiliates $0
Excess (or Deficit) for the year $13,048,281
   
Net Assets $48,710,640

Charts

Compensation % of Expenses Paid to Title
$385,121 1.13% Peter Saltonstall President/CEO

Mission

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Organization for Rare Disorders (CT) 100.00 four stars
Ronald McDonald House Charities of Central Florida (FL) 91.85 four stars
Ronald McDonald House Charities® of Greater Washington, DC (DC) 85.65 three stars
Gilda's Club Westchester (NY) 86.76 three stars
Little Red Door Cancer Agency (IN) 93.78 four stars

Compare These Charities (Highly Rated)

Charity Contact Info

National Organization for Rare Disorders
55 Kenosia Avenue
Danbury, CT 06813
tel: (203) 744-0100
fax: (203) 798-2291
EIN: 13-3223946

Visit Web Site

Board Leadership

Marshall Summar
Chairman

CEO

Peter Saltonstall
President/CEO