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Health : Medical Research (Grantmaking/Grants Payable)

Project ALS

Finding & funding a cure for ALS

three stars

89.02

801 Riverside Drive #6G
New York, NY 10032
tel: (855) 900-2257   Web Site
EIN: 13-4019464

Board Leadership
Robert S. Kaplan
Chairman

CEO
Meredith Estess
President

  Score
(out of 100)
Rating
Overall Score & Rating 89.02 three stars
  Financial 85.00 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 10/01/2019 and includes data from FY2018, the most recent 990 received at that time.

Jenifer Estess, her family, and friends, started Project ALS in 1998, when Jenifer was diagnosed with amyotrophic lateral sclerosis (ALS). Upon discovering that there were no effective treatments, Project ALS set out to put medicine into place. The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project ALS has raised over $70 million, currently directing 87% to research programs. The majority of fundraising proceeds goes to support investigations in genetics, drug discovery, stem cells, and disease pathways. The hallmark of Project ALS research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.

Jenifer Estess, her family, and friends, started Project ALS in 1998, when Jenifer was diagnosed with amyotrophic lateral sclerosis (ALS). Upon discovering that there were no effective treatments, Project ALS set out to put medicine into place. The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project ALS has raised over $70 million, currently directing 87% to research programs. The majority of fundraising proceeds goes to support investigations in genetics, drug discovery, stem cells, and disease pathways. The hallmark of Project ALS research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.

Impact Information

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Financial

three stars

85.00

Accountability & Transparency

four stars

96.00

This rating was published 10/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
87.9%
  Administrative Expenses 6.2%
  Fundraising Expenses 5.7%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 0.06
  Program Expenses Growth 12.6%
  Liabilities to Assets 93.4%
All data for Financial Performance Metrics calculations was provided by Project ALS on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Project ALS on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Project ALS (NY) 89.02 three stars
Children's Cancer & Blood Foundation (NY) 85.42 three stars
Sabin Vaccine Institute (DC) 88.94 three stars
Tisch MS Research Center of New York (NY) 90.78 four stars
Foundation for Angelman Syndrome Therapeutics (IL) 92.22 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,033,820
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $2,966,311
   Related Organizations $0
   Government Grants $0
Total Contributions $4,000,131
   Program Service Revenue $0
Total Primary Revenue $4,000,131
   Other Revenue $107,093
TOTAL REVENUE $4,107,224
   
EXPENSES  
   Program Expenses $3,702,926
   Administrative Expenses $267,861
   Fundraising Expenses $210,161
TOTAL FUNCTIONAL EXPENSES $4,180,948
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-73,724
   
Net Assets $253,675

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $3,067,718 82.8%
Education $635,208 17.2%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-07 10/01/2019 89.02 three stars
2017-07 02/01/2019 89.02 three stars
2016-07 11/01/2018 83.01 three stars
2016-07 11/01/2017 82.30 three stars
2015-07 06/01/2016 87.42 three stars
 
CN 2.0
2015-07 04/01/2016 93.79 four stars
2014-07 12/01/2015 77.51 two stars
2014-07 05/01/2015 76.97 two stars
2013-07 02/01/2015 75.72 two stars
2013-07 12/22/2014 75.22 two stars
2012-07 09/01/2013 91.94 four stars
2012-07 08/01/2013 90.54 four stars
2011-07 07/01/2012 92.11 four stars
2010-07 12/23/2011 91.59 four stars
2010-07 11/01/2011 87.70 three stars
2009-07 09/20/2011 77.08 two stars
 
CN 1.0
2009-07 02/01/2011 71.27 two stars
2008-07 04/01/2010 81.49 three stars
2007-07 12/17/2008 75.79 two stars
2006-07 12/01/2007 76.33 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-4019464
Name in IRS Master File PROJECT ALS INC
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(602) Gifts, grants, or loans to other organizations
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date November, 1998
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End July
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • July, 2017
  • July, 2016
  • July, 2015
  • July, 2014
  • July, 2013
Compensation % of Expenses Paid to Title
$177,655 4.24% Meredith Estess Hulbert President
Other Salaries of Note
$177,655 4.24% Valerie Estess Vice President

Highly Rated

Charity Name & State Overall Score Overall Rating
Project ALS (NY) 89.02 three stars
Monell Chemical Senses Center (PA) 86.22 three stars
Diabetes Action Research and Education Foundation (MD) 87.62 three stars
Dystonia Medical Research Foundation (IL) 93.30 four stars
Sabin Vaccine Institute (DC) 88.94 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Project ALS
801 Riverside Drive
#6G
New York, NY 10032
tel: (855) 900-2257
fax: (646) 559-9290
EIN: 13-4019464

Visit Web Site

Board Leadership

Robert S. Kaplan
Chairman

CEO

Meredith Estess
President

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