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Health : Diseases, Disorders, and Disciplines

The Marfan Foundation

Know the signs. Fight for victory.

four stars

93.43

22 Manhasset Avenue Port Washington, NY 11050
tel: (800) 862-7326   Web Site
EIN: 52-1265361

Board Leadership
Cory Eaves
Chair

CEO
Michael L. Weamer
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 93.43 four stars
  Financial 90.72 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 06/01/2020 and includes data from FY2019, the most recent 990 received at that time.

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and other genetic aortic conditions
- We pursue the most innovative research and make sure that it receives proper funding.
- We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
- We provide relentless support to families, caregivers, and healthcare providers.
We will not rest until we've achieved victory - a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and other genetic aortic conditions
- We pursue the most innovative research and make sure that it receives proper funding.
- We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
- We provide relentless support to families, caregivers, and healthcare providers.
We will not rest until we've achieved victory - a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

Impact Information

GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Showing 3 of 4
Total in 2018
Number of groups/individuals benefiting from tools/resources/education materials provided
1,000,000
Number of people who contacted our Help & Resource Center for answers to their questions
3,000
Number of participants attending course/session/workshop
4,100
Total dollar amount of grants awarded
1,500,000
This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

90.72

Accountability & Transparency

four stars

100.00

This rating was published 06/01/2020 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
78.6%
  Administrative Expenses 9.3%
  Fundraising Expenses 12.0%
  Fundraising Efficiency $0.11
  Working Capital Ratio (years) 2.27
  Program Expenses Growth 6.6%
  Liabilities to Assets 4.0%
All data for Financial Performance Metrics calculations was provided by The Marfan Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Marfan Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Marfan Foundation (NY) 93.43 four stars
Histiocytosis Association (NJ) 91.16 four stars
Epilepsy Foundation of Texas (TX) 85.38 three stars
Hemophilia Federation of America (DC) 94.69 four stars
Donate Life America (VA) 89.71 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,494,824
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,922,784
   Related Organizations $0
   Government Grants $0
Total Contributions $4,417,608
   Program Service Revenue $113,490
Total Primary Revenue $4,531,098
   Other Revenue $173,180
TOTAL REVENUE $4,704,278
   
EXPENSES  
   Program Expenses $4,297,887
   Administrative Expenses $497,597
   Fundraising Expenses $670,233
TOTAL FUNCTIONAL EXPENSES $5,465,717
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-761,439
   
Net Assets $11,592,109

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $2,170,862 50.5%
Support $1,390,289 32.3%
Education $736,736 17.1%

Ratings History
The Marfan Foundation has received 5 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-06 06/01/2020 93.43 four stars
2018-06 10/01/2019 93.72 four stars
2017-06 06/01/2018 91.83 four stars
2016-06 07/01/2017 92.72 four stars
2015-06 06/01/2016 94.80 four stars
 
CN 2.0
2014-06 11/01/2015 86.23 three stars
2013-06 06/01/2014 89.70 three stars
2012-06 07/01/2013 96.52 four stars
2011-06 12/20/2012 89.62 three stars
2011-06 03/01/2012 87.15 three stars
2010-06 09/20/2011 81.26 three stars
 
CN 1.0
2010-06 03/01/2011 73.55 two stars
2008-06 05/01/2009 82.77 three stars
2007-06 03/01/2008 95.52 four stars
2006-06 05/01/2007 92.94 four stars
2005-06 06/01/2006 92.72 four stars
2004-06 05/01/2005 92.94 four stars
2003-06 08/01/2004 90.24 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1265361
Name in IRS Master File THE MARFAN FOUNDATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
(124) Study and research (non-scientific)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date November, 1982
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$374,475 6.85% Michael L. Weamer President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
The Marfan Foundation (NY) 93.43 four stars
Epilepsy Foundation of Texas (TX) 85.38 three stars
Tuberous Sclerosis Alliance (MD) 92.95 four stars
Solve ME/CFS Initiative (CA) 89.01 three stars
Southwest Autism Research & Resource Center (AZ) 92.20 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
tel: (800) 862-7326
fax: (516) 883-8040
EIN: 52-1265361

Visit Web Site

Board Leadership

Cory Eaves
Chair

CEO

Michael L. Weamer
President, CEO

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