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Health : Diseases, Disorders, and Disciplines
Board Leadership
James Kane
Chair
CEO
Steve Queior
Chief Executive Officer
|
Organized in 1975, Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers: a toll-free telephone number for information and referrals; a bimonthly newsletter, The Gathered View; publications and audiovisual presentations about PWS; an annual national conference for families and professionals; a nationwide network of local chapters, parents, and professionals; research funding to expand knowledge and treatment options; and representation on the international level. PWS is a complex non-hereditary birth defect resulting from an abnormality on the 15th chromosome.
Organized in 1975, Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers: a toll-free telephone number for information and referrals; a bimonthly newsletter, The Gathered View; publications and audiovisual presentations about PWS; an annual national conference for families and professionals; a nationwide network of local chapters, parents, and professionals; research funding to expand knowledge and treatment options; and representation on the international level. PWS is a complex non-hereditary birth defect resulting from an abnormality on the 15th chromosome.
92.08
85.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
82.9% | |
Administrative Expenses | 11.7% | |
Fundraising Expenses | 5.3% | |
Fundraising Efficiency | $0.06 | |
Working Capital Ratio (years) | 0.93 | |
Program Expenses Growth | 4.2% | |
Liabilities to Assets | 9.3% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Prader-Willi Syndrome Association (USA) (FL) | 88.00 | |
National Fragile X Foundation (VA) | 86.92 | |
The Progeria Research Foundation (MA) | 91.57 | |
The Cornelia de Lange Syndrome Foundation (CT) | 96.66 | |
MiracleFeet (NC) | 96.99 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $1,087,289 |
Federated Campaigns | $0 |
Membership Dues | $29,425 |
Fundraising Events | $93,283 |
Related Organizations | $0 |
Government Grants | $0 |
Total Contributions | $1,209,997 |
Program Service Revenue | $0 |
Total Primary Revenue | $1,209,997 |
Other Revenue | $51,661 |
TOTAL REVENUE | $1,261,658 |
EXPENSES | |
Program Expenses | $1,007,739 |
Administrative Expenses | $141,534 |
Fundraising Expenses | $74,689 |
TOTAL FUNCTIONAL EXPENSES | $1,223,962 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $37,696 |
Net Assets | $1,659,294 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Crisis & Intervention Training | $423,672 | 42.0% |
Distribution of Educational Materials | $229,642 | 22.8% |
Conference for Professionals and Parents | $57,724 | 5.7% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2018-12 | 06/01/2020 | 88.00 | |||||||
2017-12 | 10/01/2019 | 83.93 | |||||||
2017-12 | 05/01/2019 | 84.42 | |||||||
2016-12 | 03/01/2018 | 85.60 | |||||||
2015-12 | 05/01/2017 | 88.23 | |||||||
2014-12 | 06/01/2016 | 86.40 | |||||||
CN 2.0 | |||||||||
2014-12 | 12/22/2015 | 79.89 | |||||||
2013-12 | 12/22/2014 | 80.58 | |||||||
2012-12 | 11/01/2014 | 81.29 | |||||||
2012-12 | 12/01/2013 | 80.23 | |||||||
2011-12 | 02/01/2013 | 89.90 | |||||||
2010-12 | 04/01/2012 | 84.94 | |||||||
2009-12 | 09/20/2011 | 89.15 | |||||||
CN 1.0 | |||||||||
2009-12 | 04/01/2011 | 85.04 | |||||||
2008-12 | 04/01/2010 | 98.25 | |||||||
2007-12 | 12/17/2008 | 89.97 | |||||||
2006-12 | 11/01/2007 | 85.98 | |||||||
2005-12 | 12/01/2006 | 91.79 | |||||||
2004-12 | 12/01/2005 | 83.58 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 41-1306908 |
Name in IRS Master File | PRADER-WILLI SYNDROME ASSOCIATION |
NTEE Code | [Not Provided by IRS] |
NTEE Classification | [Not Provided by IRS] |
NTEE Type | [Not Provided by IRS] |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (125) Giving information or opinion (see also Advocacy) (120) Publishing activities (160) Aid to the handicapped (see also 031) |
Foundation Status | Organization that normally receives no more than one-third of its support from gross investment income and unrelated business income and at the same time more than one-third of its support from contributions, fees, and gross receipts related to exempt purposes. 509(a)(2) |
Deductibility | Contributions are deductible |
Affiliation | Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). |
Group Name | [Not Applicable] |
Ruling Date | September, 1977 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | December |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$91,117 | 7.44% | Stephen Queior | Executive Director |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Prader-Willi Syndrome Association (USA) (FL) | 88.00 | |
The Cornelia de Lange Syndrome Foundation (CT) | 96.66 | |
The Progeria Research Foundation (MA) | 91.57 | |
MiracleFeet (NC) | 96.99 | |
Alpha-1 Foundation (FL) | 93.26 |
This charity has an official representative registered with Charity Navigator.
Prader-Willi Syndrome Association (USA)
8588 Potter Park Drive
Suite 500
Sarasota,
FL 34238
tel: (800) 926-4797
fax: (941) 312-0142
EIN: 41-1306908
James Kane
Chair
Steve Queior
Chief Executive Officer
Charity Navigator
299 Market Street Suite 250
Saddle Brook, NJ 07663
EIN: 13-4148824
BRIDGE ID: 3108588923