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Health : Diseases, Disorders, and Disciplines

National Alopecia Areata Foundation

Supporting those with alopecia areata and funding medical research

four stars

91.48

65 Mitchell Boulevard Suite 200-B
San Rafael, CA 94903
tel: (415) 472-3780   Web Site
EIN: 94-2780249

Board Leadership
Debora Pellicano
Chair

CEO
Dory Kranz
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 91.48 four stars
  Financial 88.64 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 11/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The National Alopecia Areata Foundation (NAAF) supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata. Founded in 1981, NAAF accomplishes this by funding research and research workshops that add to the scientific knowledge about alopecia areata, its causes, and different treatments; providing local support and education for people with alopecia areata and their families; informing the public about alopecia areata; advocating the concerns of people affected alopecia areata; and creating and distributing educational materials to health professionals as well as those affected, so that all may better understand alopecia areata. Alopecia areata is a highly unpredictable, autoimmune skin disease resulting in the loss of hair on the scalp and elsewhere on the body.

The National Alopecia Areata Foundation (NAAF) supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata. Founded in 1981, NAAF accomplishes this by funding research and research workshops that add to the scientific knowledge about alopecia areata, its causes, and different treatments; providing local support and education for people with alopecia areata and their families; informing the public about alopecia areata; advocating the concerns of people affected alopecia areata; and creating and distributing educational materials to health professionals as well as those affected, so that all may better understand alopecia areata. Alopecia areata is a highly unpredictable, autoimmune skin disease resulting in the loss of hair on the scalp and elsewhere on the body.

Financial

three stars

88.64

Accountability & Transparency

four stars

96.00

This rating was published 11/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
82.1%
  Administrative Expenses 6.3%
  Fundraising Expenses 11.4%
  Fundraising Efficiency $0.15
  Working Capital Ratio (years) 1.05
  Program Expenses Growth 3.5%
  Liabilities to Assets 5.3%
All data for Financial Performance Metrics calculations was provided by National Alopecia Areata Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National Alopecia Areata Foundation on recent 990s filed with the IRS.

Constituent Feedback

Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people/communities they serve, may be more effective. We've partnered with GuideStar by Candid to survey organizations about their feedback practices. Nonprofit organizations are encouraged to fill out the How We Listen section of their Candid profile.

Here's how this organization is listening and learning from the people they serve:
How is the organization collecting feedback?
Electronic surveys (by email, tablet, etc), Paper surveys, Community meetings or town halls
How is the organization using feedback?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve
With whom is the organization sharing feedback?
The people we serve, Our staff, Our board, Our funders, Our community partners
What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Describe a recent change in your organization that resulted from feedback.
We implemented a toll free hotline now available to all who need support or information on our services We produced, recorded and aired a "broadening awareness of alopecia areata PSA" featuring one of our star community members Joshua Dobbs, an NFL Quarterback, Aerospace Engineer and Alopecia Advocate Joshua has alopecia areata https://tinyurlcom/JoshDobbsPSA
This Constituent Feedback information is provided to us by Candid. At this time, Constituent Feedback information published on this organization's page has no effect on its star rating per our methodology.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Alopecia Areata Foundation (CA) 91.48 four stars
The Myositis Association (VA) 87.20 three stars
Tuberous Sclerosis Alliance (MD) 88.50 three stars
National MPS Society (NC) 99.16 four stars
Creutzfeldt-Jakob Disease Foundation (OH) 93.90 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,320,015
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $424,636
   Related Organizations $0
   Government Grants $15,000
Total Contributions $1,759,651
   Program Service Revenue $351,065
Total Primary Revenue $2,110,716
   Other Revenue $113,471
TOTAL REVENUE $2,224,187
   
EXPENSES  
   Program Expenses $2,089,910
   Administrative Expenses $157,899
   Fundraising Expenses $315,883
TOTAL FUNCTIONAL EXPENSES $2,563,692
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-339,505
   
Net Assets $2,650,453

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Awareness and Support $1,321,138 63.2%
Medical Research $768,772 36.8%

Ratings History
National Alopecia Areata Foundation has received 7 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 11/01/2019 91.48 four stars
2017-12 10/01/2018 93.29 four stars
2016-12 09/01/2017 91.42 four stars
2015-12 12/01/2016 95.66 four stars
2014-12 06/01/2016 97.17 four stars
 
CN 2.0
2014-12 12/01/2015 95.98 four stars
2013-12 04/01/2015 97.02 four stars
2012-12 10/01/2013 99.08 four stars
2011-12 09/01/2012 88.41 three stars
2010-12 03/01/2012 85.08 three stars
2009-12 09/20/2011 84.06 three stars
 
CN 1.0
2009-12 03/01/2011 73.18 two stars
2008-12 03/01/2010 77.39 two stars
2007-12 06/01/2009 85.45 three stars
2006-12 11/01/2007 82.98 three stars
2005-12 11/01/2006 73.46 two stars
2004-12 11/01/2005 81.67 three stars
2003-12 03/01/2005 96.25 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 94-2780249
Name in IRS Master File NATIONAL ALOPECIA AREATA FOUNDATION
NTEE Code H00
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date April, 1982
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$145,968 5.69% Dorothy Kranz Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
National Alopecia Areata Foundation (CA) 91.48 four stars
Tourette Association of America (NY) 85.23 three stars
American Autoimmune Related Diseases Association (MI) 99.11 four stars
The Marfan Foundation (NY) 93.43 four stars
California Dental Association Foundation (CA) 87.21 three stars

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This charity has an official representative registered with Charity Navigator.

Constituent Feedback

This organization is sharing information on how they communicate with stakeholders to better inform your giving.

Charity Contact Info

National Alopecia Areata Foundation
65 Mitchell Boulevard
Suite 200-B
San Rafael, CA 94903
tel: (415) 472-3780
fax: (415) 480-1800
EIN: 94-2780249

Visit Web Site

Board Leadership

Debora Pellicano
Chair

CEO

Dory Kranz
President & CEO

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