Disable all preview features

Health : Diseases, Disorders, and Disciplines

Jeffrey Modell Foundation

Turning pain, despair and suffering of immunodeficient children and adults into comfort and hope

four stars

97.12

780 Third Avenue New York, NY 10017
tel: (212) 819-0200   Web Site
EIN: 13-3380237

CEO
Frederick Modell
President, Co-Founder

  Score
(out of 100)
Rating
Overall Score & Rating 97.12 four stars
  Financial 95.93 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 04/01/2020 and includes data from FY2018, the most recent 990 received at that time.

The Jeffrey Modell Foundation was established by Vicki and Fred Modell in memory of their son Jeffrey, who died at the age of 15 of pneumonia due to an underlying Primary Immunodeficiency (PI) disease. The Foundation is dedicated to early and precise diagnosis, meaningful treatments, and ultimately cures of the ever increasing known PI Diseases. Our focus is: to affirm our absolute commitment to clinical and basic research in order to better understand and treat PI; to serve as a national and international source for the dissemination of information and education into the diagnosis and treatment of genetic immunodeficiencies; to serve as an advocate on behalf of patients and families to assure their access to excellent and comprehensive care; and to promote public awareness of the PI diseases through programs.

The Jeffrey Modell Foundation was established by Vicki and Fred Modell in memory of their son Jeffrey, who died at the age of 15 of pneumonia due to an underlying Primary Immunodeficiency (PI) disease. The Foundation is dedicated to early and precise diagnosis, meaningful treatments, and ultimately cures of the ever increasing known PI Diseases. Our focus is: to affirm our absolute commitment to clinical and basic research in order to better understand and treat PI; to serve as a national and international source for the dissemination of information and education into the diagnosis and treatment of genetic immunodeficiencies; to serve as an advocate on behalf of patients and families to assure their access to excellent and comprehensive care; and to promote public awareness of the PI diseases through programs.

Impact Information

data icon Looking for Impact Information?

Charity Navigator is collaborating with GuideStar, GlobalGiving, Classy, and ImpactMatters to display impact-related information on our rated profile pages. Each partner collects this data directly from nonprofits and provides updates to Charity Navigator when available.

If you are interested in seeing this charity provide its impact information, please click below. This will indicate your interest and encourage the nonprofit to share data with partners that are currently collecting information.

Financial

four stars

95.93

Accountability & Transparency

four stars

100.00

This rating was published 04/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
90.2%
  Administrative Expenses 5.6%
  Fundraising Expenses 4.1%
  Fundraising Efficiency $0.03
  Working Capital Ratio (years) 3.75
  Program Expenses Growth 4.9%
  Liabilities to Assets < 0.1%
All data for Financial Performance Metrics calculations was provided by Jeffrey Modell Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Jeffrey Modell Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Jeffrey Modell Foundation (NY) 97.12 four stars
Immune Deficiency Foundation (MD) 93.68 four stars
Sjögren's Syndrome Foundation (MD) 89.24 three stars
Cystic Fibrosis Research, Inc. (CA) 96.58 four stars
Glaucoma Research Foundation (CA) 90.35 four stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $4,011,203
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $2,921,500
Total Contributions $6,932,703
   Program Service Revenue $0
Total Primary Revenue $6,932,703
   Other Revenue $500,152
TOTAL REVENUE $7,432,855
   
EXPENSES  
   Program Expenses $6,402,181
   Administrative Expenses $373,007
   Fundraising Expenses $255,886
TOTAL FUNCTIONAL EXPENSES $7,031,074
   
Payments to Affiliates $0
Excess (or Deficit) for the year $401,781
   
Net Assets $25,321,596

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Public Awareness Campaign $5,973,504 93.3%
Basic and Clinical Research Support $428,677 6.7%

Ratings History
Jeffrey Modell Foundation has received 5 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 04/01/2020 97.12 four stars
2017-12 03/01/2019 93.94 four stars
2016-12 05/01/2018 95.08 four stars
2016-12 04/01/2018 94.32 four stars
2015-12 05/01/2017 98.23 four stars
2014-12 06/01/2016 94.82 four stars
 
CN 2.0
2014-12 04/01/2016 84.91 three stars
2013-12 07/01/2015 74.65 two stars
2012-12 05/01/2014 89.76 three stars
2011-12 11/01/2013 91.42 four stars
2011-12 04/01/2013 84.03 three stars
2010-12 02/01/2013 84.43 three stars
2010-12 03/01/2012 71.00 two stars
2009-12 10/01/2011 75.95 two stars
 
CN 1.0
2009-12 02/01/2011 98.92 four stars
2008-12 06/01/2010 85.72 three stars
2007-12 04/01/2009 84.54 three stars
2006-12 04/01/2008 99.18 four stars
2005-12 03/01/2007 99.33 four stars
2004-12 02/01/2006 99.27 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-3380237
Name in IRS Master File JEFFREY MODELL FOUNDATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1987
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$495,000 7.04% Frederick Modell President
Other Salaries of Note
$395,000 5.61% Vicki Modell Vice President
$217,287 3.09% Vanessa Tenembaum Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
Jeffrey Modell Foundation (NY) 97.12 four stars
Dan Marino Foundation (FL) 96.46 four stars
Creutzfeldt-Jakob Disease Foundation (OH) 93.90 four stars
Childhood Apraxia of Speech Association of North America (Apraxia Kids) (PA) 90.75 four stars
The Association for Frontotemporal Degeneration (PA) 99.71 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Jeffrey Modell Foundation
780 Third Avenue
New York, NY 10017
tel: (212) 819-0200
fax: (212) 764-4180
EIN: 13-3380237

Visit Web Site

CEO

Frederick Modell
President, Co-Founder

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.