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Health : Diseases, Disorders, and Disciplines

Histiocytosis Association

A Rare Community

four stars

91.16

332 North Broadway 332 North Broadway
Pitman, NJ 08071
tel: (856) 589-6606   Web Site
EIN: 22-2827069

Board Leadership
Tracy Brown
Chairwoman

CEO
Deanna Fournier
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 91.16 four stars
  Financial 87.50 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure. It is the only organization of its kind, connecting the patient and medical communities to: 1) Grow and share knowledge of histiocytic disorders, 2) Provide critical emotional and educational support to patients and families, and 3) Identify and fund key research initiatives that will lead to a world free of histiocytic disorders.

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure. It is the only organization of its kind, connecting the patient and medical communities to: 1) Grow and share knowledge of histiocytic disorders, 2) Provide critical emotional and educational support to patients and families, and 3) Identify and fund key research initiatives that will lead to a world free of histiocytic disorders.

Financial

three stars

87.50

Accountability & Transparency

four stars

100.00

This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
85.3%
  Administrative Expenses 5.6%
  Fundraising Expenses 9.0%
  Fundraising Efficiency $0.08
  Working Capital Ratio (years) 1.41
  Program Expenses Growth -3.6%
  Liabilities to Assets 17.3%
All data for Financial Performance Metrics calculations was provided by Histiocytosis Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Histiocytosis Association on recent 990s filed with the IRS.

Constituent Feedback

Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people/communities they serve, may be more effective. We've partnered with GuideStar by Candid to survey organizations about their feedback practices. Nonprofit organizations are encouraged to fill out the How We Listen section of their Candid profile.

Here's how this organization is listening and learning from the people they serve:
How is the organization collecting feedback?
Electronic surveys (by email, tablet, etc), Focus groups or interviews (by phone or in person)
How is the organization using feedback?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve
With whom is the organization sharing feedback?
The people we serve, Our staff, Our board, Our funders, Our community partners
What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Describe a recent change in your organization that resulted from feedback.
Although the founder of the Association is well respected feedback led to the conclusion that a new, vibrant leader would benefit the Association As a result, after an exhaustive search a new Executive Director was hired
This Constituent Feedback information is provided to us by Candid. At this time, Constituent Feedback information published on this organization's page has no effect on its star rating per our methodology.

Highly Rated

Charity Name & State Overall Score Overall Rating
Histiocytosis Association (NJ) 91.16 four stars
Epilepsy Foundation (MD) 91.32 four stars
Southwest Autism Research & Resource Center (AZ) 90.50 four stars
American Brain Tumor Association (IL) 90.77 four stars
National Alopecia Areata Foundation (CA) 91.48 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $372,168
   Federated Campaigns $1,479
   Membership Dues $0
   Fundraising Events $848,052
   Related Organizations $0
   Government Grants $0
Total Contributions $1,221,699
   Program Service Revenue $0
Total Primary Revenue $1,221,699
   Other Revenue $88,610
TOTAL REVENUE $1,310,309
   
EXPENSES  
   Program Expenses $982,176
   Administrative Expenses $68,699
   Fundraising Expenses $90,678
TOTAL FUNCTIONAL EXPENSES $1,141,553
   
Payments to Affiliates $0
Excess (or Deficit) for the year $168,756
   
Net Assets $1,699,420

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Initiatives $589,683 60.0%
Education and Outreach $392,493 40.0%

Ratings History
Histiocytosis Association has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 06/01/2021 91.16 four stars
2018-12 02/01/2020 91.16 four stars
2017-12 12/01/2018 90.10 four stars
2016-12 12/22/2017 89.69 three stars
2015-12 11/01/2016 89.55 three stars
2014-12 06/01/2016 88.86 three stars
 
CN 2.0
2014-12 11/01/2015 84.89 three stars
2013-12 09/01/2014 84.09 three stars
2012-12 11/01/2013 82.99 three stars
2011-12 09/01/2012 95.89 four stars
2010-12 10/01/2011 97.27 four stars
2009-12 09/20/2011 89.03 three stars
 
CN 1.0
2009-12 12/01/2010 96.08 four stars
2009-12 11/01/2010 84.88 three stars
2008-09 10/01/2009 96.11 four stars
2007-09 08/01/2008 88.21 three stars
2006-09 05/01/2007 85.80 three stars
2005-09 06/01/2006 88.20 three stars
2004-09 05/01/2005 69.83 one star

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-2827069
Name in IRS Master File HISTIOCYTOSIS ASSOCIATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1988
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$83,797 7.34% Jeffrey Toughill President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Histiocytosis Association (NJ) 91.16 four stars
The Glaucoma Foundation (NY) 92.33 four stars
Childhood Apraxia of Speech Association of North America (Apraxia Kids) (PA) 90.75 four stars
National MPS Society (NC) 99.16 four stars
National Headache Foundation (IL) 86.48 three stars

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This charity has an official representative registered with Charity Navigator.

Constituent Feedback

This organization is sharing information on how they communicate with stakeholders to better inform your giving.

Charity Contact Info

Histiocytosis Association
332 North Broadway
332 North Broadway
Pitman, NJ 08071
tel: (856) 589-6606
fax: (856) 589-6614
EIN: 22-2827069

Visit Web Site

Board Leadership

Tracy Brown
Chairwoman

CEO

Deanna Fournier
Executive Director

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