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Health : Diseases, Disorders, and Disciplines

Histiocytosis Association

A Rare Community

three stars

89.69

332 North Broadway Pitman, NJ 08071
tel: (856) 589-6606   Web Site
EIN: 22-2827069

Board Leadership
James Hassan
Chairman

CEO
Jeffrey M. Toughill
President and CEO

  Score
(out of 100)
Rating
Overall Score & Rating 89.69 three stars
  Financial 85.42 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 12/22/2017 and includes data from FY2016, the most recent 990 received at that time.

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure. It is the only organization of its kind, connecting the patient and medical communities to: 1) Grow and share knowledge of histiocytic disorders, 2) Provide critical emotional and educational support to patients and families, and 3) Identify and fund key research initiatives that will lead to a world free of histiocytic disorders.

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure. It is the only organization of its kind, connecting the patient and medical communities to: 1) Grow and share knowledge of histiocytic disorders, 2) Provide critical emotional and educational support to patients and families, and 3) Identify and fund key research initiatives that will lead to a world free of histiocytic disorders.

Results Information

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This results data is current as of November 2017, when it was provided to us by GuideStar. Results information published on this organization's rating page has no effect on its rating at this time. data iconLearn More

Financial

three stars

85.42

Accountability & Transparency

four stars

100.00

This rating was published 12/22/2017 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
85.2%
  Administrative Expenses 5.4%
  Fundraising Expenses 9.2%
  Fundraising Efficiency $0.09
  Working Capital Ratio (years) 0.92
  Program Expenses Growth -0.6%
  Liabilities to Assets 13.5%
All data for Financial Performance Metrics calculations was provided by Histiocytosis Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Histiocytosis Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Histiocytosis Association (NJ) 89.69 three stars
The Association for Frontotemporal Degeneration (PA) 94.52 four stars
Angiogenesis Foundation (MA) 86.24 three stars
Asthma and Allergy Foundation of America (MD) 88.60 three stars
Doug Flutie Jr. Foundation For Autism (MA) 86.09 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $661,623
   Federated Campaigns $6,114
   Membership Dues $0
   Fundraising Events $584,375
   Related Organizations $0
   Government Grants $0
Total Contributions $1,252,112
   Program Service Revenue $0
Total Primary Revenue $1,252,112
   Other Revenue $38,614
TOTAL REVENUE $1,290,726
   
EXPENSES  
   Program Expenses $1,096,628
   Administrative Expenses $70,049
   Fundraising Expenses $123,548
TOTAL FUNCTIONAL EXPENSES $1,290,225
   
Payments to Affiliates $0
Excess (or Deficit) for the year $501
   
Net Assets $1,341,295

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Initiatives $653,983 59.6%
Education and Outreach $442,645 40.4%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 12/22/2017 89.69 three stars
2015-12 11/01/2016 89.55 three stars
2014-12 06/01/2016 88.86 three stars
 
CN 2.0
2014-12 11/01/2015 84.89 three stars
2013-12 09/01/2014 84.09 three stars
2012-12 11/01/2013 82.99 three stars
2011-12 09/01/2012 95.89 four stars
2010-12 10/01/2011 97.27 four stars
2009-12 09/20/2011 89.03 three stars
 
CN 1.0
2009-12 12/01/2010 96.08 four stars
2009-12 11/01/2010 84.88 three stars
2008-09 10/01/2009 96.11 four stars
2007-09 08/01/2008 88.21 three stars
2006-09 05/01/2007 85.80 three stars
2005-09 06/01/2006 88.20 three stars
2004-09 05/01/2005 69.83 one star

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-2827069
Name in IRS Master File HISTIOCYTOSIS ASSOCIATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1988
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$82,301 6.37% Jeffrey Toughill President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Histiocytosis Association (NJ) 89.69 three stars
Interstitial Cystitis Association (VA) 95.34 four stars
American Brain Tumor Association (IL) 88.36 three stars
Solve ME/CFS Initiative (CA) 85.42 three stars
Glaucoma Research Foundation (CA) 91.98 four stars

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Charity Contact Info

Histiocytosis Association
332 North Broadway
Pitman, NJ 08071
tel: (856) 589-6606
fax: (856) 589-6614
EIN: 22-2827069

Visit Web Site

Board Leadership

James Hassan
Chairman

CEO

Jeffrey M. Toughill
President and CEO

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