Health : Diseases, Disorders, and Disciplines

National MPS Society

Support for families. Research for a cure.

four stars

99.01

4220 Apex Highway Suite 140
Durham, NC 27713
tel: (877) 677-1001   Web Site
EIN: 11-2734849

Board Leadership
Lisa Todd
Chair

CEO
Terri Klein
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 99.01 four stars
  Financial 98.60 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 11/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The National MPS Society exists to find cures for MPS (Mucopolysaccharidoses) and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Since 1974 the Society has supported individuals and families affected with MPS and related diseases. MPS and related diseases are genetic lysosomal storage diseases caused by the body's inability to produce specific enzymes. While the symptoms of MPS and related diseases may vary from one syndrome to another, there are many similarities. Affected individuals often have mental retardation, cloudy corneas, short stature, stiff joints, incontinence, speech and hearing impairment, chronic runny nose, hernia, heart disease, hyperactivity, depression, pain and a dramatically shortened life span.

The National MPS Society exists to find cures for MPS (Mucopolysaccharidoses) and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Since 1974 the Society has supported individuals and families affected with MPS and related diseases. MPS and related diseases are genetic lysosomal storage diseases caused by the body's inability to produce specific enzymes. While the symptoms of MPS and related diseases may vary from one syndrome to another, there are many similarities. Affected individuals often have mental retardation, cloudy corneas, short stature, stiff joints, incontinence, speech and hearing impairment, chronic runny nose, hernia, heart disease, hyperactivity, depression, pain and a dramatically shortened life span.

Impact Information

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This impact information is current as of January 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

98.60

Accountability & Transparency

four stars

100.00

This rating was published 11/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
80.1%
  Administrative Expenses 12.0%
  Fundraising Expenses 7.7%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.38
  Program Expenses Growth 20.2%
  Liabilities to Assets 0.5%
All data for Financial Performance Metrics calculations was provided by National MPS Society on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National MPS Society on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $766,404
   Federated Campaigns $41,008
   Membership Dues $3,320
   Fundraising Events $713,426
   Related Organizations $0
   Government Grants $0
Total Contributions $1,524,158
   Program Service Revenue $273,422
Total Primary Revenue $1,797,580
   Other Revenue $19,110
TOTAL REVENUE $1,816,690
   
EXPENSES  
   Program Expenses $1,785,816
   Administrative Expenses $217,932
   Fundraising Expenses $156,693
TOTAL FUNCTIONAL EXPENSES $2,160,441
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-343,751
   
Net Assets $3,735,368

Charts

Compensation % of Expenses Paid to Title
$112,245 5.19% Terri Klein CEO, President

Mission

The National MPS Society exists to find cures for MPS (Mucopolysaccharidoses) and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Since 1974 the Society has supported individuals and families affected with MPS and related diseases. MPS and related diseases are genetic lysosomal storage diseases caused by the body's inability to produce specific enzymes. While the symptoms of MPS and related diseases may vary from one syndrome to another, there are many similarities. Affected individuals often have mental retardation, cloudy corneas, short stature, stiff joints, incontinence, speech and hearing impairment, chronic runny nose, hernia, heart disease, hyperactivity, depression, pain and a dramatically shortened life span.

Highly Rated

Charity Name & State Overall Score Overall Rating
National MPS Society (NC) 99.01 four stars
The Glaucoma Foundation (NY) 86.30 three stars
MDS Foundation (NJ) 87.94 three stars
Hemophilia Federation of America (DC) 96.46 four stars
Beyond Celiac (PA) 89.14 three stars

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Charity Contact Info

National MPS Society
4220 Apex Highway
Suite 140
Durham, NC 27713
tel: (877) 677-1001
fax: (919) 806-2055
EIN: 11-2734849

Mail donations to:
P.O. Box 14686
Durham, NC 27709

Visit Web Site

Board Leadership

Lisa Todd
Chair

CEO

Terri Klein
Executive Director