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Health : Diseases, Disorders, and Disciplines
Board Leadership
John Seymour
Chair
CEO
John Boyle
President, CEO
|
The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.
The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.
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92.01
96.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
84.4% | |
Administrative Expenses | 10.9% | |
Fundraising Expenses | 4.6% | |
Fundraising Efficiency | $0.04 | |
Working Capital Ratio (years) | 1.20 | |
Program Expenses Growth | 1.2% | |
Liabilities to Assets | 6.7% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Immune Deficiency Foundation (MD) | 93.68 | |
Epilepsy Foundation (MD) | 91.32 | |
Donate Life America (VA) | 92.23 | |
Hydrocephalus Association (MD) | 88.38 | |
Organization for Autism Research (VA) | 95.71 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $3,580,597 |
Federated Campaigns | $0 |
Membership Dues | $0 |
Fundraising Events | $560,220 |
Related Organizations | $0 |
Government Grants | $1,164,435 |
Total Contributions | $5,305,252 |
Program Service Revenue | $544,376 |
Total Primary Revenue | $5,849,628 |
Other Revenue | $501,130 |
TOTAL REVENUE | $6,350,758 |
EXPENSES | |
Program Expenses | $5,434,817 |
Administrative Expenses | $644,241 |
Fundraising Expenses | $330,725 |
TOTAL FUNCTIONAL EXPENSES | $6,409,783 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $-59,025 |
Net Assets | $8,675,670 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Medical Outreach, Education, and Survey Research | $1,863,957 | 34.3% |
Patient and Family Education | $1,846,376 | 34.0% |
Patient Advocacy Services and Individualized Assistance | $730,547 | 13.4% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2018-12 | 12/01/2019 | 93.68 | |||||||
2017-12 | 04/01/2019 | 97.17 | |||||||
2016-12 | 03/01/2018 | 95.25 | |||||||
2015-12 | 05/01/2017 | 97.17 | |||||||
2014-12 | 06/01/2016 | 95.47 | |||||||
CN 2.0 | |||||||||
2014-12 | 11/01/2015 | 93.77 | |||||||
2013-12 | 05/01/2015 | 97.03 | |||||||
2012-12 | 03/01/2014 | 98.98 | |||||||
2011-12 | 02/01/2013 | 89.75 | |||||||
2010-12 | 03/01/2012 | 92.16 | |||||||
2009-12 | 09/20/2011 | 87.23 | |||||||
CN 1.0 | |||||||||
2009-12 | 06/01/2011 | 98.62 | |||||||
2008-12 | 07/01/2010 | 76.29 | |||||||
2007-12 | 05/01/2009 | 76.29 | |||||||
2006-12 | 04/01/2008 | 82.20 | |||||||
2005-12 | 04/01/2007 | 79.74 | |||||||
2004-12 | 05/01/2006 | 85.88 | |||||||
2003-12 | 07/01/2005 | 89.84 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 52-1214782 |
Name in IRS Master File | IMMUNE DEFICIENCY FOUNDATION |
NTEE Code | H9C |
NTEE Classification | [Not Provided by IRS] |
NTEE Type | [Not Provided by IRS] |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (161) Scientific research (diseases) |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Central - the organization is a central type organization (no group exemption) of a National, Regional or Geographic grouping of organizations. |
Group Name | [Not Applicable] |
Ruling Date | April, 1986 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | December |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$181,000 | 2.82% | John G. Boyle | President, CEO |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Immune Deficiency Foundation (MD) | 93.68 | |
Children and Adults with Attention-Deficit/Hyperactivity Disorder (MD) | 88.45 | |
Donate Life America (VA) | 92.23 | |
Brain Aneurysm Foundation (MA) | 85.52 | |
The Association for Frontotemporal Degeneration (PA) | 99.71 |
This charity has an official representative registered with Charity Navigator.
Immune Deficiency Foundation
110 West Road
Suite 300
Towson,
MD 21204
tel: (800) 296-4433
fax: (410) 321-9165
EIN: 52-1214782
John Seymour
Chair
John Boyle
President, CEO
Charity Navigator
299 Market Street Suite 250
Saddle Brook, NJ 07663
EIN: 13-4148824
BRIDGE ID: 3108588923