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Health : Diseases, Disorders, and Disciplines

Immune Deficiency Foundation

Improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases

four stars

95.47

110 West Road Suite 300
Towson, MD 21204
tel: (800) 296-4433   Web Site
EIN: 52-1214782

Board Leadership
John Seymour
Chair

CEO
Marcia Boyle
President, Founder

  Score
(out of 100)
Rating
Overall Score & Rating 95.47 four stars
  Financial 95.01 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

four stars

95.01

Accountability & Transparency

four stars

96.00

This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
86.4%
  Administrative Expenses 10.8%
  Fundraising Expenses 2.6%
  Fundraising Efficiency $0.02
  Working Capital Ratio (years) 1.53
  Program Expenses Growth 1.0%
  Liabilities to Assets 4.6%
All data for Financial Performance Metrics calculations was provided by Immune Deficiency Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Immune Deficiency Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Immune Deficiency Foundation (MD) 95.47 four stars
Jeffrey Modell Foundation (NY) 94.82 four stars
The Marfan Foundation (NY) 94.80 four stars
Huntington's Disease Society of America (NY) 91.37 four stars
Organization for Autism Research (VA) 95.95 four stars

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The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $5,980,682
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $488,026
   Related Organizations $0
   Government Grants $560,442
Total Contributions $7,029,150
   Program Service Revenue $24,180
Total Primary Revenue $7,053,330
   Other Revenue $18,633
TOTAL REVENUE $7,071,963
   
EXPENSES  
   Program Expenses $5,183,517
   Administrative Expenses $668,537
   Fundraising Expenses $191,588
TOTAL FUNCTIONAL EXPENSES $6,043,642
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,028,321
   
Net Assets $8,535,570

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Medical Advocacy and Education $1,887,382 36.4%
Patient Education $1,713,449 33.1%
Advocacy Education $645,267 12.4%

Ratings History
Immune Deficiency Foundation has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2014-12 06/01/2016 95.47 four stars
 
CN 2.0
2014-12 11/01/2015 93.77 four stars
2013-12 05/01/2015 97.03 four stars
2012-12 03/01/2014 98.98 four stars
2011-12 02/01/2013 89.75 three stars
2010-12 03/01/2012 92.16 four stars
2009-12 09/20/2011 87.23 three stars
 
CN 1.0
2009-12 06/01/2011 98.62 four stars
2008-12 07/01/2010 76.29 two stars
2007-12 05/01/2009 76.29 two stars
2006-12 04/01/2008 82.20 three stars
2005-12 04/01/2007 79.74 two stars
2004-12 05/01/2006 85.88 three stars
2003-12 07/01/2005 89.84 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1214782
Name in IRS Master File IMMUNE DEFICIENCY FOUNDATION
NTEE Code H9C
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a central type organization (no group exemption) of a National, Regional or Geographic grouping of organizations.
Group Name [Not Applicable]
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011
  • December, 2010

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$204,438 3.38% Marcia Boyle President

The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.

Highly Rated

Charity Name & State Overall Score Overall Rating
Immune Deficiency Foundation (MD) 95.47 four stars
Epilepsy Foundation of Texas (TX) 93.98 four stars
Crohn's & Colitis Foundation of America (NY) 87.25 three stars
Tuberous Sclerosis Alliance (MD) 87.24 three stars
Glaucoma Research Foundation (CA) 87.62 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Immune Deficiency Foundation
110 West Road
Suite 300
Towson, MD 21204
tel: (800) 296-4433
fax: (410) 321-9165
EIN: 52-1214782

Visit Web Site

Board Leadership

John Seymour
Chair

CEO

Marcia Boyle
President, Founder

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