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Health : Diseases, Disorders, and Disciplines

Immune Deficiency Foundation

Improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases

four stars

93.68

110 West Road Suite 300
Towson, MD 21204
tel: (800) 296-4433   Web Site
EIN: 52-1214782

Board Leadership
John Seymour
Chair

CEO
John Boyle
President, CEO

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 93.68 four stars
  Financial 92.01 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 12/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Why isn't this based on more recent data?

The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.

The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.

Impact Information

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Financial

four stars

92.01

Accountability & Transparency

four stars

96.00

This rating was published 12/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 84.4%
  Administrative Expenses 10.9%
  Fundraising Expenses 4.6%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 1.20
  Program Expenses Growth 1.2%
  Liabilities to Assets 6.7%
All data for Financial Performance Metrics calculations was provided by Immune Deficiency Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Immune Deficiency Foundation on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Immune Deficiency Foundation (MD) 93.68 four stars
Epilepsy Foundation (MD) 91.32 four stars
Donate Life America (VA) 92.23 four stars
Hydrocephalus Association (MD) 88.38 three stars
Organization for Autism Research (VA) 95.71 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,580,597
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $560,220
   Related Organizations $0
   Government Grants $1,164,435
Total Contributions $5,305,252
   Program Service Revenue $544,376
Total Primary Revenue $5,849,628
   Other Revenue $501,130
TOTAL REVENUE $6,350,758
   
EXPENSES  
   Program Expenses $5,434,817
   Administrative Expenses $644,241
   Fundraising Expenses $330,725
TOTAL FUNCTIONAL EXPENSES $6,409,783
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-59,025
   
Net Assets $8,675,670

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Medical Outreach, Education, and Survey Research $1,863,957 34.3%
Patient and Family Education $1,846,376 34.0%
Patient Advocacy Services and Individualized Assistance $730,547 13.4%

Ratings History
Immune Deficiency Foundation has received 7 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 12/01/2019 93.68 four stars
2017-12 04/01/2019 97.17 four stars
2016-12 03/01/2018 95.25 four stars
2015-12 05/01/2017 97.17 four stars
2014-12 06/01/2016 95.47 four stars
 
CN 2.0
2014-12 11/01/2015 93.77 four stars
2013-12 05/01/2015 97.03 four stars
2012-12 03/01/2014 98.98 four stars
2011-12 02/01/2013 89.75 three stars
2010-12 03/01/2012 92.16 four stars
2009-12 09/20/2011 87.23 three stars
 
CN 1.0
2009-12 06/01/2011 98.62 four stars
2008-12 07/01/2010 76.29 two stars
2007-12 05/01/2009 76.29 two stars
2006-12 04/01/2008 82.20 three stars
2005-12 04/01/2007 79.74 two stars
2004-12 05/01/2006 85.88 three stars
2003-12 07/01/2005 89.84 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1214782
Name in IRS Master File IMMUNE DEFICIENCY FOUNDATION
NTEE Code H9C
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a central type organization (no group exemption) of a National, Regional or Geographic grouping of organizations.
Group Name [Not Applicable]
Ruling Date April, 1986
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$181,000 2.82% John G. Boyle President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Immune Deficiency Foundation (MD) 93.68 four stars
Children and Adults with Attention-Deficit/Hyperactivity Disorder (MD) 88.45 three stars
Donate Life America (VA) 92.23 four stars
Brain Aneurysm Foundation (MA) 85.52 three stars
The Association for Frontotemporal Degeneration (PA) 99.71 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Immune Deficiency Foundation
110 West Road
Suite 300
Towson, MD 21204
tel: (800) 296-4433
fax: (410) 321-9165
EIN: 52-1214782

Visit Web Site

Board Leadership

John Seymour
Chair

CEO

John Boyle
President, CEO

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