Health : Diseases, Disorders, and Disciplines

Cystic Fibrosis Foundation

Adding tomorrows every day

four stars

98.21

4550 Montgomery Avenue Suite 1100N
Bethesda, MD 20814
tel: (800) 344-4823   Web Site
EIN: 13-1930701

Board Leadership
Catherine McCloud
Chair

CEO
Preston W. Campbell, III, M.D.
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 98.21 four stars
  Financial 97.47 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 08/01/2019 and includes data from FY2017, the most recent 990 received at that time.

The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.

The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.

Impact Information

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Financial

four stars

97.47

Accountability & Transparency

four stars

100.00

This rating was published 08/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
84.9%
  Administrative Expenses 7.6%
  Fundraising Expenses 7.3%
  Fundraising Efficiency $0.19
  Working Capital Ratio (years) 13.75
  Program Expenses Growth 13.4%
  Liabilities to Assets 4.8%
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Foundation on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $25,813,857
   Federated Campaigns $788,902
   Membership Dues $0
   Fundraising Events $84,047,514
   Related Organizations $0
   Government Grants $0
Total Contributions $110,650,273
   Program Service Revenue $4,098,962
Total Primary Revenue $114,749,235
   Other Revenue $170,182,945
TOTAL REVENUE $284,932,180
   
EXPENSES (Adjusted)  
   Program Expenses $248,140,999
   Administrative Expenses $28,791,003
   Fundraising Expenses $25,284,847
TOTAL FUNCTIONAL EXPENSES $302,216,849
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-17,284,669
   
Net Assets $4,194,186,065

Charts

Compensation % of Expenses Paid to Title Compensation from Affiliates
$805,765 0.26% Preston Campbell President & CEO $396,810
Other Salaries of Note
$1,197,052 0.39% Jack Mahler Chief Investment Officer --
$383,094 0.12% Robert J. Beall Former CEO $55,949

Mission

The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Foundation (MD) 98.21 four stars
The Boomer Esiason Foundation (NY) 91.46 four stars
Cure SMA (IL) 90.45 four stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
FSH Society (MA) 93.11 four stars

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Note: This rating represents consolidated financial data for these organizations:

  • Cystic Fibrosis Foundation - Headquarters
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  • Cystic Fibrosis Foundation Therapeutics (91-2059167)

Charity Contact Info

Cystic Fibrosis Foundation
4550 Montgomery Avenue
Suite 1100N
Bethesda, MD 20814
tel: (800) 344-4823
fax: (301) 951-6378
EIN: 13-1930701

Visit Web Site

Board Leadership

Catherine McCloud
Chair

CEO

Preston W. Campbell, III, M.D.
President & CEO