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Health : Diseases, Disorders, and Disciplines

Spondylitis Association of America

Improving the lives of the spondylitis community

four stars

97.03

16360 Roscoe Boulevard Suite 100
Van Nuys, CA 91406
tel: (800) 777-8189   Web Site
EIN: 95-3890767

Board Leadership
Michael Pianin
Chair

CEO
Cassie Shafer
CEO

  Score
(out of 100)
Rating
Overall Score & Rating 97.03 four stars
  Financial 95.81 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 06/01/2019 and includes data from FY2018, the most recent 990 received at that time.

Spondylitis Association of America (SAA) is the only nonprofit organization in the US dedicating 100% of its resources to improving the lives of the spondylitis community. SAA focuses on funding and promoting medical research, advancing education, providing extensive supportive programs and aggressively advocating on behalf of all those affected by spondylitis. We aim to be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest. Ankylosing spondylitis (AS) is a form of arthritis that primarily affects the spine, although other joints can become involved. It causes inflammation of the spinal joints (vertebrae) that can lead to severe, chronic pain and discomfort. AS is the primary disease in the group of diseases known as Spondylitis, Spondyloarthropathy or Spondyloarthritis.

Spondylitis Association of America (SAA) is the only nonprofit organization in the US dedicating 100% of its resources to improving the lives of the spondylitis community. SAA focuses on funding and promoting medical research, advancing education, providing extensive supportive programs and aggressively advocating on behalf of all those affected by spondylitis. We aim to be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest. Ankylosing spondylitis (AS) is a form of arthritis that primarily affects the spine, although other joints can become involved. It causes inflammation of the spinal joints (vertebrae) that can lead to severe, chronic pain and discomfort. AS is the primary disease in the group of diseases known as Spondylitis, Spondyloarthropathy or Spondyloarthritis.

Impact Information

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This impact information is current as of October 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

95.81

Accountability & Transparency

four stars

100.00

This rating was published 06/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
79.1%
  Administrative Expenses 15.4%
  Fundraising Expenses 5.3%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 2.34
  Program Expenses Growth 13.4%
  Liabilities to Assets 1.5%
All data for Financial Performance Metrics calculations was provided by Spondylitis Association of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Spondylitis Association of America on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Spondylitis Association of America (CA) 97.03 four stars
Arthritis Foundation, National Office (GA) 88.14 three stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,635,511
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,635,511
   Program Service Revenue $5,375
Total Primary Revenue $2,640,886
   Other Revenue $41,534
TOTAL REVENUE $2,682,420
   
EXPENSES  
   Program Expenses $1,489,572
   Administrative Expenses $261,767
   Fundraising Expenses $83,888
TOTAL FUNCTIONAL EXPENSES $1,835,227
   
Payments to Affiliates $0
Excess (or Deficit) for the year $847,193
   
Net Assets $3,504,463

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient Conferences, Education, and Support $597,108 40.1%
Awareness and Support Groups $252,529 17.0%
Physician Education $160,566 10.8%

Ratings History
Spondylitis Association of America has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-06 06/01/2019 97.03 four stars
2017-06 08/01/2018 91.90 four stars
2016-06 08/01/2017 91.74 four stars
2015-06 08/01/2016 92.50 four stars
2015-06 06/01/2016 91.98 four stars
 
CN 2.0
2014-06 10/01/2015 89.69 three stars
2014-06 09/01/2015 89.30 three stars
2013-06 11/01/2014 91.04 four stars
2012-06 10/01/2013 87.76 three stars
2011-06 09/01/2012 94.16 four stars
2010-06 09/20/2011 98.19 four stars
 
CN 1.0
2009-06 09/01/2010 93.62 four stars
2008-06 09/01/2009 98.26 four stars
2007-06 10/01/2008 89.46 three stars
2006-06 09/01/2007 98.24 four stars
2005-06 03/01/2006 92.40 four stars
2004-06 09/01/2005 95.45 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 95-3890767
Name in IRS Master File SPONDYLITIS ASSOCIATION OF AMERICA
NTEE Code G55
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
(995) Described in section 509(a)(2) of the Code
Foundation Status Organization that normally receives no more than one-third of its support from gross investment income and unrelated business income and at the same time more than one-third of its support from contributions, fees, and gross receipts related to exempt purposes.  509(a)(2)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1984
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$53,958 2.94% Cassie Shafer Chief Executive Officer
Other Salaries of Note
$121,498 6.62% Laurie Savage Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
Spondylitis Association of America (CA) 97.03 four stars
Arthritis Foundation, National Office (GA) 88.14 three stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Spondylitis Association of America
16360 Roscoe Boulevard
Suite 100
Van Nuys, CA 91406
tel: (800) 777-8189
fax: (818) 892-1611
EIN: 95-3890767

Visit Web Site

Board Leadership

Michael Pianin
Chair

CEO

Cassie Shafer
CEO

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