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Health : Diseases, Disorders, and Disciplines

Spondylitis Association of America

Improving the lives of the spondylitis community

99.27

16430 Ventura Boulevard Suite 300
Encino, CA 91436
tel: (800) 777-8189   Web Site
EIN: 95-3890767

Board Leadership
Michael Pianin
Board Chair

CEO
Cassie Shafer
Chief Executive Officer

Charity Navigator

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  Score
(out of 100)
Rating
Overall Score & Rating 99.27
  Financial 98.97
  Accountability & Transparency 100.00
This rating was published 08/03/2021 and includes data from FY2020, the most recent 990 received at that time.

Spondylitis Association of America (SAA) is the only nonprofit organization in the US dedicating 100% of its resources to improving the lives of the spondylitis community. SAA focuses on funding and promoting medical research, advancing education, providing extensive supportive programs and aggressively advocating on behalf of all those affected by spondylitis. We aim to be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest. Ankylosing spondylitis (AS) is a form of arthritis that primarily affects the spine, although other joints can become involved. It causes inflammation of the spinal joints (vertebrae) that can lead to severe, chronic pain and discomfort. AS is the primary disease in the group of diseases known as Spondylitis, Spondyloarthropathy or Spondyloarthritis.

Spondylitis Association of America (SAA) is the only nonprofit organization in the US dedicating 100% of its resources to improving the lives of the spondylitis community. SAA focuses on funding and promoting medical research, advancing education, providing extensive supportive programs and aggressively advocating on behalf of all those affected by spondylitis. We aim to be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest. Ankylosing spondylitis (AS) is a form of arthritis that primarily affects the spine, although other joints can become involved. It causes inflammation of the spinal joints (vertebrae) that can lead to severe, chronic pain and discomfort. AS is the primary disease in the group of diseases known as Spondylitis, Spondyloarthropathy or Spondyloarthritis.

Financial

98.97

Accountability & Transparency

100.00

This rating was published 08/03/2021 and includes data from FY2020, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
81.4%
  Administrative Expenses 13.7%
  Fundraising Expenses 4.7%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 1.83
  Program Expenses Growth 19.1%
  Liabilities to Assets 9.5%
All data for Financial Performance Metrics calculations was provided by Spondylitis Association of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Spondylitis Association of America on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Spondylitis Association of America (CA) 99.27
Arthritis Foundation, National Office (GA) 88.21

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,181,281
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,181,281
   Program Service Revenue $7,647
Total Primary Revenue $2,188,928
   Other Revenue $23,359
TOTAL REVENUE $2,212,287
   
EXPENSES  
   Program Expenses $1,670,724
   Administrative Expenses $274,015
   Fundraising Expenses $103,271
TOTAL FUNCTIONAL EXPENSES $2,048,010
   
Payments to Affiliates $0
Excess (or Deficit) for the year $164,277
   
Net Assets $3,662,192

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient Conferences, Education, and Support $727,611 43.6%
Physicians Education - COVID-19, Rheumatology $301,025 18.0%
Spondyloarthritis Research $228,639 13.7%

Ratings History
Spondylitis Association of America has received 6 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2020-06 08/03/2021 99.27
2019-06 04/01/2020 98.98
2018-06 06/01/2019 97.03
2017-06 08/01/2018 91.90
2016-06 08/01/2017 91.74
2015-06 08/01/2016 92.50
2015-06 06/01/2016 91.98
 
CN 2.0
2014-06 10/01/2015 89.69
2014-06 09/01/2015 89.30
2013-06 11/01/2014 91.04
2012-06 10/01/2013 87.76
2011-06 09/01/2012 94.16
2010-06 09/20/2011 98.19
 
CN 1.0
2009-06 09/01/2010 93.62
2008-06 09/01/2009 98.26
2007-06 10/01/2008 89.46
2006-06 09/01/2007 98.24
2005-06 03/01/2006 92.40
2004-06 09/01/2005 95.45

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 95-3890767
Name in IRS Master File SPONDYLITIS ASSOCIATION OF AMERICA
NTEE Code G55
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
(995) Described in section 509(a)(2) of the Code
Foundation Status Organization that normally receives no more than one-third of its support from gross investment income and unrelated business income and at the same time more than one-third of its support from contributions, fees, and gross receipts related to exempt purposes.  509(a)(2)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1984
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$189,454 9.25% Cassie Shafer Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Spondylitis Association of America (CA) 99.27
Arthritis Foundation, National Office (GA) 88.21

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Spondylitis Association of America
16430 Ventura Boulevard
Suite 300
Encino, CA 91436
tel: (800) 777-8189
fax: (818) 892-1611
EIN: 95-3890767

Visit Web Site

Board Leadership

Michael Pianin
Board Chair

CEO

Cassie Shafer
Chief Executive Officer

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