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Health : Diseases, Disorders, and Disciplines

Hunter's Hope Foundation

Increasing public awareness of leukodystrophies

four stars

90.45

6368 West Quaker Street P.O. Box 643
Orchard Park, NY 14127
tel: (716) 667-1200   Web Site
EIN: 16-1552315

Board Leadership
Jill Kelly
Chairwoman

CEO
Jacque Waggoner
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 90.45 four stars
  Financial 88.45 three stars
  Accountability & Transparency 93.00 four stars
This rating was published 11/01/2019 and includes data from FY2018, the most recent 990 received at that time.

Hunter's Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses. Accordingly, our mission is four-fold: to broaden public awareness of Krabbe Disease and other Leukodystrophies; to gather and provide current, functional information and service linkages to families of children with Leukodystrophies; to fund research efforts that will identify new treatments, therapies and ultimately, a cure for Krabbe Disease and other Leukodystrophies; and to establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial and emotional support.

Hunter's Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses. Accordingly, our mission is four-fold: to broaden public awareness of Krabbe Disease and other Leukodystrophies; to gather and provide current, functional information and service linkages to families of children with Leukodystrophies; to fund research efforts that will identify new treatments, therapies and ultimately, a cure for Krabbe Disease and other Leukodystrophies; and to establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial and emotional support.

Impact Information

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Financial

three stars

88.45

Accountability & Transparency

four stars

93.00

This rating was published 11/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
79.3%
  Administrative Expenses 9.2%
  Fundraising Expenses 11.4%
  Fundraising Efficiency $0.12
  Working Capital Ratio (years) 1.14
  Program Expenses Growth 4.1%
  Liabilities to Assets 7.6%
All data for Financial Performance Metrics calculations was provided by Hunter's Hope Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Hunter's Hope Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Hunter's Hope Foundation (NY) 90.45 four stars
Parent Project Muscular Dystrophy (NJ) 89.64 three stars
Cystic Fibrosis Foundation (MD) 98.21 four stars
American Brain Foundation (MN) 89.65 three stars
Epilepsy Foundation of Minnesota (MN) 89.56 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $641,781
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $125,000
   Government Grants $0
Total Contributions $766,781
   Program Service Revenue $0
Total Primary Revenue $766,781
   Other Revenue $5,376
TOTAL REVENUE $772,157
   
EXPENSES  
   Program Expenses $670,039
   Administrative Expenses $72,779
   Fundraising Expenses $89,766
TOTAL FUNCTIONAL EXPENSES $832,584
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-60,427
   
Net Assets $957,230

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Family Assistance $420,405 62.7%
Education and Awareness $210,773 31.5%
Research $38,861 5.8%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 11/01/2019 90.45 four stars
2017-12 12/01/2018 84.32 three stars
2016-12 02/01/2018 87.89 three stars
2015-12 12/01/2016 93.80 four stars
2014-12 10/01/2016 97.64 four stars
2014-12 06/01/2016 96.31 four stars
 
CN 2.0
2014-12 12/01/2015 95.99 four stars
2013-12 12/22/2014 84.59 three stars
2012-12 12/01/2013 83.05 three stars
2011-12 11/01/2013 84.17 three stars
2011-12 09/01/2012 82.60 three stars
2010-12 12/01/2011 92.33 four stars
2009-12 09/20/2011 91.12 four stars
 
CN 1.0
2009-12 10/01/2010 90.32 four stars
2008-12 12/15/2009 81.28 three stars
2007-12 10/01/2008 89.63 three stars
2006-12 06/01/2008 75.98 two stars
2005-12 11/01/2006 76.68 two stars
2004-12 10/01/2005 58.99 one star

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 16-1552315
Name in IRS Master File HUNTERS HOPE FOUNDATION INC
NTEE Code Z99
NTEE Classification Unknown
NTEE Type Unknown
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(602) Gifts, grants, or loans to other organizations
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date August, 1998
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$75,000 9.00% Jacque Waggoner CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Hunter's Hope Foundation (NY) 90.45 four stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
Osteogenesis Imperfecta Foundation (MD) 86.07 three stars
Cystic Fibrosis Foundation (MD) 98.21 four stars
Can Do Multiple Sclerosis (CO) 96.16 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Hunter's Hope Foundation
6368 West Quaker Street
P.O. Box 643
Orchard Park, NY 14127
tel: (716) 667-1200
EIN: 16-1552315

Visit Web Site

Board Leadership

Jill Kelly
Chairwoman

CEO

Jacque Waggoner
Chief Executive Officer

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