Health : Diseases, Disorders, and Disciplines
Cystic Fibrosis Research, Inc.
Connecting cystic fibrosis resources with community needs
Rating
Income Statement (FYE 12/2008)
Contact Information
Cystic Fibrosis Research, Inc.
2672 Bayshore Parkway
Suite 520
Mountain View, CA 94043
tel: (650) 404-9975
fax: (650) 404-9981
EIN: 51-0169988
Leadership (FYE 12/2008)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Carroll Jenkins | Executive Director (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $90,885 | 11.14% |
Donor Privacy Policy
YES, this charity has a written donor privacy policy.
Mission
The Cystic Fibrosis Research, Inc. (CFRI) works to fund research, provide educational and personal support, and spread awareness of cystic fibrosis (CF), a life-threatening genetic disease. Cystic fibrosis (CF) is an inherited chronic disease that affects the respiratory, digestive and reproductive systems. As we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the CF community to help all who have this challenging disease attain the highest possible quality of life. Our committees include: the Research Advisory Committee, which administers, reviews and offers guidance on what cystic fibrosis research to fund; the Events Committees, which organize and coordinate many popular events throughout the year; and the Newsletter Committee, which produces our award-winning monthly newsletter, with over 15,000 subscribers.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Cystic Fibrosis Research, Inc. - CA | 56.22 | |
| Prader-Willi Syndrome Association (USA) - FL | 59.97 | |
| CurePSP - MD | 58.52 | |
| Hemophilia Association of New Jersey - NJ | 68.92 | |
| GBS/CIDP Foundation International - PA | 61.73 |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Cystic Fibrosis Research, Inc. - CA | 56.22 | |
| United Spinal Association - NY | 24.44 | 0 Stars |
| American Brain Tumor Association - IL | 66.18 | |
| Crohn's & Colitis Foundation of America - NY | 55.47 | |
| Lupus Foundation of America - DC | 57.50 | |
| American Autoimmune Related Diseases Association - MI | 65.56 |





