Health : Diseases, Disorders, and Disciplines
Charcot-Marie-Tooth Association
Improving the quality of life for those affected by Charcot-Marie-Tooth
Rating
Income Statement (FYE 12/2008)
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Contact Information
Charcot-Marie-Tooth Association
2700 Chestnut Street
Chester, PA 19013
tel: (800) 606-2682
fax: (610) 499-9267
EIN: 22-2480896
Leadership (FYE 12/2008)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Patrick Livny | President (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | None reported | -- |
Mission
Founded in 1983, the Charcot-Marie-Tooth Association's (CMTA) goals are patient support, public education, promotion of research and ultimately the treatment and cure of Charcot-Marie-Tooth (CMT). CMT is the most commonly inherited neurological disorder and is found world-wide in all races and ethnic groups. CMT patients slowly lose normal use of their feet/legs and hands/arms as nerves to the extremities degenerate and the muscles in the extremities become weakened because of the loss of stimulation by the affected nerves. Our mission is to generate the resources to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie-Tooth.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Charcot-Marie-Tooth Association - PA | 62.65 | |
| The Boomer Esiason Foundation - NY | 64.20 | |
| Parent Project Muscular Dystrophy - OH | 60.80 | |
| Cystic Fibrosis Foundation - MD | 63.37 | |
| American Academy of Neurology Foundation - MN | 63.76 |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Charcot-Marie-Tooth Association - PA | 62.65 | |
| Cystic Fibrosis Foundation - MD | 63.37 | |
| Muscular Dystrophy Association - AZ | 47.65 | |
| The Boomer Esiason Foundation - NY | 64.20 | |
| Aplastic Anemia & MDS International Foundation - MD | 67.35 | |
| Can Do Multiple Sclerosis - CO | 66.21 |
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