Health : Diseases, Disorders, and Disciplines
Angelman Syndrome Foundation
I may not speak, but I have much to say
Rating
Income Statement (FYE 09/2008)
Contact Information
Angelman Syndrome Foundation
4255 Westbrook Drive
Suite 219
Aurora, IL 60504
tel: (800) 432-6435
fax: (630) 978-7408
EIN: 59-3092842
Leadership (FYE 09/2008)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Eileen Braun | Executive Director (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $74,850 | 5.97% |
Donor Privacy Policy
YES, this charity has a written donor privacy policy.
Mission
The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Angelman Syndrome Foundation - IL | 60.10 | |
| Cerebral Palsy, Inc. - WI | 52.44 | |
| HHT Foundation International, Inc. - MD | 59.26 | |
| The Cornelia de Lange Syndrome Foundation - CT | 55.99 | |
| Spina Bifida Association - DC | 60.24 |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Angelman Syndrome Foundation - IL | 60.10 | |
| March of Dimes - NY | 49.00 | |
| United Cerebral Palsy - DC | 42.62 | |
| National Down Syndrome Society - NY | 49.79 | |
| Spina Bifida Association - DC | 60.24 |





