Health : Diseases, Disorders, and Disciplines
Huntington's Disease Society of America
Help for today. Hope for tomorrow.
Rating
Income Statement (FYE 09/2007)
Contact Information
Huntington's Disease Society of America
505 Eighth Avenue
Suite 902
New York, NY 10018
tel: (800) 345-4372
fax: (212) 239-3430
EIN: 13-3349872
Leadership (FYE 09/2007)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Barbara T. Boyle | National Executive Director, CEO (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $220,961 | 1.84% |
Donor Privacy Policy
YES, this charity has a written donor privacy policy.
Mission
The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Huntington's Disease Society of America - NY | 58.07 | |
| Interstitial Cystitis Association - MD | 58.98 | |
| American Autoimmune Related Diseases Association - MI | 65.56 | |
| Histiocytosis Association of America - NJ | 66.11 | |
| CurePSP - MD | 58.52 |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Huntington's Disease Society of America - NY | 58.07 | |
| United Spinal Association - NY | 24.44 | 0 Stars |
| American Brain Tumor Association - IL | 66.18 | |
| Crohn's & Colitis Foundation of America - NY | 55.47 | |
| Lupus Foundation of America - DC | 57.50 | |
| American Autoimmune Related Diseases Association - MI | 65.56 |
Note: This report represents consolidated financial data for these organizations:
- Huntington's Disease Society of America - Group Return (13-3349872)
- HDSA Research Initiatives (20-1106873)
- HDSA Care Center Initiatives (20-1494672)





