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    National Down Syndrome Society

    National Down Syndrome Society

     

    Is this your nonprofit?

    501(c)(3) organization

    Donations are tax-deductible

    http://www.ndss.org

    8 E 41st Street
    Eighth Floor
    New York NY 10017

    800-221-4602


    New York NY | IRS ruling year: 1979 | EIN: 13-2992567  

     

    Organization Mission

    The National Down Syndrome Society (NDSS) is the leading human rights organization for all individuals with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. Founded in 1979, NDSS supports and advocates for the Down syndrome community by focusing on three key areas of programming: Resources & Support, Policy & Advocacy and Community Engagement. Within these focus areas NDSS engages in various activities, events and programs on topics that are critical to our community, such as federal and state advocacy and public policy, health and wellness, education and employment. NDSS creates resources to support individuals with Down syndrome, their families and caregivers across the lifespan and hosts awareness and engagement events throughout the country

     


    Rating Information

    star rating graphic

    Great


    This charity's score is 98%, earning it a Four-Star rating. If this organization aligns with your passions and values, you can give with confidence.


    This overall score is calculated from multiple beacon scores, weighted as follows: 90% Accountability & Finance, 10% Culture & Community. Learn more about our criteria and methodology.

    Beacon Weights  
    Historical Ratings  

    Rating Report

    • Impact & Results
    • Accountability & Finance
    • Culture & Community
    • Leadership & Adaptability
    Accountability & Finance
    Impact & ResultsAccountability & FinanceCulture & CommunityLeadership & Adaptability

     

    Accountability & Finance

     

    Score

    100

    Most Recent Fiscal Year:
    FY 2022

    This beacon provides an assessment of a charity's financial health (financial efficiency, sustainability, and trustworthiness) and its commitment to governance practices and policies.

    Learn more

     

    Key Accountability Metrics

    Full Credit
      
    Partial Credit
      
    No Credit
    Majority Independent Board Members - 100% independent members10 out of 10 points  
    Independent Board Size - 26 independent members10 out of 10 points  
    Financial Statements - Audit and Oversight Committee20 out of 20 points  
    Material Diversion of Assets - None20 out of 20 points  

    Tax Form Disclosures and Policies

    Full Credit
      
    Partial Credit
      
    No Credit
    Website Listed on Tax Form - Listed5 out of 5 points  
    Conflict of Interest Policy - Listed5 out of 5 points  
    Whistleblower Policy - Listed5 out of 5 points  
    Document Retention and Destruction - Listed5 out of 5 points  
    Documents Board Meeting Minutes - Yes5 out of 5 points  
    Tax Form Distributed to Board Before Filing - Listed5 out of 5 points  
    Loans to/from Officers - Missing5 out of 5 points  

    Website Disclosures

    Full Credit
      
    Partial Credit
      
    No Credit
    Tax Form Posted on Nonprofit's Website - Listed5 out of 5 points  

    Financial Metrics

    Full Credit
      
    Partial Credit
      
    No Credit
    Liabilities to Assets: Ratio - 4.12%25 out of 25 points  
    Program Expense: Ratio - 75.80%25 out of 25 points  
    Fundraising Efficiency: Ratio - $0.1525 out of 25 points  
    Working Capital: Ratio - 4.27 years25 out of 25 points  

    Additional Information

    Total Revenue and Expenses - Data Available  
    Salary of Key Persons - Data Available  
    IRS Published Data (Business Master File) - Data Available  
    Data Sources (IRS Forms 990) - Data Available  

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