Health : Diseases, Disorders, and Disciplines

National Organization for Rare Disorders

Out of the darkness into the light

Rating

Overall Rating    
      (69.59)
Organizational Efficiency      
Program Expenses 95.9%    
Administrative Expenses 2.9%    
Fundraising Expenses 1.1%    
Fundraising Efficiency $0.01    
Efficiency Rating    
      (39.59)
Organizational Capacity      
Primary Revenue Growth 22.3%    
Program Expenses Growth 18.4%    
Working Capital Ratio (years) 1.17    
Capacity Rating    
      (30.00)

Income Statement     (FYE 12/2007)

Revenue  
Primary Revenue $13,711,686
Other Revenue $617,658
Total Revenue $14,329,344
   
Expenses  
Program Expenses $10,785,381
Administrative Expenses $325,931
Fundraising Expenses $126,169
Total Functional Expenses $11,237,481
   
Payments to Affiliates $0
Excess (or Deficit) for the year $3,091,863
   
Net Assets $13,553,310

Charts

Expenses Breakdown

Expenses Legend

Revenue/Expenses Trend

Revenue-Expense Legend

Contact Information

National Organization for Rare Disorders
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813
tel: (203) 744-0100
fax: (203) 798-2291
TTY: (203) 797-9590
EIN: 13-3223946

Contact Email
Visit Web Site

Leadership      (FYE 12/2007)

Name Title Compensation % of Expenses
Abbey Meyers President (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) $186,266 1.65%

Donor Privacy Policy

YES, this charity has a written donor privacy policy.

Mission

The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. A rare or orphan disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. NORD was established in 1983 by patients and families who worked together to get the Orphan Drug Act passed. This legislation provides financial incentives to encourage development of new treatments for rare diseases.

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