Health : Diseases, Disorders, and Disciplines
National Organization for Rare Disorders
Out of the darkness into the light
Rating
| Overall Rating |  |
||
| (69.49) | |||
| Organizational Efficiency | |||
| Program Expenses | 94.9% | ||
| Administrative Expenses | 3.7% | ||
| Fundraising Expenses | 1.2% | ||
| Fundraising Efficiency | $0.01 | ||
| Efficiency Rating |  |
||
| (39.49) | |||
| Organizational Capacity | |||
| Primary Revenue Growth | 13.3% | ||
| Program Expenses Growth | 14.4% | ||
| Working Capital Ratio (years) | 1.24 | ||
| Capacity Rating | |
||
| (30.00) |
Income Statement (FYE 12/2008)
Contact Information
National Organization for Rare Disorders
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813
tel: (203) 744-0100
fax: (203) 798-2291
TTY: (203) 797-9590
EIN: 13-3223946
Leadership (FYE 12/2008)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Peter Saltonstall | Executive Director (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $145,716 | 1.24% | |
| Other Salaries of Note | ||||
| Abbey Meyers | Former Executive Director (Using information reported on an organization's most recent Form 990, we include as compensation an individual's salary, cash bonuses, and expense accounts and other allowances. We do not include contributions to benefit plans or compensation deferred to a future date.) | $107,196 | 0.91% | |
Donor Privacy Policy
YES, this charity has a written donor privacy policy.
Mission
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. A rare or orphan disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. NORD was established in 1983 by patients and families who worked together to get the Orphan Drug Act passed. This legislation provides financial incentives to encourage development of new treatments for rare diseases.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| National Organization for Rare Disorders - CT | 69.49 | |
| Colorado Neurological Institute - CO | 63.67 | |
| The Glaucoma Foundation - NY | 55.30 |  |
| Histiocytosis Association of America - NJ | 66.11 | |
| National Ataxia Foundation - MN | 55.48 | |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| National Organization for Rare Disorders - CT | 69.49 | |
| United Spinal Association - NY | 24.44 | 0 Stars |
| Crohn's & Colitis Foundation of America - NY | 55.47 | |
| American Brain Tumor Association - IL | 66.18 | |
| Epilepsy Foundation - MD | 50.47 | |
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