Health : Diseases, Disorders, and Disciplines
Fanconi Anemia Research Fund
Dedicated to finding effective treatments and a cure for Fanconi anemia
Rating
| Overall Rating |  |
||
| (59.94) | |||
| Organizational Efficiency | |||
| Program Expenses | 89.4% | ||
| Administrative Expenses | 3.9% | ||
| Fundraising Expenses | 6.5% | ||
| Fundraising Efficiency | $0.06 | ||
| Efficiency Rating |  |
||
| (38.93) | |||
| Organizational Capacity | |||
| Primary Revenue Growth | 17.0% | ||
| Program Expenses Growth | 1.0% | ||
| Working Capital Ratio (years) | 1.84 | ||
| Capacity Rating |  |
||
| (21.01) |
Income Statement (FYE 12/2008)
Contact Information
Fanconi Anemia Research Fund
1801 Williamette Street
Suite 200
Eugene, OR 97401
tel: (888) 326-2664
fax: (541) 687-0548
EIN: 93-0995453
Leadership (FYE 12/2008)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Jeanne Negley | Executive Director (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $10,833 | 0.44% | |
| Other Salaries of Note | ||||
| Mary Ellen Eiler | Former Executive Director (Using information reported on an organization's most recent Form 990, we include as compensation an individual's salary, cash bonuses, and expense accounts and other allowances. We do not include contributions to benefit plans or compensation deferred to a future date.) | $86,521 | 3.57% | |
Donor Privacy Policy
YES, this charity has a written donor privacy policy.
Mission
Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Fanconi Anemia Research Fund - OR | 59.94 | |
| Sjögren's Syndrome Foundation - MD | 58.75 | |
| National Gaucher Foundation - GA | 61.13 | |
| The Food Allergy & Anaphylaxis Network - VA | 63.28 | |
| CurePSP - MD | 58.52 | |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Fanconi Anemia Research Fund - OR | 59.94 | |
| United Spinal Association - NY | 24.44 | 0 Stars |
| Crohn's & Colitis Foundation of America - NY | 55.47 | |
| National Organization for Rare Disorders - CT | 69.49 | |
| American Brain Tumor Association - IL | 66.18 | |
| Epilepsy Foundation - MD | 50.47 | |
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