Health : Diseases, Disorders, and Disciplines
FSH Society
Facioscapulohumeral muscular dystrophy
Rating
| Overall Rating |  |
||
| (67.93) | |||
| Organizational Efficiency | |||
| Program Expenses | 84.6% | ||
| Administrative Expenses | 11.9% | ||
| Fundraising Expenses | 3.4% | ||
| Fundraising Efficiency | $0.02 | ||
| Efficiency Rating |  |
||
| (38.46) | |||
| Organizational Capacity | |||
| Primary Revenue Growth | 19.4% | ||
| Program Expenses Growth | 9.4% | ||
| Working Capital Ratio (years) | 1.66 | ||
| Capacity Rating | |
||
| (29.47) |
Income Statement (FYE 12/2007)
Contact Information
FSH Society
BBRI R353
64 Grove Street
Watertown, MA 02472
tel: (617) 658-7878
fax: (617) 658-7879
EIN: 52-1762747
Leadership (FYE 12/2007)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Nancy Van Zant | Executive Director (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $52,566 | 8.01% | |
| Other Salaries of Note | ||||
| Daniel P. Perez | President, CEO (Using information reported on an organization's most recent Form 990, we include as compensation an individual's salary, cash bonuses, and expense accounts and other allowances. We do not include contributions to benefit plans or compensation deferred to a future date.) | $98,963 | 15.09% | |
Donor Privacy Policy
YES, this charity has a written donor privacy policy.
Mission
The FHS Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, translational and clinical research. We empower scientists by ensuring access to patients, resources and funds for FSHD research and development. The FSH Society empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide. FSHD is one of the nine primary types of muscular dystrophy, with a major symptom of the progressive weakening and loss of skeletal muscles.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| FSH Society - MA | 67.93 | |
| Hunter's Hope Foundation - NY | 59.63 |  |
| Cystic Fibrosis Foundation - MD | 63.37 | |
| Aplastic Anemia & MDS International Foundation - MD | 68.47 | |
| Parent Project Muscular Dystrophy - OH | 61.00 | |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| FSH Society - MA | 67.93 | |
| Cystic Fibrosis Foundation - MD | 63.37 | |
| Muscular Dystrophy Association - AZ | 46.00 |  |
| The Boomer Esiason Foundation - NY | 64.20 | |
| Parent Project Muscular Dystrophy - OH | 61.00 | |
| The Heuga Center for Multiple Sclerosis - CO | 60.33 | |
