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| 3148 DISCOVERY BAY DR Anchorage AK 99515-2727
Anchorage Young Cancer Coalition is headquartered in Anchorage, AK, and is a 501(c)(3) organization. EIN: 46-4294586. Donations are tax-deductible. The IRS' NTEE classification is Patient Services - Entertainment, Recreation within the Health - General and Rehabilitative category. The IRS ruling year for tax exemption was 2015.
(Source: IRS Business Master File and Form 990)
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Studies have shown that social support has a direct correlation with overall quality of life of cancer patients and improved survival outcomes. Young adult survivors ranked “opportunities to meet other YA cancer patients and/or survivors” as the greatest supportive care need. Young adults can and do get cancer. Young adults are diagnosed with cancer at a rate of 72,000 times per year. That’s 72,000 young adult people that are fighting for their lives at a time when everyone else is busy living theirs. Today: • There are ~600K young adult cancer survivors in the United States. • Of the 14M cancer survivors in the United States, one in 5 is under 40. • One in 100 US college students is a cancer survivor. • There are over 350,000 long term childhood cancer survivors in the US under 40. Social isolation is the number one issue faced by young adults with cancer. AYCC is improving the quality of life in our cancer community, not just for those that have been diagnosed with cancer but for everyone that cares about them and that wants to see them succeed after diagnosis – family, friends, children, co-workers, and neighbors are all positively impacted by the work that AYCC does.
Cancer treatment is expensive. The financial burden that cancer brings to a young adult can be devastating. Increased financial burden as a result of cancer care costs is the strongest independent predictor of poor quality of life among cancer survivors. Being sensitive to this information, the AYCC has a primary goal to keep the costs related to the support group activities as low as possible for the members so that it is available to all young adult cancer patients and survivors, regardless of their financial situation. The current activities are planned as free to attend events, such as picnics at a local park. If funding is obtained then the array of activities open to the group is greater, such as going out to the movies together. Monthly Meet-Up Events Every month the group has a minimum of two scheduled meet-ups. One of the meet-ups occur at the place of business of one of our members. She offers her space for us to meet-up after hours, which allows us to have privacy and a place to convene together that is NOT connected to the hospital or doctor’s offices. At this meet-up the group can discuss whatever it is that everyone wants to discuss. Sometimes the talk focuses on cancer and sometimes the focus is on plans for the weekend. It’s a very organically lead discussion based on what everyone needs in the moment. The other meet-up of the month the group goes out into the community together and does something related to enjoying life, laughing and meeting new people and making new friends that understand what it’s like to go through cancer treatment. These meet-ups vary widely but include activities like sledding, hiking, skiing, game nights, pot lucks, bowling, movies, and yoga. Sometimes the meet-ups are limited only to the cancer patients and survivors and sometimes they are open to support partners, family and friends. The AYCC is aware that a cancer diagnosis does not happen in a vacuum. A cancer diagnosis effects everyone around the cancer patient/survivor and there is need and benefit to include friends and family to help expand our circle of support. Truly creating wide and deep friendships amongst the members of the AYCC eliminates the feeling of isolation not only for the cancer patient but also for those around them. Support partners, family, and kids meeting other support partners, family and kids of young adult cancer survivors is an additional dimension that is provided by the AYCC in creating a strong community. AYCC also coordinates restorative retreats for members and provides social media connection for members to ask questions and share information with each other.
The AYCC has a fully-committed and dedicated Board of Directors that are all young adult cancer survivors. We have strong community support from oncology doctors, nurses, social workers, and therapists and good community reputation. Opportunities for Inter-Agency Collaboration The AYCC is committed to establishing collaboration between other organizations in order to achieve our mission and goals. 1. Horizontal Collaboration To help spread information about our group and our meet-ups, we currently work with the Alaska Cancer Care Alliance, Providence Hospital, Women Listen Support Group, Anchorage Radiation Therapy, and Stupid Cancer. We have also shared marketing services via the Breast Cancer Focus Alaska luncheon goody bags and through the American Cancer Society Relay for Life and Making Strides Against Breast Cancer events. We are currently investigating other means of increasing our marketing opportunities through similar organizations. 2. Vertical Collaboration Several businesses throughout the community have supported our organization and meet-ups by providing reduced fees for services or donations for food or supplies. Color Me Mine has hosted a number of meet-ups and charged reduced fees for our events. The Bear Tooth Theater has donated funding to help pay for our take-out dinner costs. Our future planning involves working more closely with other community for profit and non-profit organizations to fulfill our mission and to serve as many of our members as possible. The possibilities of organizations to collaborate with are numerous and we are confident that strong relationships can be forged with good effort, energy and time.
Progress indicators will be marked by increased participation in the group numbers and also increased funding approval from granting organizations. We can also collect member testimony to insure that we are meeting our member's needs. Additionally, each restorative retreat includes a participant survey which will help guide us to fulfill our mission. AYCC Member Testimony Support from the group members has also been strong. Even though we are based in Anchorage, we have had members throughout Alaska connect with us and request meet-ups in their area. ? From Homer, Alaska, “Please consider a Homer meeting. My time was relatively brief but was by far my most meaningful Anchorage experience attempt at personal community.” ? From the husband of a young cancer patient, “I'm truly terrified by what's ahead of us, but it’s extremely helpful to hear from someone who's successfully beaten it (under very similar familial circumstances it sounds like). I'd love for you and my wife to meet for coffee or something, I think it would be helpful for her right now. We know a few people who have gone through this, but as you say most are a bit older and not with kids. We've lived in Anchorage for about 10 years and have a good network of friends but no family in the state.” ? From a member, “I just wanted to say thank you for being such a great organizer and applaud you on how well you’ve pioneered the AYCC! Even though I haven’t attended, I hope to sometime soon and I can tell people are really enjoying it and finding it useful! I’ve been forwarding it to a newly diagnosed friend and perhaps she will attend or contact you to be put on the list, herself, but she’s just getting up and running with treatment in the next few weeks. She’s a strong, solid woman but I know she finds it comforting that there’s a group, along with our small climbing/friend ring of survivors, out there in similar life phases to contact.”
EVENT HIGHLIGHTS FROM 2018 • Summer family picnic • Dinner and Paint Nite • Talkeetna train trip and river float • Largest Thanksliving event to date with over 60 people attending • Broadway shows at the Performing Arts Center • T-shirt screen printing – need an AYCC t-shirt? We have them! • Murder Mystery party • Presenting a survivorship panel at the annual survivorship conference Annual Partnership with the Trent Waldron Run for two successful years and many more to come! 2018 Financial Supporters • Advanced Oncology Assoc. • Alaska Run for Women • ALL of our individual supporters • Anchorage Concert Association • Anchorage & Valley Radiation • Orange Theory of S. Anchorage • Shuzy Q’s • Talkeetna River Guides • Texas 4000 • Trent Waldron Run • Wilderness Express We have received a lot of recognition from the local news. KTUU news interviewed the President of AYCC about her cancer story and how she started the Anchorage Young Cancer Coalition and it was presented in the Morning Edition segment called, “Making A Difference”. http://www.ktuu.com/morning-edition/making-a-difference/21264438 We have been featured in the Anchorage Daily News in a story about our team at the Run for Women. http://www.alaskadispatch.com/article/20140606/alaska-run-women-fosters-teamwork-fight-against-breast-cancer Support from Oncology Workers ? “You are doing an amazing service!” Jan Griffin, RN, OCN Oncology Nurse Navigator Providence Cancer Center ? “What creative ideas! We appreciate your efforts to promote Young Survivors staying active and healthy together.” Marie J. Lavigne, LCSW, OSW-C Oncology Social Worker, Navigation Team Providence Cancer Center What's next is to continue to grow the group and provide as many opportunities as possible to support young adult cancer survivors.
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