Mission: TO IMPROVE THE QUALITY OF LIFE FOR BRAIN TUMOR PATIENTS AND THEIR FAMILIES AND TO RAISE FUNDS FOR BRAIN TUMOR RESEARCH SO THAT A CURE CAN BE FOUND.

Southeastern Brain Tumor Foundation Inc. is a 501(c)(3) organization, with an IRS ruling year of 1995, and donations are tax-deductible.

Is this your nonprofit? Access the Nonprofit Portal to submit data and download your rating toolkit.


Contact Information

  www.sbtf.org

  PO BOX 42271
Atlanta GA 30311-0271


 Important note on the timeliness of ratings

The IRS is significantly delayed in processing nonprofits' annual tax filings (Forms 990). As a result, the Finance & Accountability score for Southeastern Brain Tumor Foundation Inc. is outdated and the overall rating may not be representative of its current operations. Please check with the charity directly for any questions you may have.


...  ...  ...  ...  

Encompass Rating System by Charity Navigator


Overall Score

94

out of 100

This charity's score is a passing score.
This overall score is calculated from multiple beacon scores: 33% Finance & Accountability, 57% Impact & Results, and 10% Leadership & Adaptability


Learn about the Encompass Rating System: Overview | FAQ | Release Notes

Next: Impact & Results

...   Finance & Accountability


This score provides an assessment of a nonprofit's financial health (stability, efficiency and sustainability) and its commitment to governance practices and policies.


Finance & Accountability Score

83

out of 100

The score earned by Southeastern Brain Tumor Foundation Inc. is a passing score

This V6 of the Finance & Accountability Score provides a baseline measure of an organization's health including the indicators listed in the report below.

This score represents Form 990 data from 2019, the latest year electronically filed and published by the IRS.



Back to Overall

Finance & Accountability Report

83

of 100 points

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Program Expense

Program Expense Ratio

69.60%

Higher effect on score

More data  


The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.


Program Expense Percentage

Amount of Credit Received

70% or higherFull Credit
60% - 69.9%Partial Credit
50% - 59.9%Zero Points for Program Expense Score
Below 50%Zero Points for Both Program Expense AND Liabilities to Assets Scores

Source: IRS Form 990

Board Composition

18/18 Independent

Higher effect on score


Charity Navigator looks for at least 3 board members, with more than 50% of those members identified as independent (not salaried).


The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters.


Source: IRS Form 990

Independent Audit or Financial Review

No review needed due to small charity size

No effect on score


An Audit, Review, or Compilation provides important information about financial accountability and accuracy. Organizations are scored based on their Total Revenue Amount:

Total Revenue Amount

Expectation to Receive Credit

$1 million or higherExpected to complete an audit
$500,000 - $1 millionExpected to complete an audit, review, or compilation
Less than $500,000No expectation (removed from scoring methodology)

Source: IRS Form 990

Liabilities to Assets Ratio

29.62%

Lower effect on score


The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990). This ratio is an indicator of an organization’s solvency and/or long-term sustainability.

Liabilities to Assets Ratio

Amount of Credit Received

Less than 50%Full Credit
50% - 59.9%Partial Credit
60% or moreNo Credit

Source: IRS Form 990

Website

Listed

Lower effect on score


Charity Navigator looks for a website on the Form 990 as an accountability and transparency metric.


Nonprofits act in the public trust and reporting publicly on activities is an important component.


Source: IRS Form 990

Conflict of Interest Policy

Listed

Lower effect on score


Charity Navigator looks for the existence of a conflict of interest policy on the Form 990 as an accountability and transparency measure.


This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.


Source: IRS Form 990

Board Meeting Minutes

Documented

Lower effect on score


Charity Navigator looks to confirm on the Form 990 that the organization has this process in place as an accountability and transparency measure.


An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.


Source: IRS Form 990

Document Retention and Destruction

Listed

Lower effect on score


Charity Navigator looks for the existence of a document retention and destruction policy per the Form 990 as an accountability and transparency measure.


This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.


Source: IRS Form 990

Whistleblower Policy

Missing

Lower effect on score


Charity Navigator looks for the existence of a whistleblower policy per the Form 990 as an accountability and transparency measure.


This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.


Source: IRS Form 990

Additional Information

Unscored

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Total Revenue and Expenses

Total Revenue and Expenses

This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.

Salary of Key Persons

Presented here are up to five of this organization's highest compensated employees. This compensation data includes salary, cash bonuses, and expense accounts and is displayed exactly how it is reported to the IRS. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. In some cases, these amounts may include compensation from related organizations. Read the IRS policies for compensation reporting



MICHELLE ROBACK KRAYNAK ESQ, PRESIDENT

$0


MOLLY DECARVALHO, VICE PRESIDE

$0


SUZANNE BOEREN, TREASURER

$0


LAUREN TRACEY-HOLLIS, SECRETARY

$0


STEVE ANDREWS, DIRECTOR

$0


Source: IRS Form 990 (page 7), filing year 2019

Business Master File Data

Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website


Activities:

Described in section 170(b)1)(a)(vi) of the Code (BMF activity code: 994)

Other health services (BMF activity code: 179)


Foundation Status:

Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi) (BMF foundation code: 15)


Affiliation:

Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)

Data Sources: IRS Forms 990

The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to view this organization's Forms 990 on the IRS website (if any are available).

Pandemic Response

Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them. Charities may submit their own pandemic responses through their nonprofit portal.


Southeastern Brain Tumor Foundation Inc. reported being impacted by COVID-19 in the following ways:
  • Program Delivery

  • Fundraising Capacity

  • Revenue


How COVID-19 impacted the organization's operations financially:

The Foundation's two signature events, the Muddy Duck Dash and the Race for Research, are in-person format fundraisers. During the pandemic such events were difficult or impossible to host. The reduction in revenue from and participation in these events directly impacted our ability to fund brain tumor research grants, offer scholarships and support the brain tumor community.


How COVID-19 impacted the organization's delivery of programs:

The brain tumor support groups were no longer able to meet face-to-face and transitioned to an online platform. Grant-awarded researchers were unable to meet and interact with our constituents at the Race for Research.


How this organization adapted to changing conditions caused by COVID-19:

Our support groups moved to an online platform in 2020, 2021 and continue to be held online in 2022. We "Reimagined" the Race for Research in 2020 and were able to host a virtual event via an online platform. As a Board we held tight reins on our financials and remained focused on funding our mission.


Innovations the organization intends to continue permanently after the pandemic:

We found some brain tumor patients and caregivers prefer the online format for support groups as it allows them to remain at home where they are comfortable and feel safe. We will have in-person meetings again one day but will not eliminate the online option.


Previous: Finance & Accountability  / Next: Leadership & Adaptability

...   Impact & Results


This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.


Impact & Results Score

100

out of 100

Southeastern Brain Tumor Foundation Inc. is highly cost-effective, earning a passing score.


Impact

$770 increases income for a scholarship recipient by $130,000.


Do you work at Southeastern Brain Tumor Foundation Inc.? Join the waitlist for an updated Impact & Results score.


Back to Overall

Impact & Results Report

100

of 100 points


This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Rated Program

Rated Program


Program

Voices of Hope Scholarship

Activities

The nonprofit grants scholarships to beneficiaries.

Program Type

Postsecondary Scholarships

Beneficiaries Served

Adults;People with cancer;Students

Program Geography

Our Foundation is based in Atlanta, Georgia however the scholarship opportunities are available for students anywhere in the United States if they have been impacted by a brain tumor diagnosis.

Time Period of Data

12/31/19 to 12/12/19


Learn how we assess the impact of nonprofits

Outcomes and Cost

Outcomes: Changes in the lives of those served by a nonprofit. They can be caused by the nonprofit.

Costs: The money spent by a nonprofit and its partners and beneficiaries.

Impact: Outcome caused by a nonprofit relative to its cost.

Cost-effectiveness: A judgment as to whether the cost was a good use of resources to cause the outcome.


Outcome Metric

Increase in income for a scholarship recipient


Outcome Data Source

Ratings are based on data the nonprofit itself collects on its work. We use the most recent year with sufficient data. Typically, this data allows us to calculate direct changes in participants' lives, such as increased income.


Output data collected during the program. The nonprofit submitted data on the dollar value of all scholarships it grants and the number of scholarship recipients, which we use to calculate the additional income that the nonprofit's scholarship program generates.


Method for Attributing Outcomes

We don't know if the observed changes were caused by the nonprofit's program or something else happening at the same time (e.g., a participant got a raise). To determine causation, we take the outcomes we observe and subtract an estimate of the outcomes that would have happened even without the program (i.e., counterfactual outcomes).


We estimate the increase in income caused by a nonprofit's scholarship program in two steps. First, we compare the estimated postsecondary graduation rate of its scholars to that of comparable students who did not receive a scholarship (the “counterfactual”). Our estimates are drawn from rigorous social science studies of similar scholarship programs. The result is the number of scholars whose graduation was caused by the nonprofit. Second, we compare the earnings of graduates to non-graduates based on publicly available census data, matching on student demographic characteristics. We apply the earnings boost owing to a degree to those scholars whose graduation was caused by the nonprofit. Both steps are necessary to properly net out counterfactual successes from observed successes. Otherwise, we would be attributing changes (increase in graduation rate and increase in earnings) to the nonprofit when they would have happened anyway. Few nonprofits estimate the counterfactual themselves, so we construct our own counterfactual estimate based on research and publicly available data.


Cost Data Source

After estimating the program's outcomes, we need to determine how much it cost to achieve those outcomes. All monetary costs are counted, whether they are borne by a nonprofit service deliverer or by the nonprofit’s public and private partners.


Program cost data reported by the nonprofit. Partner and beneficiary costs reported by the nonprofit or estimated by Charity Navigator.


Cost Calculation

$100 program costs + $4,302 partner costs + $4,302 beneficiary costs = $8,705 total costs


Impact and Determination

We calculate impact, defined as the change in outcomes attributable to a program divided by the cost to achieve those outcomes.

Impact Calculation

$8,705 total costs / $1,467,765 additional income = roughly $770 increases income for a scholarship recipient by $130,000.

Benchmark for Rating

Impact & Results scores of postsecondary scholarship programs are based on income generated relative to cost. Programs receive an Impact & Results score of 100 if they increase income for a recipient by more than $1.50 for every $1 spent and a score of 75 if income increases by more than $0.85 for every $1 spent. If a nonprofit reports impact but doesn't meet the benchmark for cost-effectiveness, it earns a score of 50.

Determination

Highly cost-effective

Analysis Details


Analysis conducted in 2021 by Charity Navigator using data submitted by the nonprofit, theory and evidence from scientific research studies, and public datasets.

Additional Information

Unscored

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Largest Programs

Largest Programs



Southeastern Brain Tumor Foundation Inc. reported its largest program on its FY 2019 Form 990 as:


$185,294

Spent in most recent FY

100%

Percent of program expenses


AWARDED RESEARCH GRANTS IN SUPPORT OF BRAIN TUMOR RESEARCH BEING CONDUCTED AT VARIOUS INSTITUTIONS THROUGHOUT THE SOUTHEASTERN UNITED STATES; CONDUCTED AND ASSISTED WITH MONTHLY BRAIN TUMOR SUPPORT GR ... (More)


Previous: Impact & Results  / Next: Culture & Community

...   Leadership & Adaptability


This score provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.


Leadership & Adaptability Score

100

out of 100

The score earned by Southeastern Brain Tumor Foundation Inc. is a passing score.

Encompass Rating V4 provides an evaluation of the organization's Leadership & Adaptability through the nonprofit organization submitting a survey response directly to Charity Navigator.


Back to Overall

Leadership & Adaptability Report

100

of 100 points

Mission

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s mission


TO IMPROVE THE QUALITY OF LIFE FOR BRAIN TUMOR PATIENTS AND THEIR FAMILIES AND TO RAISE FUNDS FOR BRAIN TUMOR RESEARCH SO THAT A CURE CAN BE FOUND.


Source: Nonprofit submitted responses

Vision

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.


A world where brain tumors are curable.


Source: Nonprofit submitted responses

Strategic Goals

The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.


Goal One: Increase the number of and types of support groups offered.

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Goal Two: Fund forward-thinking seed brain tumor research.

Goal Type: This goal reflects our commitment to further our advocacy work for our organization and or cause area.


Goal Three: Increase our support of those living with a brain tumor and their caregivers.

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Source: Nonprofit submitted responses

Leadership Development

The nonprofit provides evidence of investment in leadership development


Describe an investment in leadership

The Foundation has invested in an upgraded platform to host our events, maintain constituent information and financial information. Training has been provided to key users. A consultant was retained to further our growth and efficiency with this platform.

Source: Nonprofit submitted responses

Mobilizing for Mission

The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.


This organization mobilizes for mission in the following ways:
  • Strategic Partnerships

  • Networks of Collective Impact Efforts

  • Raising Awareness

  • Community Building

  • Policy Advocacy

What are this organization’s external mobilizaton efforts?

The SBTF partners with the ABTA, NREF, CCNS and ANS to continue our mission to fund the most promising brain tumor research.

Source: Nonprofit submitted responses

Story of Adaptability

The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.


The pandemic forced our support groups, typically held at treatment facilities or local hospitals, to move to a virtual platform. Many of our support group members face difficulties with speech, memory, reading or other communication skills due to brain injury as part of treatment. The learning curve to get our support group members comfortable with the new technology of an online format took some adjustment. However, now membership continues to grow due to the fact they do not have to drive or expose themselves to a group. It was an unexpected result from a necessary adaptation.

Source: Nonprofit submitted responses

Previous: Leadership & Adaptability

...   Culture & Community


This score provides an assessment of the organization's culture and connectedness to the community it serves. Learn more about how and why we rate Culture & Community.


Culture & Community Score

Not Currently Scored

Southeastern Brain Tumor Foundation Inc. is currently not eligible for a Culture & Community score because we have not received its Constituent Feedback or Diversity, Equity, & Inclusion data. Nonprofit organizations are encouraged to fill out the How We Listen and Equity Practices sections of their Candid profile.

Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.


Back to Overall

Culture & Community Report

Unscored

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Constituent Feedback

Diversity, Equity, & Inclusion


This organization has not provided information regarding the diversity, equity and inclusion (DEI) practices it is presently implementing. As such, the organization has not earned a score on this metric. Charity Navigator believes nonprofit organizations implementing effective DEI policies and practices can enhance a nonprofit's decision-making, staff motivation, innovation, and effectiveness.


Methodology


We are utilizing data collected by Candid to document and assess the DEI practices implemented by the organization. Nonprofit organizations are encouraged to fill out the Equity Strategies section of their Candid profiles to receive a rating.


Learn more about the methodology.

Constituent Feedback


Constituent Feedback and Listening Practice data are not available for this organization. Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective.



Methodology


We've partnered with Candid to survey organizations about their feedback practices. Nonprofit organizations can fill out the How We Listen section of their Candid profile to receive a rating.


Learn more about the methodology.

Analysis and Research


Like the overall Encompass Rating System, the Culture & Community Beacon is designed to evolve as metrics are developed and ready for integration. Below you can find more information about the metrics we currently evaluate in this beacon and their relevance to nonprofit performance.


Constituent Feedback


Diversity, Equity, and Inclusion

The Giving Basket is having some issues. If you wish to donate, please refresh the page. If the problem persists contact us.
Cart ID: Not Assigned

Charity Navigator

Error attempting donation

You're too fast!

Your donation attempt encountered a problem. Please refresh the page to try again.

You're faster than our page! Give the page a little longer to finish loading and try your donation again.