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Los Angeles CA | IRS ruling year: 2019 | EIN: 82-5395108
To create the necessary conditions that build empowered, cared for, and self-sufficient families suffering from Huntington's disease through alliances with their com ... (More)
To create the necessary conditions that build empowered, cared for, and self-sufficient families suffering from Huntington's disease through alliances with their communities, local and international partners and organizations, both private and public.
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Great
This charity's score is 99%, earning it a Four-Star rating. If this organization aligns with your passions and values, you can give with confidence.
This overall score is calculated from multiple beacon scores: 80% Impact & Results, 10% Leadership & Adaptability, 10% Culture & Community. Learn more about our criteria and methodology.
We recognize that not all metrics and beacons equally predict a charity’s success. The percentage each beacon contributes to the organization’s overall rating depends on the number of beacons an organization has earned.
Use the tool below to select different beacons to see how the weighting shifts when only one, two, or three beacons are earned.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
Factor-H cannot currently be evaluated by our Accountability & Finance methodology due to only having 2 years of electronically-filed IRS Form 990 data. But please note, that the IRS is significantly delayed in processing nonprofit's annual tax filings. That may mean that this entity has electronically filed additional Forms 990 but they have yet to be processed and made public by the IRS.
To ensure year-to-year consistency the Encompass Rating System's Finance & Accountability beacon analyzes the three-year average of some data provided through the IRS 990.
Charity Navigator currently only has 2 years of consecutive e-filed Forms 990 from the IRS for Factor-H under the EIN: 82-5395108.
Before Charity Navigator can evaluate Factor-H, Factor-H will need to e-file for additional fiscal years.
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This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
No Data Available
Key Persons data is currently unavailable for this organization. This data is only available if this charity has at least one year of electronically-filed Form 990 data filed within the last six years.
Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website
Activities:
Activity data not reported from the IRS
Foundation Status:
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (Factor-H) or EIN (825395108) in the 'Search Term' field.
This organization was impacted by COVID-19 in a way that effected their financial health in 2020. This normally would have reduced their star rating. Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them, and doing this pauses our revision of their rating. Charities may submit their own pandemic responses through their nonprofit portal.
Factor-H reported being impacted by COVID-19 in the following ways:
Program Delivery
Fundraising Capacity
How COVID-19 impacted the organization's operations financially:
increased costs for emergency medical assistance to people afflicted by covid; costs of burial assistance
How COVID-19 impacted the organization's delivery of programs:
difficulties in delivering food; inability to conduct medical campaigns on the ground; inability to gather Kids and families for educational workshops
How this organization adapted to changing conditions caused by COVID-19:
online educational costs; reduced shipments of food to provide every 3 months instead of monthly
Innovations the organization intends to continue permanently after the pandemic:
online webinars and educational workshops about the disease, children psychological support
Factor-H has earned a 100% for the Impact & Results beacon. See the metrics below for more information.
This beacon estimates the actual impact a charity has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.
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Full Credit
Partial Credit
No Credit
Not Applicable
Program
Basic assistance program
Activities
The program directly distributes goods that fulfill the basic needs of its beneficiaries.
Program Type
Goods Provision
Beneficiaries Served
Program Geography
Time Period of Data
10/27/21 to 10/27/22
Outcomes: Changes in the lives of those served by a nonprofit. They can be caused by the nonprofit.
Costs: The money spent by a nonprofit and its partners and beneficiaries.
Impact: Outcome caused by a nonprofit relative to its cost.
Cost-effectiveness: A judgment as to whether the cost was a good use of resources to cause the outcome.
Outcome Metric
market value of goods distributed
Outcome Data Source
Ratings are based on data the nonprofit itself collects on its work. We use the most recent year with sufficient data. Typically, this data allows us to calculate direct changes in participants' lives, such as increased income.
The nonprofit submitted data on the composition and market value of the goods it distributed.
Method for Attributing Outcomes
We don't know if the observed changes were caused by the nonprofit's program or something else happening at the same time (e.g., a participant got a raise). To determine causation, we take the outcomes we observe and subtract an estimate of the outcomes that would have happened even without the program (i.e., counterfactual outcomes).
We assume that the distribution of goods from one nonprofit's goods distribution program does not diminish the amount of goods distributed by any other (neighboring) goods distribution program. This “counterfactual” assumption about the amount of goods distributed in the absence of the nonprofit’s goods distribution program implies that the benefit of goods to a beneficiary in need constitutes a net gain; the gain is not offset by reductions in good provided to other beneficiaries in need. We therefore set the counterfactual to zero.
Cost Data Source
After estimating the program's outcomes, we need to determine how much it cost to achieve those outcomes. All monetary costs are counted, whether they are borne by a nonprofit service deliverer or by the nonprofit’s public and private partners.
Program cost data reported by the nonprofit. Partner and beneficiary costs reported by the nonprofit or estimated by Charity Navigator.
Cost Calculation
$20,000 program costs + $620 partner costs + $0 beneficiary costs = $20,620 total costs
We calculate impact, defined as the change in outcomes attributable to a program divided by the cost to achieve those outcomes.
Impact Statement
$0.30 provides a dollar's worth of essential goods to someone in need.
Benchmark for Rating
Impact & Results scores of goods provision programs are based on comparing the cost to distribute a goods against the market value of those goods. Programs receive an Impact & Results score of 100 if the cost to distribute goods is less than 75% the value of those goods and a score of 80 if it is less than 125%. If a nonprofit reports impact but doesn't meet the benchmark for cost-effectiveness, it earns a score of 65.
Determination
Highly cost-effective
Factor-H reported its largest program on its FY 2020 Form 990 as:
Spent in most recent FY
Percent of program expenses
Help families affected by huntington's disease and living in peverty
Factor-H has earned a 90% for the Culture & Community beacon. See the metrics below for more information.
This beacon provides an assessment of the organization's culture and connectedness to the community it serves.
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Full CreditPartial CreditNo CreditNot ApplicableConstituent Feedback - Data Available - UnscoredConstituent Feedback - Data Available - Unscored
This organization reported that it is collecting feedback from the constituents and/or communities it serves. However, it did not respond to one or more survey questions, and therefore is not eligible for a score on this metric. (View our beacon methodology.) Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective.
How is your organization collecting feedback from the people you serve?
Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person)
How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve
With whom does your organization share the feedback you got from the people you serve?
Our staff, Our board, Our community partners
What challenges does your organization face in collecting feedback from the people you serve?
We don't have any major challenges to collecting feedback
Briefly describe a recent change that your organization made in response to feedback from the people you serve.
Note: The organization did not respond to this question.
Equity Practices - Data Available - 90/100 ptsEquity Practices - Data Available - 90/100 pts
100% of beacon score
This organization's score of 90 is a passing score. The organization reported that it is implementing 7 Equity Practices. Charity Navigator believes nonprofit organizations implementing effective equity policies and practices can enhance a nonprofit's decision-making, staff motivation, innovation, and effectiveness.
Equity Practices (3/7) | |
|---|---|
We review compensation data across the organization (and by staff levels) to identify disparities by race. | |
We ask team members to identify racial disparities in their programs and/or portfolios. | |
We analyze disaggregated data and root causes of race disparities that impact the organization/'s programs, portfolios, and the populations served. | |
We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support. | |
We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders. | |
We disaggregate data by demographics, including race, in every policy and program measured | |
We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization. | |
Equity Policies and Procedures (4/7) | |
|---|---|
We use a vetting process to identify vendors and partners that share our commitment to race equity. | |
We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions. | |
We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization. | |
We have community representation at the board level, either on the board itself or through a community advisory board. | |
We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability. | |
We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team. | |
We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization. | |
Factor-H has earned a 100% for the Leadership & Adaptability beacon. See the metrics below for more information.
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
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Full CreditPartial CreditNo CreditNot ApplicableMission - 10/10 ptsMission - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission
Factor-H is a humanitarian nonprofit founded in 2012 and registered as a 501(c)3 in 2018 to enhance the quality of life of families in Latin America affected by Huntington’s disease (HD) and living in conditions of extreme vulnerability. We aim to find collaborative ways in various levels to increase awareness and efforts to change the neglect and affliction of the communities where we are engaged. Our mission is to create the necessary conditions that build empowered, cared for, and self-sufficient families affected by HD through alliances with their communities, local and international partners, and organizations, both private and public.
Vision - 10/10 ptsVision - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
Factor-H envisions a world in which families and communities impacted by HD live in dignity, equality and prosperity, exercising their basic and fundamental rights, including their right to health and education.
Source: Nonprofit submitted responses
Goals - 20/20 ptsGoals - 20/20 pts
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: Disease Management - Ensuring the Patients' Right to Health
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Goal Two: Youth - Building resilient, informed and empowered new generations
Goal Type: Focus on core programs to achieve mission and scale back on programs not seen as core.
Goal Three: Community Development - Empowering families & communities
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Leadership Development - 15/15 ptsLeadership Development - 15/15 pts
The nonprofit provides evidence of investment in leadership development
Factor-H contracted an external consultant to meet with the Board, staff, and local allies to restructure the organization's framework and devise a 5-year Strategic Plan.
Mobilizing for Mission - 15/15 ptsMobilizing for Mission - 15/15 pts
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
Strategic Partnerships
Networks of Collective Impact Efforts
Thought Leadership
Raising Awareness
Community Building
Policy Advocacy
Factor-H aims to find collaborative ways in various levels to increase awareness and efforts to change the neglect and affliction of the communities where we are engaged. Factor-H carries out its mission via strategic partnerships with several international and local NGOs as well as universities to implement our projects in Latin America. Factor-H has a team of local leaders in Peru, Colombia and Venezuela who regularly meet with the HD families, organize, evaluate, and report on local projects.
Adaptability Story - 30/30 ptsAdaptability Story - 30/30 pts
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
During the pandemic, we established telemedicine visits to ensure patients had continued access to professional care, particularly in case of emergencies. We initiated a professional exchange program which includes sending health care workers to be trained in HD centers of excellence within Latin America and to Spain. A psychiatrist who works with our HD community in Venezuela recently came back from a 6-week program at HD centers in Spain. Additionally, as we were unable to physically unite the children at risk for HD as in the past, virtual educational workshops and social media campaigns were created to promote engagement. We facilitated the purchase of tablets to assist children with virtual learning in Colombia and help fund a learning center in Venezuela providing children with lessons in early literacy, numeracy, and critical thinking skills as well as a daily nutritious breakfast. We provided life-saving humanitarian aid for the families we support.
Impact & Results
Accountability & Finance
Culture & Community
Leadership & Adaptability
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