Mission: Enhance the quality of life of families in Latin America affected by Huntington's disease and living in poverty.

Factor-H is a 501(c)(3) organization, with an IRS ruling year of 2019, and donations are tax-deductible.

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Contact Information

  URL not available

  7917 HOLLYWOOD BLVD
Los Angeles CA 90046-2611



...  ...  ...  ...  

Encompass Rating System by Charity Navigator


Overall Score

Not Currently Scored

Encompass Scores are calculated from one or more Beacon Scores. Currently, we require either a Finance & Accountability Beacon, or an Impact & Results Beacon, to be eligible for an Encompass Score. See below to learn why this organization is not eligible.

  • This organization is ineligible for a Finance & Accountability score. Find out why.

  • This organization is ineligible for a Impact & Results score. Find out why.


Learn about the Encompass Rating System: Overview | FAQ | Release Notes

Next: Impact & Results

...   Finance & Accountability


This score provides an assessment of a nonprofit's financial health (stability, efficiency and sustainability) and its commitment to governance practices and policies.


Finance & Accountability Score

Not currently scored

This organization cannot be evaluated by our Encompass Rating methodology due to only having 2 years of electronically-filed IRS Form 990 data. But please note, that the IRS is significantly delayed in processing nonprofit's annual tax filings. That may mean that this entity has electronically filed additional Forms 990 but they have yet to be processed and made public by the IRS.


To ensure year-to-year consistency the Encompass Rating System's Finance & Accountability beacon analyzes the three-year average of some data provided through the IRS 990.
Charity Navigator currently only has 2 years of consecutive e-filed Forms 990 from the IRS for Factor-H under the EIN: 82-5395108.
Before Charity Navigator can evaluate this organization, Factor-H will need to e-file for additional fiscal years.


Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated this organization.


Back to Overall

Additional Information

Unscored

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Total Revenue and Expenses

Total Revenue and Expenses

This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.

Salary of Key Persons

No Data Available


Key Persons data is currently unavailable for this organization. This data is only available if this charity has at least one year of electronically-filed Form 990 data filed within the last six years.

Business Master File Data

Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website


Activities:

Activity data not reported from the IRS


Foundation Status:

Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi) (BMF foundation code: 15)


Affiliation:

Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)

Data Sources: IRS Forms 990

The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to view this organization's Forms 990 on the IRS website (if any are available).

Previous: Finance & Accountability  / Next: Leadership & Adaptability

...   Impact & Results


This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.


Impact & Results Score

Not Currently Scored

Factor-H cannot currently be evaluated by our Encompass Rating Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.

Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.

Learn more about Impact & Results.


Back to Overall

Additional Information

Unscored

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Largest Programs

Largest Programs



Factor-H reported its largest program on its FY 2020 Form 990 as:


$237,508

Spent in most recent FY

100%

Percent of program expenses


Help families affected by huntington's disease and living in peverty


Previous: Impact & Results  / Next: Culture & Community

...   Leadership & Adaptability


This score provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.


Leadership & Adaptability Score

100

out of 100

The score earned by Factor-H is a passing score.

Encompass Rating V4 provides an evaluation of the organization's Leadership & Adaptability through the nonprofit organization submitting a survey response directly to Charity Navigator.


Back to Overall

Leadership & Adaptability Report

100

of 100 points

Mission

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s mission


Factor-H is a humanitarian nonprofit founded in 2012 and registered as a 501(c)3 in 2018 to enhance the quality of life of families in Latin America affected by Huntington’s disease (HD) and living in conditions of extreme vulnerability. We aim to find collaborative ways in various levels to increase awareness and efforts to change the neglect and affliction of the communities where we are engaged. Our mission is to create the necessary conditions that build empowered, cared for, and self-sufficient families affected by HD through alliances with their communities, local and international partners, and organizations, both private and public.


Source: Nonprofit submitted responses

Vision

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.


Factor-H envisions a world in which families and communities impacted by HD live in dignity, equality and prosperity, exercising their basic and fundamental rights, including their right to health and education.


Source: Nonprofit submitted responses

Strategic Goals

The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.


Goal One: Disease Management - Ensuring the Patients' Right to Health

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Goal Two: Youth - Building resilient, informed and empowered new generations

Goal Type: Focus on core programs to achieve mission and scale back on programs not seen as core.


Goal Three: Community Development - Empowering families & communities

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Source: Nonprofit submitted responses

Leadership Development

The nonprofit provides evidence of investment in leadership development


Describe an investment in leadership

Factor-H contracted an external consultant to meet with the Board, staff, and local allies to restructure the organization's framework and devise a 5-year Strategic Plan.

Source: Nonprofit submitted responses

Mobilizing for Mission

The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.


This organization mobilizes for mission in the following ways:
  • Strategic Partnerships

  • Networks of Collective Impact Efforts

  • Thought Leadership

  • Raising Awareness

  • Community Building

  • Policy Advocacy

What are this organization’s external mobilizaton efforts?

Factor-H aims to find collaborative ways in various levels to increase awareness and efforts to change the neglect and affliction of the communities where we are engaged. Factor-H carries out its mission via strategic partnerships with several international and local NGOs as well as universities to implement our projects in Latin America. Factor-H has a team of local leaders in Peru, Colombia and Venezuela who regularly meet with the HD families, organize, evaluate, and report on local projects.

Source: Nonprofit submitted responses

Story of Adaptability

The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.


During the pandemic, we established telemedicine visits to ensure patients had continued access to professional care, particularly in case of emergencies. We initiated a professional exchange program which includes sending health care workers to be trained in HD centers of excellence within Latin America and to Spain. A psychiatrist who works with our HD community in Venezuela recently came back from a 6-week program at HD centers in Spain. Additionally, as we were unable to physically unite the children at risk for HD as in the past, virtual educational workshops and social media campaigns were created to promote engagement. We facilitated the purchase of tablets to assist children with virtual learning in Colombia and help fund a learning center in Venezuela providing children with lessons in early literacy, numeracy, and critical thinking skills as well as a daily nutritious breakfast. We provided life-saving humanitarian aid for the families we support.

Source: Nonprofit submitted responses

Previous: Leadership & Adaptability

...   Culture & Community


This score provides an assessment of the organization's culture and connectedness to the community it serves. Learn more about how and why we rate Culture & Community.


Culture & Community Score

90

out of 100

Factor-H has earned a passing score. The organization provided data about its Diversity, Equity, & Inclusion (DEI) practices (see report below).

The Culture & Community Beacon is comprised of the following metrics:

  • Constituent Feedback: Not Scored

  • Diversity, Equity, & Inclusion: 90/100 (100% of beacon score)


Back to Overall

Culture & Community Report

90

of 100 points

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Constituent Feedback

Diversity, Equity, & Inclusion

90/100 points

100% of beacon score


This organization's score of 90 is a passing score. The organization reported that it is implementing 7 diversity, equity and inclusion (DEI) practices. Charity Navigator believes nonprofit organizations implementing effective DEI policies and practices can enhance a nonprofit's decision-making, staff motivation, innovation, and effectiveness.


View this organization's DEI Strategies


Methodology


We are utilizing data collected by Candid to document and assess the DEI practices implemented by the organization. Nonprofit organizations are encouraged to fill out the Equity Strategies section of their Candid profiles to receive a rating.


Learn more about the methodology.

Constituent Feedback

Not Scored


This organization reported that it is collecting feedback from the constituents and/or communities it serves. However, it did not respond to one or more survey questions, and therefore is not eligible for a score on this metric. (View our beacon methodology.) Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective.


View this organization's Constituent Feedback Practices




Methodology


We've partnered with Candid to survey organizations about their feedback practices. Nonprofit organizations can fill out the How We Listen section of their Candid profile to receive a rating.


Learn more about the methodology.

Analysis and Research


Like the overall Encompass Rating System, the Culture & Community Beacon is designed to evolve as metrics are developed and ready for integration. Below you can find more information about the metrics we currently evaluate in this beacon and their relevance to nonprofit performance.


Constituent Feedback


Diversity, Equity, and Inclusion

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