Mission

THE GOALS OF THE ORGANIZATION'S RESEARCH ARE TO IDENTIFY WHICH GENES CAUSE DYSFUNCTION, UNDERSTAND THE CAUSE OF CHROMOSOME 3Q29 DISORDERS, AND DISCOVER TREATMENT, PREVENTION, AND WAYS TO IMPROVE THE FUNCTIONALITY OF THESE GENES. IN ADDITION TO SUPPORTING SPECIFIC RESEARCH PROJECTS, THE ORGANIZATION WILL WORK TO DEVELOP A NETWORK OF LEADING SCIENTISTS AND INDUSTRY PARTNERS TO INCREASE TRANSPARENCY AND FACILITATE SHARED RESOURCES CREATING ECONOMIES OF SCALE ON ALL CONDITIONS OF CHROMOSOME 3Q29 DISORDERS. IN ADDITION TO SUPPORTING RESEARCH ACTIVITIES, THE ORGANIZATION ALSO SEEKS TO CREATE A COMMUNITY AMONG CHROMOSOME 3Q29 DISORDER PATIENT FAMILIES. THE ORGANIZATION BELIEVES THAT EACH IS A RESOURCE FOR THE OTHERS AND ONLY BY SHARING INFORMATION CAN THE GREATER GOAL OF TREATMENT BE ACHIEVED. INCREASING THE NUMBER OF PARTICIPANTS AND DETAILS ON MEDICAL HISTORY SHOULD GREATLY INCREASE THE LIKELIHOOD OF TREATMENT FOR ALL THOSE WITH A CHROMOSOME 3Q29 DISORDER. FINALLY, THE ORGANIZATION IS COMMI