GWW NLSDM CORP

Mission

1. Bring awareness to the world about Neutral Lipid Storage Disease with Myopathy (NLSD-M). 2. End isolation and bring individuals together when diagnosed with a rare disease by providing the emotional support to navigate this new way of life. 3. Find a treatment for a disease with no cure, even if that treatment helps one individual.

Vision

At Gabby's Wonderful World, we envision a future where no one faces the journey of Neutral Lipid Storage Disease with Myopathy (NLSD-M) alone. By shining a light on this rare condition, fostering a connected and compassionate community, and relentlessly pursuing groundbreaking treatments, we aspire to transform lives and offer hope where once there was none. Together, we are building a world of awareness, support, and possibility.

Goals

1.Bringing Awareness - Through our various events, marketing campaigns/strategies, organization website & word of mouth through local communities, national & global outreach.
2.End Isolation - Capacity is a challenge but we are overcoming it by utilization of 3rd party resources like: (1) Constant Contact for Marketing Campaigns (2) Scientific Advisory Board (3) SEO Optimization & Google Ads from a vendor called Cause Inspired (4) Various forms of Social Media Platforms (5) Presence at major Conferences like Rare Disease Day
3.Finding a Cure - We have had discussions with a US based Bio Tech company as well as doctors and researches from Countries like Italy & Japan.

Wading River NY | EIN: 99-1151721

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501(c)(3) organization

143 Fairway Drive,
Wading River NY 11792

https://www.gabbyswonderfulworld.org/

631-680-4474